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Found some good info on CFS
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January - March 10

The Wall Street Journal site has a really good health blog that has great information on Fibro and CFS. Google "chronic fatigue syndrome" and go down to the site that is from the Wall Street Journal. The articles are good, and the comments are even better, with some excellent ideas for tests to ask about, supplements to take and decent doctors who are researching this field. It really is beginning to look like infectious disease(s) may be causing a lot of our problems. But again, diagnosis is key, and I think fibro is a dumping ground for many different syndromes. I copied one person's comment because I thought it was so apropos.

"Anonymous wrote:
Patients should not be punished for a lexical mistake. Idiopathic “chronic fatigue” is a condition that affects up to 25 percent of people seeking medical care. It can indicate a neoplasm, low thyroid, depression, mononucleosis, and any number of other acute and chronic conditions.

Myalgic encephalomyelitis/CFS is such a different animal that putting the two in a room together is like confusing a black leopard with a bunny, or including both black leopards and bunnies in a study on whether black leopards and bunnies both benefit from a vegetarian diet. As long as researchers includes 85 percent bunnies and 15 percent black leopards, the results will show that yes, going veg will *definitely* be good for all involved. This absurd example parallels the type of “science” used in the study that found ME/CFS patients would benefit from exercise and therapy.
While that study might have included a handful of black leopards (CFS patients) it mainly included bunnies: people with idiopathic fatigue.

What most distinguishes ME/CFS from idiopathic chronic fatigue is post-exertional malaise and mitochondrial dysfunction, which shows up in blood testing as low ATP, low ADP to ATP reconversion (Dr. Sarah Myhill), and other cellular irregularities, and cardiac issues such as abnormal heart biopsies (Martin Lerner) or signs of left ventricular dysfunction and diastolic heart failure (Arnold Peckerman).

In contrast to the bogus science that is trying to prove leopards are really bunnies and bunnies are leopards, Dr. David Bell of Lyndonville, NY simply practiced hands-on medicine. Just as the Amish around Lyndonville, NY never abandoned certain methods now being reclaimed by society as “green,” Dr. Bell never abandoned the standards of basic medicine, and that is why he saw what was there — people in his community, solid citizens and their innocent children, struck down by one of the most disabling conditions in modern medicine.

Sure, people with a lot of conditions benefit from exercise: it is the fact that young athletes, marathon runners, Olympians, and straight-A students suddenly can’t crawl across a room and get exhausted taking a shower that makes ME/CFS so intriguing. Dr. House would relentlessly mock the scientists who are trying to confuse bunnies and leopards, and perhaps that’s how it should be, or perhaps his favorite saying should be applied to those in this cover-up of a retrovirus-induced neurological illness that can leave people bedbound for decades: “everybody lies.”



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