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Parenting with fibro
4 Replies
Fibrochick - May 10

I would just like to know how many of you fibro sufferers have children.
I have two boys, one is 17 and the other 12, it can be quite difficult at times, especially because of fatigue.
My ex-husband is dissabled, he doesn't have the use of his right hand, so he couldnt help too much when it came to changing nappies etc. My mother was not much help either, so every night time feed and every nappy change I had to do!! I really dont know how I got through the baby stage without going
No I feel like I cheat my kids because I am always tired at weekends after work and just want to rest, or catch up on chores...


fibromite.u.k. - May 10

Hi fibrochick, I have a son of 21. Although I was only dianosed with fibro a few years ago, I know that I have had it since my teens and have never been really well. It was quite hard when he was young, but he was such a blessing to me (as I thought I would never have children) that it was worth every minute. I had a breakdown when he was 13 and he was the one who got me through it. He is so caring and loving and helps when he can and can always make me laugh. Somehow he seemed to know from a very young age that I was unable to do some things, for example he never ran off from me when we were out, but used to do it when he was with his Dad. I used to be concerned that I couldn't run about with him like other Mums but I was at home all the time with him and we spent hours, reading, painting and doing puzzles etc. He got so much attention. Think it was all good for him as he was reading at three and is at uni now. Mums who are unwell, have different gifts to give to their children.


Noca - May 10

I dun got any kids, I can't have any due to my bone disease. Im sure you are a great mother though :)


ptalana - May 11

Hi fibrochick, raising children is challenging even without the added stresses of having fms. I have 3 girls and 1 boy ages 29, 27, 25, and 18 yrs old. I also now have five amazing grandchildren. I look at them all now with amazement at how fast the time has gone.
I didn't develop fms until 2yrs ago following an accident. So luckily for the most part the kids were older and didn't need me as much as they did when they were younger. The one thing I have learned after raising my kids is that the time does go by so quickly and to take those opportunities to spend time with the kids, the chores will always be there. Trust me they aren't going anywhere;) And also there is nothing wrong with asking the kids to help out with the chores so that you have that time to do those special things with them.
Please don't feel guilty for those times when you just can't do anything and you have to rest. You are only human, the added stress is only going to hurt you in the long run. You sound to me like a terrific mom!!! Try not to be too hard on yourself, remember your health is the most important. You can't take care of anyone if you're not well.
Take care, Patty:)


lucky13 - May 11

Hi, I have 3 kids ages 11, 3 and 7 months and expecting another one in November. It is really tough, I work full time and go to college on top of being a mommy with Fibro.
My kids are what gets me out of bed in the morning, if it weren't for them I'd allow my self to be consumed with the pain but I can't, I have them to care for.
There are some days I don't feel like I can move and on those days, chores don't get done. I lay around and find quiet activities to do with the kids like TV, coloring and playing cars.
There are also some days I just don't feel like cooking, that's when we get take out on the way home.
My DH hasn't been a lot of help, at first he didn't think my Fibro diagnosis was real, that the Dr didn't know what was really wrong, but he finally did his own research and came around. I am still the main care giver to the kids, diaper changes, feeding, bathing etc.



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