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2 Replies
caren - April 10

hi all can any body give me sum advice on this ive been geting breathless also is it possible 2 get pain where the kidney is ive had 4 utis this mounth would appreciate sum advice


larry - April 10

Hi Caren, You sound exactly like the fibro patients that I have met at the fibro and fatigue centers. It has been determined that most fibro patients have underlying, undiagnosed infections result ing in re-occuring UTI's, sinus infections, etc. Here is a cut 'n paste from the website "" I understand that you are in Canada (Amber Rose??) and there are no F&F centers there- however if you can go to an infectious disease doctor you can address the 4th component of the F&F center program. Here is the info on what you can ask the doctor to test you for (From the F&F website)......Component Four: Treat the infectious components
There are multiple infections that either may be the cause of CFIDS/FM or contribute to the dysfunction. Because of the immune dysfunctions, there is often more than one infection that must be addressed. Potential pathogens include a variety of viruses such as Epstein Barr (EBV), Cytomegalovirus (CMV), Human Herpes Virus 6 (HHV6), Enteroviruses, such as Coxsackie, Echo, and Stealth virus. Bacterial infections include intracellular organisms such as Mycoplasma, Chlamydia pneumonia, Borrelia Burgdorferi (Lyme Disease) and Ehrlichia. A number of yeasts such as Candida and parasites must also be evaluated. Infections with many of the above organisms will also further suppress the immunity, often resulting in further infections with other organisms. Thus, many organisms must be evaluated and treated along with an assessment and treatment of the immune system. If a poor immune system is not addressed, successful eradication of the organisms is not likely, even with the most potent treatments. Treatment may be administered with oral medications or via an intravenous route. A combination of IV and oral medication in conjunction with immune modulation is extremely powerful. Good luck and happy healing.


larry - April 10

Hey again Caren- here is more info that could help you. This is also from the F&F website. "Effective treatment, with 80 to 90 percent of individuals achieving significant clinical benefits, can be achieved by simultaneously treating the above problems that an individual is found to have. The mix of treatments needed varies from patient to patient. There are some abnormalities that are common. For instance, close to 100% of individuals with these syndromes have low thyroid. This is, however, usually not picked up on the standard blood tests because the TSH is not elevated in these individuals because of the pituitary dysfunction. Many of these individuals will also have high levels of the anti-thyroid reverse T3, which is usually not measured on standard blood tests. In addition, the majority of individuals can also have a thyroid receptor resistance that is not detected on the blood tests. Consequently, thyroid treatment, especially with timed release T3 is effective for many patients. T4 preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions. " ----------There is more info on what hormones to be checked for at the F&F website---""www.fibroa"



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