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I think I have Fibro...Newbie! Help
1 Replies
Comedygirl - October 27

All my Fibro symptoms started 2 years ago when I went to my Gynecologist about menstrual problems. He suggested I got the Lupron depot shot because I am over weight. I did the Lupron shot and things were ok till I came off the shot. When on Lupron you are basically in full blown menopause. Being off the shot my symptoms of Fibro are horrible. I have severe pain in my legs, back, arms and pelvic area. I used to work for Wal Mart and when I would get off work and go to get in my car I would scream in pain with not being able to bend and sit in my car. Then I would just hurt all over my body with a pain that was just so irritating I couldn't stand it. I am suffering now with more pains. Sometimes the pain in my legs is so bad that I cant handle pants being on my legs to sleep. I also experience heat rising from my legs after just walking into another room. Is that normal? It feels like I did this really hard leg workout with the heat. I also wake up with headaches that go all day and they are just on the right side of my body. My Doctor thinks I need to see a psychologist and that just hurts my feelings. Where do I go to get this taken care of to find out what I do have?


Fantod - October 27

Comedygirl - Welcome to the board!

Based on your description, it is possible that you have Fibromyalgia (FMS). But, there are other things that mimic it so you need to see a rheumotologist for a firm diagnosis.

I'm going to start with the basics so you have a better understanding about what may be going on with your body.

FMS is a disorder of the central nervous system that causes widespread, chronic pain. It is recognised by the National Arthitis Foundation and the Center for Disease Control. There is no cure but it can be managed using prescribed medication. Only certain classes of prescribed medication work for FMS. OTC remedies do not.

The primary doctor to treat FMS is a rheumotologist. You can also use a pain management specialist (I have both). If you need a fibro-friendly rheumy there are a couple of options. Call your local hospital physician referral service and ask them for a rheumotologist and/or a pain specialist with an interest in FMS. You can also go to the National Fibromyalgia Association website and register. Then you can see a list of fibro-friendly health care professionals in your area. If you have recent bloodwork or any other tests, get copies and take them with you to the appointment.

There are still a lot of doctors out there that think FMS is a figment of our collective imaginations. It sounds like your current doctor may be one of them. We have all had the misfortune to run into one or more of them over time. Take some time to read all of the information in the blue boxes on the lefthand side of this page. Knowledge is power. You need to be your own best advocate when it comes to managing and understanding FMs and the "perks" that come with it.

There are now three main prescribed medications used to treat FMS. Cymbalata is a popular choice as it addresses both the chronic pain and depression that usually accompanies FMS. Lyrica is advertised on TV all of the time. The most common complaint seems to be rapid weight gain. The newest medication in the FMS arsenal is Savella. It has been used in Europe for decades and was approved for use in the US this year. I am not aware of any major side effects associated with Savella. Most rheumotologists seem to have two week trial packs of Savella for patients to try.

It does take time and a lot of tinkering to find the right combination of medication and dose to be effective. All of us are affected by different symptoms so there is not a single drug regimen that will work for everyone across the board. You would need to allow at least two weeks and possibly a month to see if any prescribed medication is going to be effective.

You probably exhausted too. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles need deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. Amitriptyline is usually prescribed for the sleep issues associated with FMS. Rest is very important when managing FMS. You must respect your limits or the payback is hell.

You will need to watch your diet as some foods and additives will increase your pain levels. Deep fried foods and lunchmeat (nitrates) will probably make you feel worse. No articial sweetners (including Splenda) either. If you need a sweetner, use something like Truvia which is made from the Stevia plant. You can find it in the grocery store right next to Sweet and Low etc. Try to eat smaller, high protein meals throughout the day to keep your blood sugar from crashing.

I think I have covered most of the issues. The sooner you see a rheumotologist the better. The longer a chronic pain cycle goes on the harder it is to stop or manage. Take care and let us know if there is anything else we can do to help.



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