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Type of Pain
26 Replies
Jean - November 6

Hi Steve. Fibromyalgia is a real medical diagnosis at least in my readings and also with the physicians that I've been seeing for my condition. You have had alot going on with your heart attacks and bad health as it is. During my reading and investigation about this disease it is or could be caused by trauma. In your case it is certainly possible. Being a Vetern I would think the VA Hospitals and doctors would give you much better medical treatment for little to none amount of money. Since you are 100% disabled I would think you would be getting disability insurance. I haven't heard about anyone being put on steroids for Fibromyalgia. Some doctors do not believe this condition exists let alone Myofascial Pain Syndrome that some people like myself have with Fibromyalgia and some also have Chronic Fatigue Syndrome as well. I think people all over the world have many of the same problems we do. The only thing is we and they seem to be unable to communicate. It is ashame because there are so many scientists and other medical talents all over the world if only they all could work together to bring forth better treatment plans or even cures for everyone in the world. Miracles can happen and maybe someday there will be piece in the world. I hope all goes well with you and if you do get that heart transplant take good care of it because life goes around and back again. I see you trying to help other people on this site and it warms my heart so take care and stay positive.


Joni - November 6

Steve, I am so sorry for what you are going through...Please continue to seek help & knowledge for your condition. I hope things turn around for you soon. Take care of yourself. People on here do care...


Laura - November 7

Steve, in response to your original post, I have the burning pain in my face, hands, feet and legs. No headaches--yet. Thank God. I'm so sorry to hear about your other problems. I have insurance, but sometimes it's been a close call. It must be a nightmare, not being able to pay for doctors and medicines. Your doctor's comments about mental problems, etc. sound like malpractice to me. Maybe you should see a lawyer?! Hang in there, we all have rough days and then good ones again. I'm rooting for you. Laura


Jean - November 7

Hi Steve. Hope you had a better day. Remember keep positive and keep a smile, God loves you. Take Care


Faye - November 13

Hi Steve,sorry to hear of all the health problems you are having.are you close enough to another V.A.facility to consider going to another Doc?I have really good ins. coverage but I'm on so much medication I still have to pay a little over $400.00 amonth on meds. alone I have filed for disability but have already been turned down once and I apealed it so I'm waiting again.I so much want to encourage you to pray for God's grace he is so faithful to us in our storms of life.I will be praying for you.we are in this pain boat with alot of people .remember when Paul asked Jesus to remove the thorn from his side andJesus said my grace is sufficientit is very hard to accept this but I know Jesus is the great physcian Good luck and God bless you


Steve S. - November 17

Jean, Laura, Joni, & Faye: Thank you for your kind notes and information. I have been very sick for the last week and spent a few days in the hospital, that is why I did not get back to you sooner. I have now been told that since there seems to be no other answers for my pain and burning in my left arm, legs, and face that even though the test do not show it, I must have Type 2 Diabetes and have been put on medication.The medication makes me even sicker,but my VA doctor says I MUST take it to get better.I am going to a new doctor next Monday to get a second opinion,It is another VA doctor but
"maybe" this doctor will at least believe that Fibromyalgia is real. My current doctor thinks it is "bunk" as he says. So I am hoping for some concrete answers soon. With all the other health problems I have to deal with daily, I don't need all the extra stress that this not knowing for sure is putting me through.My faith in God has never been stronger although I sometimes wonder why I have to go through so much pain and so many challenges. But then I remember that these challenges and pain bring me even closer to God as I put all of my trust in his mercy and grace. I hope this new day brings each of you great happiness, joy and good health and I will remember each of you in my prayers. Thank you again for your kindness. Have a wonderful day and God Bless!


Andrea - November 18

If you have been overseas it's possible that you might be suffering from Gulf War syndrome, they are saying that Fibromyalgia and Gulf War syndrome are linked to be one in the same, only difference is people with Fibromyalgia haven't been in a war of any type. Hope this helps..*hugs*


Steve S. - November 18

Thank you Andrea, I am a Viet Nam Vet and never served in the Gulf War, but I was recently told that many of the vaccinations we (Vets) were forced to take may be part of the problems we are now having. It is sad that so many young men are forced to take these "vaccinations" with no idea what may happen to them in the future..Thank you for your kind note and you have a wonderful day! God Bless you!


Steve S, - January 6

I'm still fighting the neuropathy on my left side in my chest, arm, hand, and foot. It feels like they are always on fire. I'm still getting the run around from the doctors at the VA and they have decided it must be Diabetes even though the numbers don't show it. They refuse to even consider Fibromyalgia, they still say it is a disease of the mind. If it is my mind, it is sure causing a great deal of pain.. Does anyone else have the same problems?


Jean - January 8

Hi Steve: It's possible. What does your doctor have to say about it?


Steve S. - January 14

Jean: I don't think the doctors have a clue, as to what is happening. Yesterday their explanation for my diabetes numbers not being up is because I am in the 1% of people who have diabetes with what are normal numbers for everyone else. Have you ever heard of such a thing? I did get the chance to see my family doctor of 30 years who retired a year ago, and he said I do not have diabetes and in his opinon I have fibromyalgia and have had it for many years. He suggested I find a new doctor, my Chiropractor agrees with my former doctor that it is fibro, it gets pretty discouraging that I can't get any real help because my current VA doctor (from India) refuses to believe that fibromyalgia is a real
disease. As soon as I can afford it, I will find someone new. I hope things are going well for you! You and all the other kind people who have written me are in my prayers. God Bless you all!



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