New to the forum?

Sign Up Here!

Already a member?
Please login below.

Forgot your password?
Need Help?  
is it Fibro + something else?
2 Replies
RLFORTIN - September 12

My symptoms are as follows:

• Chronic muscle pain, muscle spasms or tightness, weakness in the limbs, and leg cramps (burning, throbbing, stabbing, electric shock, sunburn- like, tightening band-like, ultra sensitive, crawling sensations, pins & needles)
• Brain lesions
• Moderate or severe fatigue and decreased energy
• Insomnia or waking up feeling just as tired as when I went to sleep
• Stiffness upon waking or after staying in one position for too long
• Difficulty remembering, concentrating, and performing simple mental tasks
• Abdominal pain, bloating, nausea, constipation and rectal bleeding
• Tension or migraine headaches
• Jaw and facial tenderness, numbness & tingling
• Sensitivity to noise and cold temperature, A/C or weather changes
• Feeling anxious or depressed
• Numbness or tingling in the face, arms, hands, legs, neck and feet
• Brisk reflexes
• Increase in urinary urgency and frequency (irritable bladder)
• Reduced tolerance for exercise and muscle pain after exercise
• A feeling of swelling (without actual swelling) in the hands and feet
• Painful menstrual periods
• Dizziness/ Lightheadedness
• bursitis
• Night jerks in legs
• Metallic taste in mouth
• Difficulty standing, sitting, bending and kneeling (due to constant pain and spasms)
• Unable to be sexually intimate (due to lack of mobility, pain, and spasms)
• Continue to have constant pain in joints everywhere, arms, hips, legs, knees, ankles, feet, neck, and wrists. Very, painful to walk on my feet. No longer able to walk bare footed. I must wear shoes (sneakers) at ALL times of the day. I have resorted to using a cane or a walker on a daily basis. I also wake up with painful Achilles tendons that usually last all day. I now have a disable place card in my vehicle. The constant pain in my hands is also a daily battle. I find it difficult to ties my shoes, button my pants, cut food or open packages.
• Constant stiffness in joints with locking and popping sounds (very painful)
• Eye irritation, feels like sand is in my eyes and almost constant redness and times of blurriness. (I am no longer able to wear my contact lenses)

Thus far, I have been diagnosed with Fibromyalgia, Hemiplegic Migraines, Idiopathic Peripheral Neuropathy and Plantars Fasciitis. My dr's feel as though something elae is going on but have tested for eveything under the sun and everything is normal.

Any seggestions???


axxie - September 12

Welcome RLFortin:
Multiple sclerosis (MS) diagnosis is extremely difficult. The reasons for this include:
·More than 50 symptoms are linked to MS, and each person develops symptoms differently.
·Many of the symptoms mimic problems that occur with other diseases.
·There is no blood test for MS yet. ·Symptoms usually come and go. ·Many symptoms are vague and hard to quantify, such as fatigue, sexual dysfunction, depression and cognitive difficulties. These often get attributed to stress by general practitioners, and patients may never be referred to a neurologist.

There are two basic rules for diagnosing MS:
1.The person must have had at least two relapses (an episode where symptoms were present). These episodes must have been separated by at least one month.
2.There must be more than one lesion on the brain or spinal cord.

Multiple sclerosis means just that -- multiple (more than one), sclerosis (areas of damage; scarring or hardening).

If you have had an MRI, that indicates demyelination, Neurologic Exam; Evoked Potential Testing, and a spinal tap or a lumbar puncture. Then I would tend to believe the diagnostic. I would rather know for sure then just be unsure, and always asking is this possible. At least with a firm diagnostic, you can plan your life, accept it, and then go on from there. Yeah I know MS is no fun, and depending your age, etc, MS can really turn you for loop. But my way of thinking is, if I accept what I have, I become stronger, as I will score the internet and get as much information as possible and get on a treatment plan asap.
Diagnostic Categories
·Negative: Negative means negative. You don’t have MS. It is possible for the doctor to give this diagnosis only when another definite diagnosis is made that can account for your symptoms.
·Possible: This means that you may have symptoms that look like MS, but your tests are normal. No other diagnosis which accounts for the symptoms has been confirmed.
·Probable: Many people fall into this category when they are first seen by a neurologist. You may have symptoms that look like MS and have had two separate episodes separated by at least a month, but normal findings on an MRI. You could also have an MRI that showed only one lesion in your brain or spine. In this case, your doctor will probably recommend repeating the MRI after a certain period of time (for instance, 3 months) to see if any other lesions appear. Depending on how certain your doctor is that you really do have MS, he may recommend that you consider starting an early therapy.
·Definite: Your case fits the diagnostic criteria above. You have had at least two attacks, separated in time, plus at least two areas of demyelination. Believe it or not, many people are relieved to receive a definite diagnosis of MS.

Good luck to you my dear and I do hope you gain confidence with the diagnostic and you load up on self esteem and forge ahead.

Do continue to ask us questions, we love to hear about everyone, and we would love for you to continue to write to us.


llcsmom - September 22

Have you ever had a tilt table test to check for dysautonomia? I reviewed all of your symptoms, and you did mention amongst all the other symptoms..lightheadedness and dizziness.
2 types of dysautonomia: one where your blood pressure drops when you stand, and the other where your heart rate increases by more than 30 beats per minute after standing for 1-15 minutes. It is a problem with the autonomic nervous system--which controls so many functions of the body--blood pressure, heart rate, breathing, digestion,urination, etc. Blood tends to pool in the extremities and then there is slightly less blood flow to the brain. Just an idea to consider with your symptoms. Usually you need to be seen by a specialist--cardiologist or autonomic neurologist. Take Care!



You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
Ask a Question