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i guess im not alone :]
6 Replies
Xxinside.jokexX - December 9

hey im new here
im only 17 years old but my fam and friends call me old lady lol
im ALWAYS cmplaining of some sort of pain or fatigue i never feel up for anything and most of the time i just stay at home bcuz i don't have the strength that my friends have! i feel so left out!
in my house my mom at times tells me that i have no self estem bcuz im always complaining about some kind of pain at times i feel like she just dosen't belive me its horrible! and when the weather is bad like when is cold my bones and knees hurt like crazy!

i thought i was alone but one of my aunt has it and
one day i was talking with her and i could relate to everything she had it was cool to find someone like me Lol so how do u guys go about ur day when its really bad and what medicine do you people take?


Fantod - December 9

You need to see a rheumotologist for a firm diagnosis of fibromyalgia (FMS). There are a number of things that can mimic FMS such as a throid problem. You can get a referral in your area to a fibro friendly rheumotologist by going to the National Fibromyalgia Association website. Some of us also have a pain specialist to help manage our sometimes complex health issues.

Fibromyalgia has a genetic component so it is possible that you have it as it runs in some families. Your mother should be very concerned about this situation and get you in to see someone.

Fibromyalgia is treated using certain classes of medication that must be prescribed. They are usually low doses of antidepressants (like Cymbalta) which help with pain. Other medication is used to help with sleep issues (like Amitriptyline). OTC medication does not work with FMS.

FMS is a short circuit of the central nervous system which causes the pain receptors to be stuck in the on position. The mechanism that causes this is not understood. FMS is recognized by the Center for Disease Control and the National Arthitis Foundation. Take some time to read the information about FMS on the lefthand side of this page.

We go about our days the best way we know how. FMS requires quite a bit of additional rest. It is very important to listen to what your body is telling you and respect rather than shoot the messenger. One day of reckless abandon may result in several days or weeks of higher pain levels and fatigue. Everything has to be broken down into smaller increments, done differently or not at all.

Most of us were extremely dependable, driven people before FMS. Now we must have the grace to say "no" with regularity, accept that plans either cannot be made or will have to be cancelled and find new interests to take the place of the ones we can no longer do. Nothing in life is fair and FMS is a perfect example. My motto - when you are going through hell, keep going! I hope my comments were helpful to you in some way. Take care.


Sonja44 - December 9

Well said Fantod. Another quote I say to myself is I may be down but I'm not out....or "It is as it is."

Having FM is like following the AA motto...One Day at a Time. With FM...sometimes it's one hour at a time. It's a "free card" to treat yourself with great respect and care.


solanadelfina - December 10

Welcome aboard. I know what you mean by feeling like an 'old lady', between this and the silver hair coming in. (Silver, mind you, not gray. :) ) It's also wonderful that you found a confidante in your aunt.

It can be tough to be younger and not having the vitality that we're 'supposed' to have, or as filled a social schedule as we'd like. The most important lesson I'm still trying to teach myself is not to blame yourself. None of us chose this path, but we can choose how to respond to it. The rules in our game are going to be a little different.

On the worst days, humor can be one of the best medicines. A good book, a funny episode of a favorite TV show, or videogames or comics or whatever you prefer. Something you enjoy so much that it takes your mind off of how you feel can be enormously helpful.

If you're religious, prayer can also be powerful. If not, even just going for a walk somewhere, and feeling a part of something that's bigger than us can lighten our mental load tremendously.

And sometimes, there's just nothing like a good rant to clean out the system like a dose of Epsom salts. ;) Good luck.


from-fibro-2-college - December 11

Hey Inside.Joke, you're not alone at all. I'm not as young as you, so it's a bit difficult to relate to your feelings at your age, but the pain is the same and very hard to endure at times. I thank God that I'm older and in a place where it's much easier to except. You are an inspiration believe it or not because I wonder if I could have endured this at age 17. I was very active at that age so I'm sure it would have been much harder on me then rather than now. I can tell you this much, you do have to limit yourself in your activities and plenty of rest will help as far as the pain. As for the other symptons you may or may not be having, well you just have to figure out what works for you. My doctor has placed me on the drug Lyrica, which does relieve some of the pain, but like most drugs, your body will become used to the dosage prescribed and often the dosage has to be raised or the medication has to be changed all together. Hang in there and try not to become too discouraged. Educating your family and friends about FM might be the key to gaining their understanding. Do make sure that your condition is diagnosed correctly for there are other conditions that present the some of the same symptons as FM. God bless


awade36 - December 14

haha no you're not alone :) its a nice feeling huh?
i've had fibro since my sophomore year in high school when i was 16, and i'm 18 now and going to college, even living in the dorms!! the best thing you can really try to do is know your body and know what you can and can't do, because even though it sucks majorly to watch all your friends go out without you and have a good time and not really understand why youre sick all the time, it gets to be so you almost WANT to stay home because you know that itll make you feel better.

i've had my good days and my bad days about this sort of thing, like some weekends i can go out and some i can't and usually its only for one night a week anyway, but eventually your life just falls into a routine and you don't notice it as much anymore.

i'm really sorry that you have to go through with this, and i think the most important thing you can do for yourself is to not let anyone tell you how you feel. not your friends, not your parents, not your doctor, because they CAN'T know what it feels like. even people with fibro all have different symptoms.
recently i started going to see a psychiatrist whos wife has fibro, and the only questions he ever asks of me is whether my medicine is working and what he needs to do for me, because he knows that i know my body best. by the way, i'm taking cymbalta, and it really worked wonders for me.

i feel like im ranting. sorry haha. but just remember to try and not dwell on it too much, because as much as it sucks, its only gonna get worse if youre stuck on how bad you feel all the time.

and on bad days, talk it out with someone and take the day to yourself. do EXACTLY what you want to do.

i hope this helps. i've never talked to other people with fibro, and its kind of weird. like i was isolated for so long and now theres finally someone who knows what it feels like

good luck to you :)


Jeanwe8 - December 16

I can relate to your comments about pain and cold weather. I live in Wisconsin and we've had some REALLY cold weather lately. It also makes my joints and muscles ache more than they normally would.

If I'm having a bad (pain) day, I try to stay indoors as much as possible. I've had days when the pain is so bad I have to stay home from work.

It is hard to convince people who don't have fibro, just how much it hurts. If they could be in our shoes for a few minutes; I think it would show them that the pain isn't "all in our head".

I'm fortunate to have a doctor (she isn't a rheumatologist) as my primary physician. She understands the type of pain I have and has prescribed Oxycontin 5 mgs., three times a day. I can take it 4 times a day if the pain is really bad. I know some people say that those type of drugs make them sleepy or kind of "out of it";
however they've worked well for me.

I'm not sure if a doctor would prescribe that type of drug for you, since you mentioned you're 17. But there are other medications that could help with your pain.

It's important to find a doctor who has a good knowledge of fibromyalgia and how to treat the pain. That's the first step toward getting a medication that's right for you and the type of pain you have.



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