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Do you actually know you have fibrofog?
8 Replies
lacey - April 12

When I first read about fibrofo I discarded it, thinking I didn't have it but, when my doctor filled out the pension forms for me, she wrote that I suffered brainfog. So I thought well OK, she wouldn't put it down unless she thought I really had it but then it nearly drove me mad for about a week, when I realised I was saying to everyone, "sorry, I don't know", along with losing things, in answer to their questions. So then I just thought I was definitely going mad.

Then I noticed that heaps of ppl I know all do the same thing. So my question is, how do I find out if I really have fibrofog?


Rahiin - April 13

Hi lacey

There's a few things that you can tell by. If the fibrofog started around the same time that you developed all your other firbro symptoms, then odds are it is fibrofog. If your doctor ruled out other types of mental/learning/hearing disorders, then that will help narrow your search. Also, the fibrofog gets worse with pain. So if you can see a correlation between you forgetting/not hearing things, and your pain levels, then it is probably fibrofog also.

Hope this helps. I have fibrofog real bad, it holds me back so much, so I totally know how you feel.


lacey - April 14

Thanks for your reply. I've had the sore back and legs for years but only just been diagnosed, so I can't say whether or not, I've been forgetful. I don't think I have it but just not sure.

My pain is quite low on upper body ATM but still very painful from waste down.

is it the bad weather that makes pain worst or just rain, or good weather?


mdak - April 15

I have horrible problems with remembering things, sometimes it scares me. I did let my dr. know and he put me through some testing. They came out bad. At times I would forget how to get to one end of the town driving. I would get so upset then I really panic and called my husband. Now I dont drive and have a special agency come drive me around. I dont know if you call it fibrofog or some form of dementia. I was ask to participate in a easter play that I had to follow others in music, using our bodies in motion. I couldn't do it because of the coorniation it takes. It really sunk it last night how bad it can be. At times I can accept it and other days I feel dumb. I guess by reading what lacey has written, mine is probably dementia.


Rahiin - April 15


Bad weather, including rain, makes the pain worse, which in turn makes the fibrofog worse. So, indirectly yes, bad weather makes it worse.


lacey - April 17



tesse - June 9

Hello Lacy

As Rahiin pointed out, you can tell if you have brainfog if it started around the same time as your other symptoms and if it gets worse with your pain.

For years I wrote off my psychological dissociation, bad memory, feelings of "depersonalization" as psychological, but now I'm not too sure. When I go through periods where my other symptoms are less severe, the "brain fog' subsides as well and I can do things like study, carry on in-depth conversations, write etc., with ease. When I'm ill however the brain fog becomes considerably worse and those things which come easily to me during periods of good health become a challenge.

If you find that the brainfog is getting in the way of your every day life I suggest seeing a psychologist. A psychologist can help you work through the brain fog and develop coping skills to mentally push yourself past it. I just started seeing a counsellor and she seems optimistic that she can help me (especially in terms of studying). I'm not sure how many people with fibro fog turn to a mental health worker, but I think it will be helpful, for me at least.

Hope this helps :)


January - June 9

Hi Tesse - I don't know if you are taking an antidepressant, but in SOME people, these drugs can seem to work well at first… but as time goes by they are less effective, and the body (in my opinion) can start exhibiting strange symptoms - like depersonalization, spaciness and brain zaps. (Perhaps it's a type of withdrawal as your body gets used to the dose you are taking.) This began to happen to me after I'd been using an antidepressant for several years. Finally, they decided it had quit working, and I was switched around to different drugs. None worked well, and it was a merry go round of odd symptoms. They stopped when I quit the antidepressants! After withdrawals, my brain began to feel normal again! I question if the long term use of antidepressant drugs can somehow damage the brain. I don't know if we have any evidence one way or the other yet. You can check my recent post under Fibro Drugs if you're interested.

I don't remember experiencing fibro fog BEFORE I took antidepressants. For me, it doesn't seem at all correlated with my pain level - but much more with fatigue.

My definition of fibro fog is that my thinking seems to slow down and time goes by without me being able to focus and accomplish things. I am not as sharp as I normally am, might have to read something several times to retain it. I forget what I have planned for the day and get easily distracted. I don't concentrate well. For me, fibro-fog seems to get worse with extreme exhaustion - so maybe it's when I don't get enough good sleep or when I overdo things. It definitely comes and goes. On the days I feel well, I do what I need to get done. There are other days when I just rest.

Years ago, while I was taking antidepressants, my dr. put me on ADHD drugs. I took a VERY low dose, and I was able to think clearly and get a lot accomplished, while avoiding the side effect of anxiety and pounding heart. Still, these drugs come with risks, so I have avoided them. The problem was that I could easily over-do it while I was taking them. I have never been good at "pacing" myself, something we all have to learn.

The good news is, it's been 4 years since I quit antidepressants and CLEANED UP MY DIET, and my brain HAS come back to decent functioning. (I felt like a zombie for years.) That means you CAN get better. I researched supplements, and take the ones that help me. I also have had times when I took antibiotics or antivirals, and they definitely sharpened up my thinking to a noticeable degree! So that makes me wonder if some of us have some undiscovered infection that crops up and affects our brains…?

I'm always in favor of counseling (I think everyone should go!) - so I'd be interested to know if the counselor can help you cope with brain fog. My theory is that it's more a physical cause. But if she has coping tips, please share with us all!

And Lacey, we've got bad humidity and heat here again - my pain is really aggravated! I guess humidity is definitely a major factor! I never thought about it until I learned about it from this website! I wonder if it would help to get a little dehumidifier to keep in the bedroom…?? Has anyone tried this?


LeeAnn68 - June 23

I have adhd and chronic depression...however these conditions were around long before my fibrofog started. I actually had complete neuro testing and neuro psych testing and the docs truly believe I have episodes of fibrofog. They usually start around the same time I'm having a flare up with other symptoms. Stress makes it worse, but stress makes my pain worse too. I am on meds for adhd and depression and they don't affect the fibrofog. It comes and goes with my other symptoms regardless of medication. My psychiatrist sent me for the neuropsych testing to confirm the fibrofog/rule out other possibilities.



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