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just another newbie
4 Replies
littleloey - January 9

Hi everyone. Ive been watching your forum for a few months now. I see so many so much worse off than myself but I'd like to tell my story. At least 15 years ago I started telling drs that I had really painful spots different parts on my body and that I get so fatigued. No one paid attention to me so I finally quit complaining. Sure many of you have been there. By the way, I'm a 61 year old female. Long story short, this past April I started having problems with my balance. It kept getting worse and within a week i was having problems walking. My legs shook so bad, starting, in my knees and going down, that I had to hold on to things to walk And eventually was using a wheel chair if I left the house. After many, many tests I was diagnosed with a bulging disk impinging on a nerve and Fibro. I also was having a hard time thinking of words and spelling. They said neither of those things could cause my walking problems but gave me an epideral in my lower back for pain. The very next day I was walking perfect I had to get another epideral in Oct. They won't do another unless it lasts longer this time. Don't know that it will hold out. I take 200 Mg of Trazadone and 1mg lorazapam at bed time. Ive' taken those for almost 3 years for depression and sleep problems. I sleep very well. My rheumatologist has me on 15 mg Meloxicam and 60 mg of cymbalta. They help but I still have all the spots that hurt if touched, triggers and still problems with words. Worse when I'm tired. My main problem is the fatigue. Half way through my work day I'm just dragging and feel as if my limbs all weigh 100 lbs. In addition I have acid reflux and psorisis. My question is My Rheumatologist says my problem with words and concentration are not related to Fibro. What have others experienced with this? I know this is long and I have done many spelling correction that should not be happening. Thanks.


Fantod - January 9

littleloey - Welcome to the board! Your rheumotologist is sadly mistaken about your speech and concentration problems. Apparently, he has never heard of "fibro-fog." What you are describing is very common among people with Fibromyalgia (FMS). You could try using a supplement called "phosphatidylserine" which was recommended to me by my nutritionist. The best deal I have found on it is through a company called Puritan's Pride online (we can not post links). They call it "Neuro-PS." They have pretty good sales on a regular basis.

You probably also have "Allydonia" which is also another "perk" of FMS. I am very sensitive to touch and find some clothing very painful to wear. Bras or anything that puts pressure against my skin can be problematic.

To try an offset your fatigue, have you considered eating smaller meals more often during the day? High protein at regular intervals may help you fight your problems with fatigue better. Also, have you been tested for a vitamin D deficiency? Not only can this cause widespread pain but it can also contribute to fatigue.

Take some time to read the information contained in the blue boxes on the lefthand side of this page. There is a lot of good information there. Knowledge is power. Take care and keep in touch.


Fantod - January 9

littleloey - Another thought - You could also try using sublingual B12 tablets with folic acid. The folic acid component is very important to help the B12 absorb. You can find this item in any decent healthfood store. Sublingual tablets must be used in a specific fashion. Do not eat, drink, smoke or brush your teeth for a half an hour before AND after use. You just pop them under your tongue and let them dissolve (they don't taste bad). I keep a bottle on my bedside table and pop one as soon as I wake up. It gives me a "push" to get moving. And then, I take one as needed during the day.

If you are propping yourself up using caffiene and chocolate, you are making things worse. The crash when the sugar wears off is always bad. Watch your diet to control your blood sugar, eat protein and use B12. Take care.


littleloey - January 9

Thanks for the suggestions. I definately will try them. I found out a long time ago that I have negative effects from sugar and it does make me feel very sluggish. I do drink diet coke, no coffee so I don't get a terrible amount of caffine. Like every woman I love chocolate but don't overdo. I'll try eating more protein during the day. It is a little difficult to do at work.
My job is very stessful ( I manage almost 60 staff members) and I feel that has a big impact on my health. In fact my Dr. (family Dr)is suggesting I retire at 62 and get a part time job with much less stress. I absolutely would but I worry about getting health insurance on my own.


Fantod - January 10

Anyone with FMS should avoid artifical sweetners like the plague. That includes Splenda. Artifical sweetners, deep fried foods, lunchmeat and red wine (nitrates) will all ratchet up pain in a FMS patient.

If you need an artifical sweetner, use something made with the nontoxic Stevia plant like Sun Crystals or Truvia. Take care



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