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Trying to verify if I have fibromyalgia
4 Replies
sue4bygrace - November 18

I am looking for a little guidance. I already have been diagnosised with epstein-barr virus and have had since I was in my early 20's. I am now in my 40's and in the past 4 years have noticed changes. I have trouble sleeping, additional fatigue above and beyond epstein-barr normal, extreme weight gain, depression, burning sensation along spine, neck and shoulders are the worst, extreme headaches, lost my job in January, but noticed problems of focus and memory loss prior to job loss. Some days extreme mood swings. I am also having problems with cycle. Apologize for excessive info. I have no insurance and need some verification to try to move forward. Quality of Life is very poor.


Stacey373 - November 18

Hi sue4bygrace - I feel like I've become some what of an "expert" on dealing with a major illness without insurance! LOL

First, the fibro symptoms...the major symptoms are chronic pain for at least 3 months, pain in all 4 quadrants of the body (upper, lower, right & left sides), headaches, fatigue, sleeping problems, etc. It is very possible for you to have fibro along with another illness/disease. And it could even be what is called "secondary fibromyalgia."

If you are dealing with fibro, you definitely need to try to get some medications to deal with the symptoms. The meds you should be taking are an anti-depressant, pain meds, sleeping meds, and maybe a muscle relaxer for the neck pain and headaches. There are some natural meds you can take instead of getting prescriptions for these. I know you can buy Calms forte and melatonin over the counter and that will help with the sleeping. I'm not sure what else there is, hopefully someone else will write you and be able to tell you the other names of things that will help you.

back to not having insurance....I have learned some ways to get around this over the past year. Do you have a regular family doctor that you normally see? I am able to see my regular doctor on a cash basis...because I pay "same day cash" I get a 30% discount and it only costs me about $50 per visit. I don't know how hard this would be to do with a new doctor....but you can still try to find someone who is willing to see you like this.

The other thing I've done is I paid the Pharmacy to get a prescription card with them and that has cut my medications down by about half the normal cost.

I hope you are able to get to a doctor and get diagnosed ASAP. The longer you put this off, the more pain and problems you are going to have. let me know how you are doing...Take care, Stacey :o)


Fantod - November 18

sue4bygrace - Welcome to the board. I am very sorry to read about your situation.

I understand that you have no health insurance. But, in order to get a definitive diagnosis of Fibromyalgia (FMS) you need to see a rheumotologist. I would call your local hospital and the United Way to see if they are aware of any free clinics in your area. I agree with Stacey that you need to see someone about all of your health issues. You could also Google "free health clinics" and the name of your metro area to see what pops up.

The pharmaceutical companies all offer prescription assistance to anyone who is unable to afford to pay for them. The information is available online on their sites. If you can also obtain free samples that would help too.

Melatonin and/or Calms Forte will help with your sleep issues for the time being. You can find them at any health food store or the Vitamin Shoppe.

For pain, you could try Curamin which is a spice. For this application, it comes in a highly purified form in capsules. Again, this is something you can find at the health food store. I use a brand made by Terry Naturally for FMS breakthrough pain. It works well but that brand is expensive. You may be able to find something that costs less.

If you use articial sweetners (including Splenda), eat deep fried food, lunchmeat, red wine you are contributing to your overall pain level. Any of these items will cause an increase of discomfort. Lunchmeat, bacon and red wine all contain nitrates. Nitrates and FMS don't mix well. If you need a sweetner, use something made with the nontoxic Stevia plant like Truvia or Sun Crystals. You can find them in the grocery store alongside the other sweetners.

The longer a chronic pain cycle continues, the harder it becomes to manage or stop. I hope that you have some success with my and/or Stacey's suggestions. Keep in touch. Take care and God Bless.


kvc33 - November 19

Sounds like you might have some hormonal issues which could be responsible for a lot of the symptoms you are having. I would get your thyroid checked too. Like the others said, you'll need a doctor to make a diagnosis, that's something we can't do for you.


axxie - December 1

I was over in Syracuse over the week-end, the Carousel mall, they had posters, if you wanted to participate fibro study. Maybe if you search you might find a study close to where you are.



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