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I wonder...
2 Replies
SunsetDriver - December 5

...if I may have Fibro.

Ever since I was maybe 12 years old I would get pains in my arms and legs.
It was so debiliatating sometimes that my mother would keep me home from school and urgeme to keep my legs elevated all day. (which never worked but we didn't know what it was).

One day both my legs and my arms were hurting so bad that my mother took me to Urgent care to see what was wrong.
The doctor seemed to bush it off and told me that it was arthritis.

So I assumed for this long that that's what it was and I've come to terms with it.

Until I heard about fibromyalgia.

Once I brought it up to my doctor when I was pregnant and I was telling her about the pain in my legs and how often it happened.
I told her how the pain feels like everything under my knee cap is burning and the muscles in my calves feel as if I've been working out for hours.
And then I described to her the pain in my lower arms in the muscle would come and go unexplained.

Imagine my shock when she told me that it couldn't be arthritis because arthritis happenes in your joints only.
She didn't offer anything else on the subject so I let it go.

I am unsure as to whether I should see a doctor about it because it's not an everyday thing.

It happens every now and then and I'm almost guaranteed to suffer after a long walk in the mall or standing for a period of time.

A lot of things have been popping up as the years pass and I don't know if they have anything to do with Fibro but it concerns me so much because I don't know what is wrong with me.

Sometimes my mouth hurts and it feels like all of my teeth are cold and sensitive. (like right now)

I have dizzy spells almost daily.

And sometimes when my someone touches my legs or arms it hurts beyond what a normal touch should feel. It always feels as if it's bruised and lingers for a while. This isn't constant either.

Sorry this was so long, haha.

Do I have anything to worry about if these things aren't constantly happening?

Thank you so much for those of you who decide to read this and help me out :)
It's much appreciated.

(btw I'm NEW. HI!!)


Fantod - December 5

Hello SunsetDriver and welcome to the forum.

I would suggest that you make an appointment with a rheumotologist to get to the bottom of your health issues. You can call your local hospital and ask the physician referral service for a recommendation to a rheumotologist with an interest in Fibromyalgia (FMS). Not all rheumy's are created equal when it comes to treating FMS. Some doctors are not up to date on the current treatment protocol, too overworked or lazy to recognize it when they see it or flat out think it is a figment of our collective imaginations.
FMS is recognised by the National Arithtis Foundation and the Center for Disease Control.

You can also go online to the National Fibromyalgia Association website and register. Then you can see list of fibro-friendly health care professionals in your area.

The problem that you describe in regards to touch is called "Allydonia." It is common in people with FMS. I have it myself and it can be extremely annoying at times.

I had what were called "growing pains" as a kid all of the time. My nutritionist says that was actually FMS in its early stages. I did not develop full blown FMS until a disc failed in my back several years ago. The mechanism that causes FMS is not understood. There is no cure but it can be managed with prescribed medication. OTC remedies do not address the pain FMS causes. There is no point in taking fist fulls of Tylenol. You will only damage your liver and the pain will still be present.

If you have had any recent bloodwork, get copies and take them with you to save time and expense. There are other things that can mimic FMS like a thyroid problem so it is best to get to the bottom of this quickly. The longer any chronic pain cycle goes on the harder it is to stop or manage. You should also be tested for vitamin D deficiency which can cause widespread pain. This can be done with bloodwork. I'd also consider being tested for a gluten sensitivity. The most accurate test is done using a stool sample. It is possible to be sensitive to gluten and not have full blown celiac disease. A problem with glluten will also cause pain.

Good luck and let us know the outcome. Take care.


FibroDale - December 5

I would suggest you go to a rheumotologist also and be checked. I had FMS symptoms as a child that no one recognized...I was just labeled as lazy and cold natured and never questioned it. It has only been recently that I realized it was the fatigue and raynauds in the beginning stages.



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