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My ear and fibromyalgia
4 Replies
PhConn - October 6

I really am at my wits end. I have been diagnosed with FM from different Drs mainly because they cant figure out why I suffer from muscle pain .. My pain is mostly upper back, shoulders and neck. I have knots in my upper back that are so painful. Thank God for ICY HOT or Ben Gay. Anyhow 2 yrs ago I developed ear noises and stuffiness in my left ear(my left upper back is the worst) and with the ear problems I lost some hearing. I also have had several bouts of vertigo. One Doc thinks it is Menieres disease another said I had acute labrinthitis sp? but I was wondering if there is any connection to the FM? It seems like I get referred pain to that ear when I have someone massage the upper back. Just throwing this out there....hope someone can help No Doctor wants to go outside his speciality to figure this out


Canada17 - October 6

It sounds like it could be tinnitus. I suffer from upper back and neck pain associated with muscle spasms due to my Fibro.

The more my back and neck bother me, the more ringing I have in my ears. I also briefly lose hearing in one ear or the other depending on how bad the pain is. If this problem persists, I have on occasion ended up with vertigo.

I had this one terrible doctor who said the ringing in my ears was due to ear wax build up and had me come in once a week to flush out my ears. I didn't have ear wax build up and after four weeks there was no change, except my ears were super clean!

I started going for massage therapy because of my back and neck pain and the problems with my ears went away.

Now that I'm five months pregnant, my breasts are getting enormous and my shoulder, back, and neck pain is getting worse. The more my shoulders and neck hurt, the more problems I have with my ears. I know my problem is tinnitus, which is a common affliction of those of us who have Fibro.

I would suggest, if you can afford it, or if you have a good insurance plan, that you go for massage therapy. I think you will be amazed at the relief you get from your back pain and I believe it will help with your ear problems.

If massage doesn't help your ear problems, it will in the least help your back problems. And, you aren't pumping chemicals into your body on a whim hoping they will mask a problem you have yet to put your finger on the cause of.


Fantod - October 6

The knots that have in your upper back are trigger points. These are common among people with Fibromyalgia (FMS). Triggers points are muscles that have contracted and will not release on their own. The solution to that and to break the pain cycle is to have them injected. Any rheumotologist worth his salt should have recommended this option. I've done this and while it is painful the end result is definitely worth it. Make sure that you have someone to drive you and take an ice pack with you. It could take several days before you feel any relief.

Perhaps you need to find another, fibro-friendly doctor. You can go to the National Fibromyalgia Association website and look at a list of health care professionals for your area. Or, you can call your local hospital and ask for the physician referral service. Ask them to recommend someone with an interest in FMS. Take care.


fibromite.u.k. - October 6

Hi, I found your post interesting. I have suffered with problems in my left ear for most of my life, ear pain, stuffiness and a build up of wax which I often have to have suctioned out at the hospital. I have also suffered from dizziness and labyrhinthitis. Just over a year ago, I was sitting at the computer when suddenly, my right ear went completely deaf. I had never had any trouble with my right ear before, but assumed it must be blocked up although it was a bit strange to go deaf like that so suddenly when it wasn't as if I had a cold or anything. To cut a long story short, I saw my doctor the next day and he said "wait and see" and that it would settle and get better in a few weeks. It didn't and I ended up seeing an ENT specialist and after hearing tests and an MRI scan, it was found that my hearing nerve had died and I would never get my hearing back. No one has any idea what caused this to happen and they say it has nothing to do with fibromyalgia, but I wonder about that. It has been devastating. I am now left with what I used to call my bad ear and it is now my good ear. I love music and it has spoilt all that as it makes it all sound flat and as the specialist said, I have lost my stereo. I can't tell from which direction a sound is coming from either. I did post a thread earlier this year about this on this forum but didn't get many replies, however, one person said that she had gone deaf for no explained reason, so I really do wonder if fibro can affect our hearing.


HerRoyalHighness - October 7

Four years ago, I experienced Sudden Sensorineural Hearing Loss, leaving me deaf in one ear in the space of a few hours, with no known cause. I, too, now have tinnitus, and occasional ear pain.

Any time you have a sudden hearing loss, especially if it is accompanied by vertigo and/or the feeling of fullness, it is considered a get-to-the-ER medical emergency. I waited 5 days. While the steroidal treatments available may have restored some of the hearing in that time, there is no guarantee but it would have been nice to have the option.

There are several theories about this kind of sudden hearing loss, including viral infections, a stroke in the ear and an autoimmune disorder. The latter makes me wonder how many of us have hearing loss related to this illness.



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