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Question - just found site
3 Replies
cjm - January 24

I just found this site and have questions. I'll try to keep this short.
I have not been diagnoised but my pain management dr. gave me an rx for Lyrica. Got me reading different things online. I'm sure that's my 1st mistake.
I fell a year ago and hurt my shoulder, started with family dr., then to ortho dr, who sent me to a different ortho who sent me to pain management dr. None have found a problem with the shoulder. I take tramodol daily.
I used to always have a high pain tolerence but that changed about 4 or 5 years ago. Now if someone even starts rubbing my shoulders or pokes me it hurts like....
I do not have continual pain all over, but will get random shooting pains in an arm or leg that will last for 30 minutes or so. I'll have days when my legs ache almost like you feel when you have the flu. I can't remember the last time I've slept well at night, when I take something to help me sleep like xanax (got a rx for this after my Mom died in September and I was an emotional wreck) I'll sleep better and only wake up once or twice a night, but still am dead tired in the morning. My husband wanted me to talk to my Dr. about RLS because some nights I lay in bed and keep moving my legs around, but it's also my arms and fingers that have the same weird feeling like I have to keep moving and stretching them.
I have daily headaches, have been diag. with migraines which I have Treximet for, but take only for the sever headaches.
At times my hands and feet will tingle and get ice cold.
Over the years I've found ways to explain away most of what I wrote about. I don't like complaining so I haven't said anything to my husband or drs. about all of this, I'm afraid I'll sound like an idiot. After writting I'll this I'm sure I will...
Anyway, could this be the start of fibromyalgia, or do you have to have unbearable widespread pain all the time.
I haven't started taking the Lyrica yet because that scares me a little.
I'm guessing my main question is, does this sound like something to go over with the Pain Managment Dr. or sound more like just a bunch of random things because of getting older.
(sorry about the spelling, that's always been a problem for me)


Fantod - January 24

cjm - Welcome to the board! I'd suggest that you make an appointment with a rheumotologist to rule out anything that may mimic Fibromyalgia (FMS) such as a thryroid problem. You can find a fibro-friendly rheumy by calling your local hospital and asking for the physician referral service. See if they can match you up with someone who has an interest in FMS. You can also go online to the National Fibromyaliga Association and see a list of fibro-friendly health care providers in your area. Based upon your description, I'd say that you may have it.

You should also discuss your symptoms in detail with the pain management specialist. He can not help you if you are not completely honest with him. If you have any recent bloodwork or anything else that may save time and money when you see the rheumy, get copies.

Cold hands may indicate that you have Raynauds. RLS is also one of the many "perks" associated with FMS. Take some time to read "Associated Conditions" in the blue boxes on the lefthand side of this page.

And finally, the longer a chronic pain cycle continues, the harder it becomes to manage or stop. You will have a better quality of life if you get started on your medication. Bear in mind, you are not the only one affected by your illness. Your family is also impacted. Side effects listed for any medication are usually miniscule and a product of today's litigious society. It will take a minimum of two weeks before you may start to notice any difference. It may take as long as a month.

Keep in touch and let us know if there is anything else that we can do to help you. Take care and God Bless.


cjm - January 26

Thank you for your answer. I think one of my biggest problems is when I go to a Dr. I get nervous or feel stupid and don't talk about whats going on with me, lots of yes and no answers.
I went online and read about my Pain Management Dr. and he does specilize in Fibromyalgia so if it ends up that is what is going on with me I'm at the right place.
When I sit and think about everything, I realize I don't think I've felt right for 3 or 4 years. Over time I've talked about different things going on with me to my family Dr., but it's not til you put everything together that it starts to make sense. Reading some of the posts on here, I keep thinking thats me. I said I've manage to explain a lot of the symptoms away over the years. When my feet would hurt really bad it's because I wore differnt shoes or maybe the ones I have are getting worn out. When I get up in the morning and all my body is stiff and sore, it's because my mattress must be getting old and so am I. The horrible night sweats must be because I'm getting old, no hot flashes during the day, just at night. I used the getting older excuse or stress excuss for not sleeping at night. When my blood sugar drops I blame my diet, one trip to the Dr. he check my blood sugar level and it was 42, hey I got candy. I was checked for diabeties and came back okay. I use lack of exercise for the restless leg feelings as well as when I sit and my legs and butt just ache. I can usually blame the tingling and cold hands on spending time on the computer. The daily headaches I blame on stress and the migrains, well my Mom and Grandfather got those so it's genetics.
As you can see I can find an excuse for everything so I don't/can't talk reasonably or truthfully to the Dr. And I'm sure others feel the same that if you bring all this up in one visit well you can sound like a hypochodriac.
Sorry about all the rambling, but it's easier to type this out to strangers then talk to people you know. I haven't even said anything to my husband about all this.


Fantod - January 26

cjm - You should never feel stupid telling the doctor what is bothering you. Pain is subjective and you live in the body that is experiencing all of these difficulties. If you don't tell him everything, he may or may not be able to alleviate your symptoms.

If you are simply too nervous to tell him outright, than write it all down. Make each point simple; don't write a novel. Just give him the basic list and let him ask you any pertinent questions after reading it. You have to be your own best advocate when dealing with chronic illness.

And, based on what I know so far, I think you are in denial about everything that is wrong. Under the circumstances, that is perfectly understandable. I'd like to gently suggest that you find a counselor to help you deal with your illness. You can find someone who specializes in chronic illness by calling your local hospital physician referral service. Ask them for a recommendation to a counselor who specializes in cognitive behaivoral therapy. You are dealing with a lot. I think that the extra support (not discounting your husband who seem to be very concerned) may be very helpful to you. Many of us see someone for extra help.

You've made a very good start by seeing the doctor you are going to now. Start your medication if you have not done so already. Make the commitment to yourself to do everything that you can to get the help that you need for a better quality of life. Take care.



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