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Voodoo doll anyone?
3 Replies
seedbeads - February 9

Seriously, does someone out there have a voodoo doll of me? I feel like there's pins being stuck all over the place, totally randomly. Tonight, for instance, it feels like there's a pin in the side of my neck, shoved up into my head. Yesterday it was in my thigh. Sometimes it's just a brief poke and sometimes it's constant.

Is this a part of FMS? I'm still waiting for dx and the more I can tell the doc the better.


Fantod - February 9

Yes, what you are experiencing can be part of FMS. It sounds like nerve pain which is typically treated with a drug like gabapentin. I have degenerative disc disease and sometimes experience shooting, electrical like pains in my legs. Its annoying and can be quite painful.

Keeping a list of any symtoms for your doctor is an excellent idea. I hope that you get a firm diagnosis of the problem soon. Take care.


CoastalNC - February 9

Yes, it does feel like someone has a voodoo doll of me too sometimes. I don't have the shooting sharp pin like pains all the time but I do get them, the other day I had them in an arm and then one night recently I had them in my knee. They kind of skip around like the creeping feeling on the skin that I get at times in different places.

Mostly my pain is constant and not sharp unless I move my body...especially to stand up, walk, move my arms, grip something with my hands (or try), stand in place, etc.

Good luck seedbeads, I've not found a doctor yet that has given me any relief...I quit trying.


Fantod - February 9

CoastalNC - Go online to the National Fibromyalgia Association website and see a list of fibro-friendly healthcare providers in your area. Call your local hospital and ask for the physician referral service. See if they can match you up with a rheumotologist and/or a pain specialist ( I have both) with an interest in FMS.

Go online to Amazon and order "Fibromyalgia for Dummies." Like all of the dummies series, it contains good basic information on Fibromyalgia (FMS). Read it yourself and pass it along to family and friends. Your illness does not impact just you. It has a major effect on family dynamics. Knowledge is power.

Another worthwhile series of books about FMS that you should consider purchasing/reading are by Dr. Jacob Teitelbaum. These are also available on Amazon. He is an expert and widely admired for his work relating to FMS.

I hope that you will consider some of my suggestions. Take care and by the way - welcome to the board!



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