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iam only 17..
13 Replies
x1xsarahx0x - September 9

iam a 17 year old girl. ive had a serious of problems for several years. most of them my family and doctors think are in my head. when i was about 11 i was dignosed with excessive sweating and put on meds. i continue to take them to this day i am also have frequant urination. then about 2 years ago i became tired all the time. i just wanted to sleep and never felt awake even after 15 hours of people i felt as if i could go back for more. i lost my social life could barely keep my after school job and got detentions and my parents called on a weekly bacis for falling asleep in school. i got a sleep study done last summer finally and i fell asleep in all the nap tests and was diganosed with long sleep syndrome. i was put on a medicine like ritalin. iam now up to 50mgs a day and they wont give me anymore. it works wayyyy better with out nothing but still isnt enough for me to feel alive and well. i also have zero sex drive for any guys or for my boyfriend of over a year when my hormones should be raging.and about 2 years ago my tailbone starting hurting really bad i was brought to the doctor again they said i had strept virus in it. i was put on antibotics which did nothing the pain is getting to an extreme today its the lowest part of back where my butt and back connect. when it flares up it shoots a sharp pins and needles down my right leg. in the past 6 months i started getting consipated and had dihreea and have constant stomach aches. i have a consist feeling of being bloated as well. they did every test, blood test, hormone test, in the book. i also had an endoscopy and colonostomy done. which showed only acid relux and it was determinded as bascailly ibs. i was given some stomach medication that doesnt help. iam convinced these are all my thing and that its fibrogymagia. but no one belives me and my doctor says no more tests. i feel like i am 80 years old and i am sick of it. what do i do?


Fantod - September 9

x1xsarahx0x - Welcome to the board.

Honestly, I am not sure if you have Fibromyalgia or not. You would have to see a rheumotologist to be diagnosed. To find a fibro-friendly rheumy, go online to the National Fibromyalgia Association website. There is a health care provider directory available for every state. If you can get your parents to take you, get copies of your medical records to save time and money.

Personally, I have a huge issue with the use of Ritalin. I would hope that the doctor discussed the possible long term effects which include a 50% increase in becoming addicted to alcohol or drugs. Every other option should have been explored first.

I think that an endocrinologist is also someone you should consider seeing. You can find one by calling your local hospital physician referral service and asking them for a recommendation.

It doesn't sound as if your parents have taken you to anyone other than your primary doctor except for having the sleep study done. I don't quite understand that either. Your current doctor is no closer to figuring out what is wrong. A fresh set of eyes is needed especially since you had/have a chronic infection in your tailbone.

You are going to have to figure out a way to get your parents to take you to see someone else. The current treatment is not working. I wish you better days ahead. Take care and God Bless.


axxie - September 9

Welcome x1xsarahx0x,

I'm sure on Fantod side on this one, the first thing is to get you to see an endocrinologist.
Funny you mentioned that at one point they only thing you wanted to do was sleep, I had this myself then I saw an endocrinologist and guess what my thyroid was not behaving. Within a few weeks of seing him and getting all my tests done, they found that my body wasn't producing it. Many primary doctor miss this one, because they only do a simple tests, the endocrinologist will do a more profound tests.

If you are 17 can you go book a specialist, or do you need to be referred. If you need to be referred, simply ask your primary doctor that you wan't to see one, since you are not getting any better and you want someone else's view on your health issues.

Good luck to you, hope you get to see one and do let us know how you are doing.


Stacey373 - September 9

Hi Sarah - you sound so frustrated and my heart goes out to you. Any kind of health problem is hard to deal with, especially when you are so very young. Here's a little information for you about Fibro...

The major symptoms are - Chronic pain for at least 3 months (most of us have dealt with it for YEARS before being diagnosed), pain all over your body (upper, lower, left & right side), extreme fatigue (having severe problems with sleeping at night), headaches/migraines, your body aching like you have the flu most of the time....and that's just some of the ones I can think of right now!

The doctor can give you the Tender Point test which is just putting slight pressure and having pain in most of the 18 "Tender Points". Another thing your doctor can do is check your vitamin D levels. Most Fibro sufferers are Vitamin D deficient and a simple blood test can be done for that. I'm assuming with all the blood tests you've had, they have checked your thyroid and also for other diseases or illnesses. Fibro can mimic a lot of other diseases (like lupus) so you need to have all that checked. Usually a doctor won't diagnose Fibro until EVERY thing else has been ruled out...Fibro is kind of a "last resort" diagnosis.

When you have tingly/numbness (pins and needles), it usually means that you have a pinched nerve. Especially when you are having pain in the lower back along with the shooting pain down your leg and the pins and needles feeling. That could either be a pinched nerve or a herniated disc or something like that. Have you had an MRI done on your lower back?

Are you on any kind of anti-depressant? I would talk to your doctor about getting on something. Dealing with any kind of chronic health problem can make anyone depressed. A good one for you to try is called Cymbalta. From what I understand it helps with depression, but it also helps with pain. I wasn't' able to take it because of the extreme side effects...but it's worth a try for you.

I don't know if you have Fibromyalgia or not. It doesn't sound like you have the one major symptom, which is chronic pain all over your body that happens for no apparent reason. But I'm not a doctor and I honestly don't know...that's just my opinion from dealing with Fibro for years.

Hopefully some of the other people on here that are more knowledgeable than me will reply to you and help you make sense out of what you are dealing with.

Take Care, Stacey :o)


Stacey373 - September 9

Sorry....I was typing my reply to you while everyone else was posting! You should really listen to Fantod...she definitely knows what she's talking about. Let us know how you are doing, Stacey :o)


axxie - September 9

You May Have Fibromyalgia or Chronic Fatigue Syndrome, Not Just a Thyroid Condition

If you have a thyroid condition, you are at higher risk of having two additional conditions: fibromyalgia, and chronic fatigue syndrome. In some cases, it may be difficult to know if you do have these additional conditions, because there is an overlap of symptoms with thyroid conditions. How do you know if you have Fibromyalgia or Chronic Fatigue Syndrome? Filling out the Chronic Fatigue Syndrome and Fibromyalgia Risks and Symptoms Checklist is your first step!


Noca - September 9

Ask your doctor about Nuvigil or Provigil instead of Ritalin for your fatigue.


x1xsarahx0x - September 10

wow. this is the first time i've ever been on one of these kind of websites and i am so happy with all the response all ready! thank you all! um i do have pain all over tho.. but it feels like my skin hurts almost like just the touch of it or like ive worked out really hard but hurts every where. especailly my upper arms, elbows, knees, thighs, neck, shoulders, butt, and lower back but its like where my butt and back connect so really low back pain. ya and the ritalin really doesnt work that great. so yes ill deff talk to my parents about that 50% thats huge! and ya my parents think its all in my head because every stupid test i get comes back normal and i am sick of it. so they really dont like calling the doctor. but theyve taken me to the stomach specialist and the sleep doctor and the stomach doctor told my mom they did enough testing. and i did get tested for lime diease, lupus, diabetes, got my thyroid checked, the only abornomal thing they sometimes find is i have low iron count. i would rather sleep then go out with my friends and i am not depressed i am just tired and sore all the time. its my senior year and all my friends say iam sleeping my life away i just wanna feel good and my boyfriend gets mad beacause i just want to sleep when i am with him.. and no one belives that i dont feel good..

anyways thank you everyone so far.. this is awsome..


x1xsarahx0x - September 10

oh and stacy i probely should have put in there i hurt all over whoops i thought i did lol!


Fantod - September 10

x1xsarahx0x - Based on the fact that you are sore all over, it is possible that you have Fibromyalgia (FMS). FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher level of pain which rapidly becomes a vicious circle.

You also may have "Allydonia" which is a sensitivity to pressure against the skin. If wearing a bra or any other tight object like a watchband or being touched hurts than it is also part of the equation. I have Allydonia and is can be very uncomfortable. Nothing can be done about it other than to be aware of how sensitive you are on any particular day and dressing accordingly.

Good luck with your parents. I hope that they will listen to you. The doctor is not God and they should always be challenged when, you, as a patient are not satisfied with treatment. Take care and let us know how you are doing.


Stacey373 - September 10

Hi Sarah - now that you've told us that you have those symptoms, you could have Fibro.
What I would do is print out all the information on Fibro...symptoms and associated conditions that you are also dealing with (like IBS).
Highlight EVERY single thing that you are dealing with...every symptom that applies to you. And then take all the information to your parents and then onto your doctor. Maybe if they see all these symptoms you are dealing with in one place, in black and white, they will actually pay attention to it.

I've spent MANY years with no one believing me. My family, friends, and all the doctors thought it was all in my head. When I finally learned about Fibromyalgia, I realized that I had all the symptoms. I printed out everything I just told you to do (I used WebMD but this site has alot of good info too) and took it to my doctor and MADE her look at it all. There were a lot of symptoms I had never mentioned to her because I didn't want her to think I was a hypochondriac...I was initially going to see her for constant headaches and migraines and thought I would deal with one problem at a time, instead of bombarding her with ALL of them. Which turned out to be a huge mistake! I now know if I had originally told her about everything....I may have been diagnosed sooner.

The best advice I can give you is DON'T take No for an answer. If you truly believe that there is something wrong with you...then keep talking to your parents and going to doctors. You may have to see several doctors until you finally find one that will actually listen to you. I literally spent years going to every doctor I could find (military doctors and doctors in 3 different states!) I gave up so many times because no one would believe me and I even second guessed myself and thought it WAS all in my head. Don't let this happen to you...the sooner you can find out what is wrong with you, the sooner you can start feeling better.

In the mean time, you should try taking vitamins. Vitamin D, B Complex, and Magnesium are the ones you should start with first. Do some research to see if you can benefit from any other vitamins. (talk to your parents first! But I'm sure they won't have a problem with you taking vitamins!)

That's all I can think of right now to tell you. It's too dang early to be up and thinking! LOL I hope this info helps you...My son is almost 17 years old and I can't imagine him having to go through all of this at such a young age...My heart goes out to you. Let us know what happens once you talk to your parents...Take Care, Stacey :o)


llcsmom - September 22

My daughter is 14 and sounds alot like you. She had every test under the sun for the last 4 years. The last test they ran finally showed an abnormailty--her heart rate goes from 70's to 150's when she stands up. I've posted about it elsewhere, so I will be brief. Take a look at the symptoms of dysautonomia, and specifically POTS (postural orthostatic tachycardia syndrome). I'm not saying you have this, but your symptoms at least are saying that you should maybe have a tilt table test through a cardiologist or neurologist who specializes in the autonomic nervous system. There is a sweat test they do along with the tilt table, since you mentioned increased sweating--my daughter has that, too. She was diagnosed with fibro at age 11.
Fibro, Chronic Fatigue, and Dysautonomia have so many of the same symptoms--you can see more on you tube at teenpotsyproductions or just look up POTS or dysautonomia. It is very commonly overlooked and mjisdiagnosed and it occurs the most in teenage females. It is fairly new so many doctors do not know much about it. There is alot of support out there on the internet, and here, too.
Take care!


x1xsarahx0x - September 23

.. i finally convinced my parents to make me an apointment novemember 2nd! so excited.. they think i am nuts but i literally have no soical life anymore.. i am exhuasted 24/7 my body aches i feel like i am 100.. i dont have the energy to even hang out with my boyfriend anymore and its really affecting us.. anyways.. so anyone have excessive sweating or have bad but pain? and thanks for the info on the POTS i am deffintaly goona look that up tonite. thank you. did her doctor find it werid that she had fibro at 11.. my regular doctor thinks i am ccrazy..


llcsmom - September 23

Hi Sarah,

If your mom wants to contact me and talk to me about my experience with my daughter's health problems, we could work that out somehow by email or something--let me know. I also have a nursing background, so I put in years of research when Lauren started having problems! Just tell her that your symptoms are very similar to Lauren's and she started, as I said at age 10 with weird symptoms. Some kids have POTS symptoms at very early ages, but it is mostly found in teenagers/young adults.
She was diagnosed by a pain specialist at the children's hospital by us. That doctor had other patients in the past that she diagnosed with fibro. But, yes, some people react like--what? she has fibromyalgia???
She also can sleep as much as you and not feel rested--common with fibro and POTS. Today her whole body feels like jello and very weak. Then there is the daily pain--I won't go into all of her symptoms here--there are too many--but wanted to tell you that she frequently has that really low back pain like you were saying you have.
She is on facebook,herself and with teen potsy and like I said look up teen potsy on a search engine. You can tell which one she is since I told you her name is Lauren--it's a group of 7 girls/teens from around the world who all have POTS--then look up the list of POTS symptoms--its huge and it includes alot of fibro/chronic fatigue symptoms. Some doctors feel that fibro and chronic fatigue ARE dysautonomias.
I will check back here or you can leave a message on the youtube teenpotsy site and I will see it there.



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