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2 Replies
Noca - October 26

I am new to this forum but not new to chronic pain. I am wondering if I have Fibromylgia. I have a diagnosed bone disease called MHE but it doesnt explain all my pain.

I am in pain 24/7 365 ever since i was about 18-19 years old. I'm 23 now.

Is there a way to test for Fibromylgia definitively? Would it even matter if I got diagnosed? Would anything even change if I got diagnosed as it?

I am already on 56mgs of Dilaudid, 400mgs of Celebrex, 100mgs of Raliva, a day as well as many other depression/anxiety/anti-emetic meds.


axxie - October 26

Hi Noca, I'm sorry that you are on so much pain, but I think you should know. I think it helps, knowing what it is that you have as far as symptoms and would also probably give you some kind of relief knowing why you are battling with depression, anxiety, etc...

Fibromyalgia is a chronic condition that causes disabling pain all over the body -- as well as stiffness and tenderness in muscles, tendons, and joints. It is most common among women ages 35 to 55. Although it's one of the most common muscle problems. There is no inflammation or joint damage, as occurs with arthritis. There is no damage to internal body organs, as with rheumatoid conditions like lupus. It is called fibromyalgia syndrome because it is identified by a collection of symptoms.
To figure out what's going on, doctors diagnose fibromyalgia by examining specific "tender points" on the body. There are 18 specific tender points; specific locations that are tender for everyone. But for people with fibromyalgia, these points are significantly more tender.
Tenderness or pain in at least 11 of these 18 points is the hallmark of fibromyalgia. Also, the pain is widespread on both sides of the body, neck, buttocks, shoulders, arms, upper back, and chest. Tender points are around the elbows, shoulders, knees, hips, back of the head, and the breast bone. The muscle pain can range from mild discomfort to severe enough that it limits a person's everyday life, including work and social activities. The pain is often described as burning, gnawing, throbbing, stabbing, or aching. When the person relaxes, the pain may be more noticeable -- and less so when you are active. The result: Everyday sensations of discomfort and pain are amplified beyond the norm. Slight bumps and touches can cause disabling pain, if you have fibromyalgia. This pain can be aggravated by outside factors such as noise, weather changes, and stress.


lorieholtz - October 26

hi noca,
omg i'm so sorry that you are dealing with all of this at such a young stage. mine sort of started in my late 20's and was dx with a bone disease myself, but by the age 31 i was doing well until i woke up one morning and could not move my upper body. ended up being a cervical issue with stenosis and i had to have surgery and its been down heal since then. i to feel the same way when u say doing the test for fbs. no more spinal taps for me... horrible experiences with them and i've had 3. it looks like you are on med already for fbs so in my opinion i wouldn't. i know i'm for sure not. hang in there although i know its hard to do.



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