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How do I get a correct diagnosis?
3 Replies
Arienette213 - April 19

Hi, my name is Stephie and I'm a 25 year old woman suffering from many, many symptoms of this illness. I've been sick for years but have never even heard of fibromyalgia until a couple of months ago when I met someone with the condition. She and I are exactly alike. I didn't want to rush and self-diagnosis, as I was recently diagnosed with colitis and had just began treatment for that. But the treatment has only taken away some of my symptoms. I still get headaches, nausea, dizziness, lightheaded, and have pain all over m body *every single day of my life.* I haven't been able to work or continue my education since December due to the suffering I experience constantly. Occasionaly, I have a good day where my symptoms are minimal, but that happens VERY occasionally and I never have a day without pain or feeling ill.

The worst part is, except for my new friend, I'm in this completely alone. My primary are physician thinks I'm a hypochondriac and so do my parents. I live with my boyfriend and he is frustrated and unhappy. I'm a burden on everyone and I feel worse about myself everyday.

Like I said before, I hate to self-diagnose, but I have almost every single symptom listed on this site and others. My friend who is diagnosed with it is exactly like me. I'm so scared, alone, sad and sick and have no idea what to do. Please help... thanks.



JJ1 - April 20

A rheumatologist can help determine if you have fibromyalgia. If you don't know of one in your area, see if there is a fibromyalgia support group where you live and maybe they could recommend some doctors to you.


Iori - April 20

hi Stephanie. I completely understand how you are feeling. I was also considered a hypochondriac by my family until the Dr put a "name" on all these awful symptoms. its hard for others to understand how bad we feel & what we go through... it took a long time for me too. almost everyone goes through this uncertainty & limbo period you are describing, where you feel awful for so long & no one can figure out what is wrong with you (if they believe you at all). I read out here once that the average time it takes to get a diagnosis is over 5 yrs! how crazy is that? I have also had the dizzy-lightheaded feelings & chronic daily pains for years. One thing that helped me so much is just knowing that I was not alone & that there were other people out there who knew what I was going thru... that this was not some deep dark mysterious thing that only I was being struck with. ask your doctor if he knows what fibro is. if he doesn't then ask for a referral to a someone else who can diagnose & actually help you. I understand what its like to feel like you are a pest or nuissance, but this is YOUR health & your body. screw the doctor! if he will not help or acknowledge your suffering please go & see someone else! after many suggestions on this forum & other places I think that I have started to unravel why this thing even happened to me. did anything really stressful happen to you before you got sick? I now believe that this is a stress-related illness. read what you can, educate yourself, be your own advocate.... if there is one thing I have learned its that our health is in our own hands. no one else is looking out for you. Take good care.... please remember that you are not alone. get the help you need & deserve :) xo - Lori


Fantod - April 20

Hi Stephie - I am sorry to hear that you are feeling so terrible. Please call your local hospital for a referral to a rhuemotologist that treats Fibromyalgia. That would be the way to find out for sure if that is what is making you so ill. You could also ask if they are aware of any support groups for fibromyalgia in your area. I'd think about finding another primary physician as well. There are a lot of doctors out there who still do not recognize fibromyalgia as an illness leaving their patients to suffer needlessly. Your parents reaction is not uncommon under the circumstances. A lot of us go through that with friends, spouses and family. If you are not bleeding or throwing up than you can't possibly feel that bad all of the time. Getting a firm diagnosis would be the first step in being able to tell your family why you are ill all of the time. Best of luck to you and let us know how you do.



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