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Do any of you believe FM is a precursor to a bigger illness
15 Replies
carm - October 14

There is a theory of thought that FM being a syndrome instead of a disease is a precursor to a bigger illness down the line. My question is do you believe this and why and why not and what illnesses down the line will it lead to? I have heard MS or rhuematoid arthitis.


TERESA - October 14

Where did you get your info? I would be interested in reading this!!


carm - October 14

Well, because FM is a relative new diagnosis even though I believe to have been around for quite a while. Some doctors feel (two that I know personally) that FM is sort of the start of something bigger that just isn't in it's full blown state or has just started. Sometimes people stay in the starting phase which is now being diagnosed as FM while others do develop other problems/diseases later. It can be linked to family history. Let's say one parent may have had in their lifetime. I am not sure. It is all new to me as I have had symptoms for about 7 years and just was diagnosed this past summer with FM after exhausting Neuro, an Internist and a Rhuematologist. It sometimes seems to be a scary catch all when they can't figure it out. On the other hand so many people have it that is scary.


AmberRose - October 15

Well i hope its not a precursor to anything worse! That would be so disheartning


Virg - October 15

Hi Carm, wow that is a frightening thought. I've had fms symptoms for so long and the only thing is some have worsened while others just gave way to new symptoms. It would be interesting to find out if anyone with fms and very old has developed any bigger ill. If its hereditary well all I can say is my parents who had arthritis died at the young ages of 83 through heart dieing out. It was thier time.


carm - October 15

Thanks Virg and Amber Rose. I was just interested in others thoughts on the FM. I also hope that it is not a precursor for something worse. My Mother had rhuematoid arthitis and died at 66 from complications from that. So I guess that is why I am interested in what others think that have the same thing. Tx again


BrandyO - October 15

Hi Carm, I sure hope that it isn't a precursor. I've been suffering with fibro for 40 years and seeing an MS specialist for a year now. No dx with that but she is watching me like a hawk! So many of the symptoms parallel. When I mentioned being watched for MS for a year already someone (I don't remember who) said that it couldn't be MS because it wouldn't take that long to diagnose it. But believe it or not, it takes some people years before they get an MS diagnoses just as it sometimes takes years to get a fibro dx. I had neuropsychological test on the 3rd that the MS specialist ordered I and get my results this Monday. There have been people diagnosed with MS through these test. I pray that I am not one of them and that it's just very bad fibro fog and nothing more! Take care everyone and many blessings to you all.... Brandy


carm - October 15

Thanks BrandyO, I hope you do not have MS also, I went some prelimbs quite a long time ago and they ruled it out at that time. I am more concerned at RA because of a family history of it. But, I have been cleared so far from that. Good luck and Tx.


JJ1 - October 15

I have never seen anything to support this theory. I would ask your docs more questions about this -- have there been any studies? I think it would be a poor practice for a physician to get patients needlessly upset about something if there is no basis, so you doc must have something to back up this theory.


Virg - October 15

This is just a personal opinion. I just learnt my sister has been diagnosed with FM but her main complication was a heart attack one year prior to FM diag.
I think maybe something stressful or a major illness happens which triggers FMS. I know my life has had extreme stressful things in it prior to all my flare ups. I was prone to fm symptoms like fatigue and flue like symptoms starting very young. So maybe the Fibro is the result of past experiences and gets tougher as the body ages.??


carm - October 16

Very possible Virg. I too get a lot worse with stress. Sometimes hard to even get out of bed. Tx again


barbar - October 16

Indeed, the going theory is that fibro results from some major stressor event in our lives. I do not believe it leads to anything more complex. I have had it for 40 years and it rekains the one worst thing in my life. I was also tested for MS and Lyme disease. However, after discovering that the standard Lyme disease test is given to false positives, I am going to have myslef tested again. My symptoms are identical to Lyme disease and I have developed worse symptoms over time, but these too are consistent with Lyme disease. Let's face it guys, we're giving the medical world a run for it's money!! We are a real challenge for even their best diagnosticians. We should be proud of ourselves!


Virg - October 16

Thanks for the chuckle Barbar


JJ1 - October 16

I think it is pretty well accepted or understood that it is some sort of stress that leads to FMS. Mine was dealing with the care of elderly parents while raising three kids. A wife of a man I worked with was diagnosed after a car accident.


tcmby - December 18

i think its from stress too. i hope it deosnt mean i will get another illness. i am pretty much at my max with just this rihgt now. i hope thats not true. i have heard that fibro can be additon to mnay other illnesses though.


Cyndreth - December 20

Like some others I've had FMS for awhile, 28 years. I'm 48 and don't think of myself as old, but I haven't really had any other bigger illnesses since being diagnosed. I have had several inherited chronic diseases diagnosed over the years, but nothing I wouldn't consider unexpected given the family history of cardiovascular problems, deaths from heart attacks and strokes, low potassium issues, and asthma (I've been diagnosed with hypokalemia--low potassium--several family members--Finish and German descent--died from this problem according to the family historian; hyperinsulemia/metabolic syndrome--my youngest sibling was diagnosed with this a year after I was and we are fairly sure that both sets of grandparents, mother's brother, mother, and father had or have this; and, asthma--my mother, brother and I have it). I figure that if anything these chronic diseases and the FMS make me more aware of what's going on with my body and more apt to make sure I regularly visit my primary care physician for wellness checks, blood tests every six months, and any new issues that arise.



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