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lighttrc - October 13

im starting to feel helpless and sometimes like its all in my head and like no one really gets it..i m 37years old..ive been having weakness in my legs ..they give out on me sometimes..and feel so heavy and puffed up..and my back pain is unbelieveable at effects my life so much..i cannt sleep ..and it seems to be worst in the mornings are when i first get up from sitting down..almost like i need a walker at times to walk..i do sufffer from depression,under active thyroid,and degenetive disk diease in my back, i have had x-rays,mris, cat scans and been to many drs...and no one seems to knew whats going on..they keep adding things to the list ...but only hand my more pain pills...which i hate taking...cause then you sleep your life away..i knew somethings wrong..i have had to cut my hours back at you think i could have this...please help...


Stacey373 - October 13

Hi Lighttrc - Since you have degenerative disc disease, I'm not sure you actually have Fibro. It's totally possible to have both, but my first thought was the pain you are having is caused by the disc/back problem.

The main symptom for Fibro is chronic pain for at least 3 months in all 4 quadrants of the body. You don't have to have pain all over at the same time, but you do have to have it in the upper, lower, left, and right sides of the body. For example - I have pain and problems with my neck, shoulders, arms, and also in my lower back, legs, and feet. (upper, lower, right & left)

Fibro does cause severe sleeping problems which will make the pain worse in your body. From what I understand, Fibro interrupts the deep sleep cycle by sending short bursts of energy to your brain. Therefore, you don't ever get the sleep your body and muscles need to repair itself at night.

Not many people (or doctors) understand or even believe in this illness. If you do have alot of the symptoms for Fibro and you really think you could have should see a Rheumatologist. Since Fibro mimics ALOT of other diseases (lupus, MS, arthritis, etc) and there is no actual test to confirm Fibro, most doctors will rule EVERY thing else out first. It seems like Fibro is more like a "last resort" diagnosis.

The doctor can give you what is called the "Tender Point" test. That's where they put slight pressure, and you have pain, in most of the 18 tender points on your body. The only other thing you can have done is a blood test to check your Vitamin D levels. Most Fibro sufferers are Vitamin D deficient.

If you think you have this, you absolutely need to see a doctor ASAP! There is no cure or "Magic Pill" to make it all better....but you need the necessary medications to deal with the symptoms. The longer you wait to take the meds, the worse you will feel. I learned a while back that you can't fight this illness. The sooner you get a diagnosis, the faster you can start understanding how to deal with this and hopefully be able to get some of the symptoms more manageable.

I know how it feels to not have anyone believe you or for your family, friends, and doctors to think this is all in your head. I spent MANY years trying to get someone to listen to me and figure out what the heck was wrong with me. Don't give up! If one doctor doesn't help you, find a new one that will.

And finally, Fibro not only affects you physically but also mentally. One of the most important medications I think Fibro sufferers need is an anti-depressant. Cymbalta is a good one to start with because it also helps with the pain associated with Fibro. If that doesn't work then try a new type of anti-depressant until you find one that works. (I couldn't take Cymbalta so I take Lexapro)

I want you to know that you're not alone. Everyone on this forum understands how you are feeling and we are all hear to listen, give advice, or just be a friend. Let me know how you are doing....Take Care, Stacey :o)



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