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Pain is driving me mad :(
9 Replies
Mrs Zozzer - August 28

I went to see my GP a while ago regarding a constant aching in my neck and shoulders he reffered me to a rhumatologist who said that I only had wear & tear but recently I have been getting forgetful am tired all the time and when I stand the pain in my lower back and hips is so bad it makes me very unsteady but also I have been getting a weakness and pain in my left elbow regeion and aching hands cant seem to grip things and cant even pick up a cup and my periods are about 7-8 weeks apart and I keep getting hot sweats but had blood tests done and hormone levels are normal. Im now taking 2 tramadol and 25mg of Amatryptline every night just to get to sleep, my GP wont commit himself and say its FM.


axxie - August 29

Mrs. Hozzer, welcome to the site. I'm sorry that you are not getting any information on your illness. Trying to find out what is wrong is daunting at best, imagine the doctor what they have to go through.

First thing first, doctors will not commit to anything until they have passed every tests there is, anything can be wrong with you and so it's difficult for a doctor to commit to something.

I would start writing a journal, of your symptoms, when they appear and when you feel less pain.

Date, today, hot weather temp was 90, allergies, no allergies, woke up with pain in left side, pain was dull, burning etc.

Breakfast, fruits, coffee, lunch 1/2 chicken sandwich, soup, drank ginger ale, supper wasn't hungry had a veg soupe homemade.

Commotion at home, at work, stressed etc.

Went to bed at midnight and felt exhausted, etc.

Period expected didn't happen, taking the pill, what kind, etc.

Relief when I take tramadol or not etc.

Went for blood test, cbc count, thyroid etc, normal, etc.

Doctor sent me to rheumy, what test did he do, talk about possibility of fibro etc.

Keep your journal going, and everytime you see a doctor write which doctor and why, what you discussed and what tests etc.

Keep your journal short and to the point, review your journal once a week or two, and see if there's any corrolation to your symptoms.

Doctors will only commit after they have tried every tests imagineable and then maybe they will commit and tell you you have fibro.

If you happen to find that your doctors are non-commital, then don't hesitate to change doctors.

Everyone here who have had a firm commitment to having fibro, it must of taken many months to years.

You can buy yourself a book on fibro and see what you can find. Fibro for dummies is a good book, another one is Fibromyalgia and Chronic Myofascial Pain is another good books.

Good luck to you and hope you find something useful in your hunt.


axxie - August 29

What is Fibromyalgia?
Pain, Fatigue, Fibro Fog & More - All Part of Fibromyalgia Syndrome

Fibromyalgia syndrome is a chronic condition that causes intense pain in various places around the body, including muscles, connective tissues and joints, as well as a host of other symptoms. It affects more than 6 million people in the United States.

Doctors classify fibromyalgia as a syndrome, which means it has a group of signs, symptoms and characteristics that occur together.

To make a diagnosis, doctors usually rely on signs and symptoms alone. Complicating the matter, symptoms vary widely from person to person and often, as do their intensity.

Symptoms of Fibromyalgia
People with fibromyalgia frequently hurt all over and feel exhausted all the time. Those symptoms often force you to seriously limit your physical activity. It's also common to have problems concentrating and remembering things. A lot of people with fibromyalgia have symptoms so severe that they have to quit or modify their jobs.

Because fibromyalgia is frequently misunderstood, family, friends, co-workers and even medical providers may not believe the person is actually sick. A proper diagnosis often takes months at the very least, I found people on this board had it for years before they where diagnosed.

Keep in mind that the signs and symptoms vary widely from one person to another. Some people have only a few, while others have many. The intensity of symptoms is different in everyone as well, ranging from mildly annoying to highly debilitating.

Common symptoms of fibromyalgia:
Widespread pain
Chest pain
Morning stiffness
Sleep disorders
Cognitive or memory impairment (“fibro fog”)
Abdominal complaints
Frequently, people with undiagnosed fibromyalgia don't realize that a host of secondary symptoms are related to the pain, fatigue and other primary symptoms. Keeping a detailed list of symptoms can help your doctor make a diagnosis.

Additional fibromyalgia symptoms include:
Painful menstrual cramps
Vision problems
Nausea and dizziness
Weight gain
Chronic headaches
Skin problems
Muscle twitches and weakness

These lists include the most common symptoms. For a complete symptoms list, see the Monster List of Fibromyalgia Symptoms.

Fibromyalgia Treatments
While a lot of fibromyalgia treatments are available, you'll likely need to experiment with different options before you find what works best for you.

Fibromyalgia treatments include:
Prescription drugs
Complementary/alternative treatments, including massage and physical therapy, chiropractic, and acupuncture
Vitamins and supplements
Moderate exercise, but only if done correctly

Lifestyle changes, including diet, stress management, and pacing
Every case of fibromyalgia is different, and no treatment works for everyone. You'll probably need to work closely with your doctor to custom tailor a treatment regimen that helps you become more functional. Many people benefit from a multidisciplinary approach, which involves several healthcare providers.

Prognosis for People With Fibromyalgia
Fibromyalgia is a chronic condition. While some people do experience long remissions, no one who's had fibromyalgia can truly say they don't have it any more.

As for the progression of the illness, it's hard to say whether your symptoms will get better or worse with time. Because fibromyalgia isn't degenerative, its course isn't clearly established like it is for many diseases.

Some experts say about a third of us will get worse, a third will improve significantly, and the remaining third will stay about the same. Some studies have linked early diagnosis and treatment to better long-term outcomes, but other than this it's unclear what role treatment plays in the progression, or lack thereof, of fibromyalgia.

Fibromyalgia & Overlapping Conditions
As if all this weren't enough, several other conditions frequently go along with fibromyalgia. Researchers aren't sure whether one condition leads to another or whether they have related underlying causes. Becoming familiar with the symptoms of these disorders can help you determine whether you have more than one.

Overlapping conditions include:
Chronic fatigue syndrome
Irritable bowel syndrome
Temporomandibular joint syndrome (TMJ)
Multiple chemical sensitivity
Myofascial pain syndrome
Restless leg syndrome
Costochondritis (chest pain)

History of Fibromyalgia
Doctors coined the term fibromyalgia (fibro –- meaning fibrous tissue, my -– meaning muscle, and algia -– meaning pain) in 1976, but it wasn’t until 1990 that the American College of Rheumatology developed diagnostic criteria. While muscle pain is the primary symptom, research found that nothing is wrong with the muscles themselves. For a time, researchers thought it could be an autoimmune disease, such as lupus or rheumatoid arthritis. Now it’s widely believed in the medical community that a malfunction of the central nervous system (called central sensitization) causes fibromyalgia, leading to new research into treatments and new hope that fibromyalgia will be not only more treatable, but perhaps even curable.

To date, three drugs -- Lyrica (pregabalin), Cymbalta (duloxetine), and Savella (milnacipran) are FDA approved for treating fibromyalgia, but other drug trials are in the works.


Mrs Zozzer - September 4

Went to see the doc on Thurs he has sent me for 7 differant lots of blood test's he is now saying I MAY have the start of rhumatoid arthritus or the pain is due to hormonal changes I'm 42 so god knows what is going on I went for the test yesterday and now just waiting for the results which could take at least a week.


Stacey373 - September 4

Hi Mrs Zozzer! I wouldn't worry too much about the doctor doing all those tests on you. He should have done all these tests FIRST....A fibro diagnosis is usually the very last thing after EVERY thing else is ruled out.

When my doctor was putting me through all these tests, I got really scared and worried. Especially when she tested me for Rheumatoid Arthritis.
I actually went in to see her because a couple of my fingers were swollen to about 3 times the normal size and one of them was all bent weird and out of shape. When she saw that, she decided to test me for RA...I was SO scared. I spent a few days waiting for the results and imagining every horrible possibility out there.
But then it turned out to be negative and I was onto the next test of what could be wrong with me.

I just wanted to let you know that what your doctor is doing is pretty normal. And try not to worry yourself over this too much. I know how scary all of this can be. I hope you do find out "for sure" what is wrong with you very soon. Let us know how you are doing. Take Care, Stacey :o)


Fibrosukz - September 4

It took my dr approx. 5yrs to finally listen to me until i decided to do a journal and when i made my appt i just handed my dr the journal to read. Things turned for the worse after going for a routine Tetnus/Dipth. shot because i worked in healthcare,i had swollen lymphnodes and my hands were numb and couldnt move my shoulder. My rheumy suspects that my FMS came full tilt from the injection due to trauma to my body. It is very frustrated but things take time to diagnose and dont want to jump the gun. All the best :o)


axxie - September 5

Hey fibrosucks, I sure hope you don't have fms, I mean, it's not the thing to have, but you can help yourself get better, it just take time and patience and lots of trial periods. When I first was told I had fms, I was down in the dumps, feeling depressed, lack of sleep, pain the hilt and didn't know if I was coming or going. It took me two years and some months, to feel halfway normal. Don't get me wrong, it's better then before, I even started to work 4 days a week. It's hard, there's still pain and I have tried just about every drug there is. I've changed doctors for different reasons, either I had quacks treating me, or some who didn't believe in FMS. I finally found two male doctors who have helped me more in a few months then all the other doctors I was a patient to.

I'm back on hormones, that in itself has helped me treamendously I'm 54 and I've been in surgicale menopause since the age of 23. The hormone did the best, for me. It helped me sleep better and without medication.

Don't get me wrong, I still need my pain pills and I still need my sleep medication but I feel much better.

I'm still confused and I still walk crooked and sometimes I don't make sense, but you know what I feel better.

The doctor did tell me there's alot they can do with FMS, if the doctor would just take his/her time and look at everything instead of what the symptoms appear.

I wish you all luck and I hope you all get some relief. I don't know how long this will last, but I will take every day as a new lease on life.

If the doctor isn't treating you they way you should be treated, it's time to change, don't be afraid to step on their toes and tell them, that you are the patient and you demand that the doctor help you as much as possible in obtaining a better life for yourself.


Fibrosukz - September 5

axxie- Yes i was finally diagnosed with FMS a few months ago. Im on my second trial of meds but with the weather changing here in canada its very hard to get a handle on the pain. I am in the middle of looking for a new dr that will stand by me and FMS, the dr's here are very few and far between. :o(


Mrs Zozzer - September 11

All blood test results came back NORMAL, but my shoulders, hands & arms have been terrible this week so going to make another appointment with the GP next week. It cant be Carpul Tunnel because I've had both my hands operated on them for that, but can Carpul Tunnel Syndrome return?


Stacey373 - September 11

I'm glad everything came back normal....that has to be a huge relief. My husband has had Carpal tunnel surgery on both his hands and he just told me that it is possible for it to come back even after having surgery.

I have ALOT of problems with my shoulders and arms (and sometimes my hands) and some of it is caused by TMJ and Myofacial Pain Syndrome. If you look these up in the "Associated Conditions" boxes, you can read the symptoms of these 2 illnesses. you might be dealing with these and not Carpal Tunnel.

Take Care, Stacey :o)



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