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New here. Diagnosed 1 month ago
3 Replies
nikkihogg - February 20

Hello all. It is a wonderful feeling to know that I am not alone, and others actually know what I am going through. I have been off work since Jan20 of this year. My doc seems to think that I will be able to go back to work soon, but I am not so sure. I have an office job, working at a computer, but it is harder than it used to be. I cannot focus at all. Things I used to do on a daily basis, I cannot remember anymore. I feel "stupid". I hurt all the time. My hands and arms are almost always numb, or have stabbing pains, I have a headache constantly, and my legs are like jello, except for when all the muscles decide to tighten up all at once. I am unable to do much of anything. I am trying to pace myself, and only do a few things a day. Currently I am on Effexor XR, my gp thinks I have major depression,Trazadone, to help me sleep, and T3's for the constant pain. We tryed Naproxen first, but it did nothing for me.
I go back to the gp the middle of March, and back to my internist in March also. My husband is taking me to an accupuncturist (I cannot drive anymore)who has put me on 3 different types of "herbal" remedies. Anyone have any success with this type of treatment? I am not very comfortable with it myself, but am willing to try anything. Any advice would be great. Thanks so much, Nik


lisa1 - February 20

hi nikkihogg, You are surely not alone and I have found that the people in this forum care and are very helpful. Wish the welcome was under better circumstances. You should not feel stupid, as this illness can reek havoc on your entire system The FIBRO FOG is all part of it. It does not say if your internist recommended you a rheumatoligist or not but I would asked him to. Even with all of the new light that has been recently shed on FMS, there are many doctors that still do not understand how to treat this. What may work for me may not really work for you. I am sure others will post and give you many ideas. There are alot of wonderful people here who care. Take care and keep us posted.


Fantod - February 21

Welcome to this site which I think is pretty helpful in this otherwise hectic world. I use a variety to holistic things to help control pain, muscle cramping and sleep issues. I went to a nutritionist who has been treating fibromyalgia (FMS) for a long time. I am MUCH better off than I was before using traditional medicine. Of all the things I have tried, the nutritionist has been the most helpful. Try this: get a calcium supplement with magnesium and boron. Take a minimum of 6 capusles a day to relax your muscles (3 in AM/ 3 before bed) so they don't cramp and sieze up. Magnesium is a natural muscle relaxant. If I am having a real bad day and seem tense I take more. Get some Malic Acid as well for muscle cramps, spasms, twitching etc. Devil's claw acts like Vicoden without all of the nasty side effects. I find it easier to tolerate than Ultram ER or other pain meds. It is surprisingly effective. As always you should be careful using any holistic remedies. Ask the accupuncturist to clarify what you are taking now and why. Maybe they can refer you to a nutritionist that has experience with FMS. If you don't think you can go back to work, make sure you are very clear about this to your doctor. Part of the problem with this syndrome is that pain is subjective and very hard to quanitify from one person to the next. You are your own advocate as no one else other than fellow sufferers really get it. Quite few of the members of this board are really good listeners. Stop by anytime to vent or just say HI. I'd also recommend that you take some time to read through all of the older posts which have some good information. Take good care.


kbeard95 - February 21

The best thing my doctor has prescribed so far is a drug called Lyrica. It stopped most of the pain in less than 3 days of taking the first dose. The drug has been on the market for some time but was recently approved by the FDA for FMS sufferers. It really does work for some of us. It does have its side effects. The worst for me was weight gain. It was no joke. I have since switched to Topomax which is not working and thinking of going back to the Lyrica. It is an option we should all consider, or at least talk with your doctor about. As for the depression I've been on Zoloft for years, and Xanax for the anxiety. I take Zanaflex to relax my muscles and get Botox every 12 weeks in my shoulders. I've tried trigger point injections, but they only worked for about 3 months and my symptoms continued to worsen. I too work at an office in front of a computer all day long, and have for the past 12 years. The medication is what makes us feel the way we do. Hang in there. Take it one day at a time.



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