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Gabapentin ? Need help please
4 Replies
Duntymolly - November 7

I have been to the neurologist, ENT, Rheumatologist and my primary care doc- (the hospital too) for the past year-- been nauseated and dizzy-- vertigo big time. Has anyone else had this issue with gabapentin? This all started when I began gabapentin.
Also, I was wondering what everyone else who is out of pain takes?
I have had muscle twitching, pain and anxiety and gabapentin may help somewhat with these issues- but think I need off it asap. Thank you so much!


axxie - November 7

Stop taking this crap, it doesn't help, and don't let the doctors talk to you into taking any Cymbalta or Lyrica they don't help for the majority of us. Amitriptyline help taken at bedtime will make you relax, and that is needed with FMS. There are other drugs that may help, that your doctor may want to try on you.


axxie - November 7

water therapy helps, walks, less stress in your life the better,


January - November 16

Gabapentin. Lovely stuff. Yes, dizziness, nausea, muscle twitching, pain and anxiety are side effects which SHOULD BE REPORTED TO YOUR DOCTOR.

Did not see anywhere in the information I accessed that Gabapentin is intended to treat fibromyalgia - but it is certainly prescribed a lot for it. Here's the information on side effects from a great site - just google: drugs (dot)com, and search for the drug in question. There's a lot more information there than what I have quoted here. You might want to print this information out and take it to your doctor - most doctors only know what the drug reps tell them, and they tend to downplay any "negative" issues with the drugs they are selling.

"Get emergency medical help if you have any of these signs of an allergic reaction to gabapentin: hives; fever; swollen glands; painful sores in or around your eyes or mouth; difficulty breathing; swelling of your face, lips, tongue, or throat.
Report any new or worsening symptoms to your doctor, such as: mood or behavior changes, anxiety, depression, or if you feel agitated, hostile, restless, hyperactive (mentally or physically), or have thoughts about suicide or hurting yourself.
Call your doctor at once if you have:
• increased seizures;
• fever, swollen glands, body aches, flu symptoms;
• skin rash, easy bruising or bleeding, severe tingling, numbness, PAIN, muscle weakness;
• upper stomach pain, loss of appetite, dark urine, jaundice (yellowing of the skin or eyes);
• chest pain, irregular heart rhythm, feeling short of breath;
• confusion, NAUSEA and vomiting, swelling, rapid weight gain, urinating less than usual or not at all;
• new or worsening cough, fever, trouble breathing;
• rapid back and forth movement of your eyes; or
• severe skin reaction -- fever, sore throat, swelling in your face or tongue, burning in your eyes, skin pain, followed by a red or purple skin rash that spreads (especially in the face or upper body) and causes blistering and peeling.
Check with your doctor immediately if any of the following side effects occur while taking gabapentin:
More common
• Clumsiness or unsteadiness
• continuous, uncontrolled, back-and-forth, or rolling eye movements
More common in children
• Aggressive behavior or other behavior problems
• Anxiety
• concentration problems and change in school performance
• crying

• depression
• fals
sense of well-being
• hyperactivity or increase in body movements
• rapidly changing moods
• reacting too quickly, too emotional, or overreacting
• restles
• suspiciousness
or distrustLess common
• Black, tarry stools
• chest pain
• chills
• cough
• depression, irritability, or other mood or mental changes
• fever
• loss of memory
• pain or swelling in the arms or legs
• painful or difficult urination
• shortness of breath
• sore throat
• sores, ulcers, or white spots on the lips or in the mouth
• swollen glands
• unusual bleeding or bruising
• unusual tiredness or weakness
• Incidence not known
• Abdominal or stomach pain
• blistering, peeling, or loosening of the skin
• clay-colored stools
• coma
• confusi
• convulsions
• dark
• decreased urine output
• diarrhea
• dizziness
• fast or irregular heartbeat
• headache
• increased thirst
• itching
• joint pain
• large, hive-like swelling on the face, eyelids, lips, tongue, throat, hands, legs, feet, or sex organs
• loss of appetite
• muscle ache or pain
• nausea
• red skin lesions, often with a purple center
• red, irritated eyes
• skin rash
• unpleasant breath odor
• vomiting of blood
• yellow eyes or skin

Some side effects of gabapentin may occur that usually do not need medical attention. These side effects may go away during treatment as your body adjusts to the medicine. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Check with your health care professional if any of the following side effects continue or are bothersome or if you have any questions about them:
• More common
• Blurred vision
• cold or flu-like symptoms
• delusions
• de
• hoarseness
• lac
or loss of strength
• lower back or side pain
• swelling of the hands, feet, or lower legs
• trembling or shaking

Less common or rare
• Accidental injury
• appetite increased
• back pain
• bloated or full feeling
• body aches or pain
• burning, dry, or itching eyes
• change in vision
• change in walking and balance
• clumsiness or unsteadiness
• congestion

• constipation
• cough
producing mucus
• decrease in sexual desire or ability
• dementia
• difficulty with breathing
• dryness of the mouth or throat
• earache
• excess air or gas in the stomach or intestines
• excessive tearing
• eye discharge
• feeling faint, dizzy, or lightheadedness
• feeling of warmth or heat
• flushed, dry skin
• flushing or redness of the skin, especially on the face and neck
• frequent urination
• fruit-like breath odor
• impaired vision
• incoordination
• increased hunger
• increased sensitivity to pain
• increased sensitivity to touch
• increased thirst
• indigestion
• low blood pressure
• nervousness
• noise in the ears
• pain, redness, rash, swelling, or bleeding where the skin is rubbed off
• passing gas
• redness or swelling in the ear
• redness, pain, swelling of the eye, eyelid, or inner lining of the eyelid
• runny nose
• sneezing
• sweating
• tender, swollen glands in the neck
• tightness in the chest
• tingling in the hands and feet
• troubled breathing
• trouble with sleeping
• trouble with swallowing
• trouble with thinking
• twitching
• unexplained weight loss
• voice changes
• vomiting
• weakness or loss of strength
• weight gain
• wheezing

Cheers! Learn about fibromyalgia and TAKE CARE OF YOURSELF - do not depend on doctors to know what they are prescribing. It is best if you check out any drugs yourself BEFORE you start them - many fibro drugs are highly addictive (hard to stop once you start) - and come with nasty side effects. YOU have to decide if you want to accept the risk for any drug you take versus the reward you might get.


axxie - November 26

The Guaifenesin Protocol
Fibromyalgia is a legitimate, common entity. It is a cyclic and progressive disease which affects millions of patients, primarily women, regardless of race. Manifested by multiple symptoms that may initially last only a few days, it eventually progresses to affect multiple areas and bodily systems until patients simply cycle from bad to worse. At present, there are no diagnostic laboratory tests for fibromyalgia. Our recent research paper reported several abnormal cytokines that change during the course of our treatment.1

Patients are often referred from one doctor to another, and told that they have chronic fatigue, systemic candidiasis, myofascial pain, irritable bowel or vulvar pain syndrome. Too often, physician and patient focus on symptoms and fail to perceive the much larger problem. These dead-end diagnoses result in the treatment of symptoms which is only partially effective and at the same time ignores the underlying cause and the disease that continues to worsen over time.

The American College of Rheumatology recommends searching for tender points at eighteen predetermined sites on the body to establish a diagnosis of fibromyalgia. However some patients simply have higher pain thresholds so while they complain of body aches or stiffness, they focus mainly on fatigue and cognitive impairments. These so-called Chronic Fatigue Syndrome patients suffer from the same metabolic abnormality. Since pain perception varies greatly, we urge physicians to seek objective evidence instead of the purely subjective response to variably tender points. The confirmation of fibromyalgia is far more secure when using our method of palpation that we call mapping (see below).

Fibromyalgia has no set symptoms and many combinations from the following list are interwoven:

Central Nervous System: Fatigue, irritability, nervousness, depression, apathy, listlessness, impaired memory and concentration, anxieties and suicidal thoughts. Insomnia and frequent awakening due to pain result in non restorative sleep.
Musculoskeletal: Pain and generalized morning stiffness could arise from muscles, tendons, ligaments and fascia of the shoulders, neck, entire back, hips, thighs, knees, ankles, feet, inner and outer elbows, wrists, fingers, and chest. Injured or old operative sites are commonly affected. Though fibromyalgia is described as a “non-articular” disease many know better: Joint pains with or without swelling, redness and heat are frequent. The litany includes foot or calf cramps, numbness and tingling of the face or extremities.
Irritable Bowel: (Often called leaky gut, spastic colon or mucous colitis). Symptoms include nausea (often brief, repetitive waves), indigestion, gas, bloating, pain, cramps, constipation alternating with diarrhea and sometimes mucous stools.
Genitourinary: Common are pungent urine, frequent urination, bladder spasms, burning urination (dysuria) with or without repeated bladder infections and interstitial cystitis. Vulvodynia (vulvar pain syndrome) includes vaginal spasms, irritation of the vaginal lips (vulvitis) or opening (vestibulitis) and painful intercourse (dyspareunia). It typically mimics a yeast infection but without the cottage-cheese discharge. Intense PMS and uterine cramping are common. Symptoms of fibromyalgia are worse premenstrual.
Dermatological: Various rashes may appear with or without itching: Hives, red blotches, itchy bumps or blisters, eczema, seborrheic or neurodermatitis, and rosacea. Nails are often brittle and of poor quality and hair falls out prematurely. Strange sensations are common such as cold, heat (especially palms, soles and thighs), crawling, electric vibrations, prickling, super-sensitivity to touch, and flushing that is sometimes accompanied by sweating.
Head, Eye, Ear, Nose, and Throat: Headaches (migraines), dizziness, vertigo (spinning) or imbalance; dry eyes as well as itching and burning with or without sticky or crusty discharge upon awakening; blurred vision; nasal congestion and post-nasal drip; painful, burning tongue, mouth and abnormal tastes (scalded, bad or metallic); ringing in the ears (tinnitus) or lower-pitched sounds; ear and eyeball pain; sensitivity to light, sounds and odors.
Miscellaneous Symptoms: Weight gain; low grade fever; lowered immunity to infections; morning eyelid and hand swelling from fluid retention that gravitates to the lower extremities by evening where it stretches tissues causing the restless leg syndrome.
Hypoglycemia Syndrome: This is a separate entity. Thirty percent of female and twenty percent of male fibromyalgics suffer both conditions (fibroglycemia). Symptoms greatly overlap those of fibromyalgia, but sugar craving accompanied by tremors, sweating, anxiety, panic attacks, heart pounding, faintness, and frontal headaches, especially if hunger induced, are solid clues to the diagnosis. Hypoglycemics must follow a prescribed diet or recovery will not be complete even with the reversal of fibromyalgia. (See Hypoglycemia for more information.)
Trauma, infection or stress can aggravate or tip susceptible individuals into fibromyalgia but are not the basic causes. It is generally accepted now as an inherited disease and preliminary results from our research team at City of Hope support this belief. We have treated family members that spanned three generations including four two-year-olds as well as patients who became symptomatic only in their seventies. This age spread strongly suggests a multi-genetic disease in various combinations. Boys and girls suffer equally before puberty but females predominate (85% to 15%) thereafter. Forty percent of our patients recall "growing pains" in childhood that disappeared during the true growth spurt of puberty. Untreated fibromyalgia ultimately leads to a "tartar of joints" that we recognize as osteoarthritis.

Over forty years ago, one of my patients taking gout medication observed he could peel tartar (calcium phosphate) off his teeth with his fingernail. This observation indirectly led me to study an unrecognized systemic problem reflected by deposits from the disturbed saliva. We now postulate that a defective metabolism, possibly a kidney enzyme, forces a minuscule retention of phosphate, which gradually accumulates to detrimental levels in many tissues. The excess results in inadequate energy formation (ATP), cellular fatigue and other malfunctions that explain all the symptoms of fibromyalgia. Our physicians paper for interested professionals defends that theory.

We no longer prescribe gout drugs (uricosurics). We now use guaifenesin for fibromyalgia because it has no side effects and is even safe for children. It is marketed for respiratory mucus problems and is available without prescription in various strengths, though some brands may not be effective for fibromyalgia. Currently, we can only advocate three products: the long-acting 600 mg Mucinex also sold by Pro Health under their label, and a 600 mg. tablet compounded by Marina del Rey Pharmacy. Capsules and 400 mg. tablets may be added to boost the basic dose as short acting compounds.
We begin patients with 300 milligrams of long acting guaifenesin twice a day for one week. Feeling distinctly worse suggests adequate dosage and patients remain on that amount. This suffices for only 20 percent of patients; if symptoms do not worsen, we increase to 600 mg. twice daily. Reversal begins for 80 percent of patients at one of these two levels leaving 20 percent who will need more.

During reversal, symptoms are intensified and new ones may be experienced. These are not side effects, but signal that reversal is underway. Better hours eventually appear and then cluster into days and finally weeks. The palpable lumps and bumps soften, fragment and gradually clear. Recovery is more rapid than the time it took to develop the illness. Even genetically-slower responders, may clear one year of metabolic debris every few months. Newer lesions clear first and the oldest ones last.

The original description of fibromyalgia as “rheumatism with hard and tender places” has certainly been forgotten. Tender-point examination limited to a few preordained parts of the body has less value than our totally objective body mapping. We use our finger pads as though we were trying to iron out underlying tissue and thereby find the swollen places within muscles, tendons and ligaments. We record their location, size and degree of hardness on a body caricature that becomes a baseline for future comparisons. Unless swollen, the purely subjective tender spots are excluded in mapping. Subsequent examinations and patient inputs readily determine drug dosages and sequential disease regression. We hide previous maps until we complete the examination and only then compare them to confirm progress. The most important site for confirming the diagnosis and assuring future success is the left thigh. The outside of the quadriceps muscle (Vastus lateralis) and the front part (Rectus femoris) are involved in 100% of adults and clear within the first month upon attaining adequate dosages.

Ignoring the following will guarantee treatment failure. All salicylates including aspirin completely block the benefits of guaifenesin for fibromyalgia. This occurs at a kidney site—something well documented with uricosuric gout medications. Salicylates are often found in pain medications and exfoliating products. Less appreciated is the fact that all plants manufacture them in quantities that vary with genus and from crop to crop. They are stored in bark, leaves, roots, and seeds where they serve to repair damage or as weapons against soil bacteria and fungi. Salicylates are readily absorbed through the skin and intestine when introduced from medications and supplements including plants oils, gels and extracts. Individual genetics determine ease of blocking but all patients should assume a high level of susceptibility and take no risks. New or replacement products should be carefully inspected for changes made by manufacturers. Items on Salicylate-free lists should be double checked for accuracy before purchasing.

The following is a guide to natural and synthetic salicylates that must be avoided:

Medications: (1) Pain products containing salicylate or salicylic acid, for example, aspirin, Salflex, Anacin, Excedrin, Disalcid. (2) Herbal medications such as St. John’s Wort, gingko biloba, saw palmetto, Echinacea; vitamin supplements with alfalfa, rose hips or (3)Bioflavonoids (quercetin, hesperiden, rutin). (4) Topical medications such as wart or callus removers, acne products and dandruff shampoos that contain salicylic acid. (5) Pain creams, balms and lotions such as Ben Gay, Myoflex or Salonpas (containing salicylate) (6) Medications such as Pepto Bismol, Asacol, Alka Seltzer or Urised that contain the word salicylate as part of their generic names.
Cosmetic and Topical Products: (1) Skin cleansers or exfoliants that use salicylic acid. (2) Hair shampoos, conditioners or sprays with plant extracts or salicylic acid (3) Bubble baths and lotions containing aloe, ginseng, lavender; almond or grape seed oils or extracts etc. (5) Sun screens or tanning lotions with aloe, octisalate, homosalate, mexoryl or meradimate. (6) Lipsticks, balms, or medicated topicals with ingredients such as salicylic acid, aloe, camphor, menthol, or castor oil. (7) Deodorants with castor or other plant oils or extracts. (8) Sticky plant juices or saps adhere to the skin while gardening or weeding (Patients should wear waterproof gloves when gardening). (8) Ttoilet paper and baby wipes with aloe.
Shaving Aids: (1) Shaving creams with aloe, mint, menthol or mentholatum will block. (2) Razors with aloe strips adjacent to the cutting edge deliver salicylates through microscopic cuts. Vitamin E, lanolin, cocoa/shea butter and mineral oil are all acceptable.
Oral Agents: (1) Most mouth washes contain mint, wintergreen or salicylate (Listerine). (2) Toothpastes contain salicylates, as well as fresh or artificial mint, often unlisted. Use Cleure toothpastes, the non-mint ones made by Tom’s of Maine or others listed on our website. Baking soda and/or peroxide provide good cleansing and whitening. The non-mint pre-brushing rinses are acceptable as are Cleure Mouthwashes. (3) Use no lozenges, dental floss, breath fresheners or chewing gums with any mint flavor, including menthol, wintergreen, peppermint or spearmint. (Fruit/Cinnamon flavors may mask mint hidden by the stronger flavors.).

The QUICK CHECK here on the website will detail exactly how to check your products.

Dictionaries or online references can help identify ingredients. When calling manufactures ask for a list to check yourself because often personnel do not realize that plants make salicylates. This web site can connect you to a support group to help with updated safe-product listings and answer questions.


No diet is required for fibromyalgia since the liver alters food salicylates. The only exception to this is that we ask patients not to drink tea. The camellia plant is very high in salicylates and steeping makes it stronger. (There is no problem with coffee and with plants other than those in the tea or mint family.)

Do not use decongestants or cough medicines to get guaifenesin. There are potential side effects from various additives. Single ingredient guaifenesin has no side effects (save rarely mild, but transient nausea) and no known drug interactions. Using it with salicylates causes no ill-effects, it simply negates the drug’s effectiveness for fibromyalgia.

Pain medications such as acetaminophen (Tylenol), Ultram, Imitrex, non-steroidal drugs such as Advil, and Aleve, will not block guaifenesin.

Our treatment is not for those lacking courage. It calls for patient skills and, hopefully, physician assistance. Remember, reversal of the disease reproduces past symptoms and may cause new or long-forgotten ones to re-surface. The intensity of these early cycles often causes concern during the initial weeks of treatment. Such symptoms are not guaifenesin side effects. Patients realize they were getting steadily worse long before starting our protocol despite medicinal Band-Aids used to mask symptoms. We offer hope to those with determination to try once more despite previous failures. This is a highly-effective protocol.

Info was taken from a website



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