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desperate for answers
4 Replies
jhawk17 - January 23

I don't know if I have fibromyalgia or not. I have been tested for RA, anemia, thyroid condition, B12 deficiency, and lyme disease. all negative. Don't get the idea that I am a hypochondriac, because I am definately not, i hate going to the doc. I amost have to be dragged in. I have been living with chronic pain for so long I don't know what a day without some kind of pain is like anymore. I went recently when the fatigue set in. It has lasted a couple of months now, and I can't stand it. I have joint pain almost all the time, aching muscles a good deal of the time, numbness in my hads and feet often, phantome chest pains, swollen glands in my neck sometimes for no apparent reason, muscle cramps on my lower legs alot, muscle twitches, it takes me over an hour to get moving in the morning. If i am active I am fine but let me sit for a short time then I ache. I have lived like this for so long it has become normal to me. I know something is wrong, but so far tests have shown nothing. What can I do?


JJ1 - January 23

There is no specific test for fibromyalgia. It is diagnosed by eliminating other ailments with similar symptoms, which it sounds like you have been through already. Have you been seen by a rheumatologist? If not, I would recommend seeing one, or possible a different one if you have already been and they did not suggest fibromyalgia. See if there is a fibromyalgia support group near you and they may be able to recommend a doctor for you. Good luck.


AKFlyfisher - January 23

JJ1 is right, you should maybe see the rheumatologist, but he might not know either. Your symptoms sound just like mine, it sucks I know. If I stay home on weekends I feel worse. If i go somewhere or go fishing or boating I feel better. I hate the fatigue and IBS the most. I am going to try the juice and natrual food diet that Anthony emailed everyone about earlier this week. I had to diganose myself after my internist spent 15 months running all his tests and taking my money. Good luck, also start walking everyday, get an ipod and dress warm and get sweaty, it helps a lot.


jhawk17 - January 23

thanks guys, i am looking for a rheumatologist as we speak. I do try to stay active. I have a very physical job and i walk a lot with my dogs. My diet could use some improvement though.


skidoo - January 23

It is very frustrating to go through all those tests with no answers, but unfortuantely there is no standard test for fibromyalgia and this process of elimination is necessary. The symptoms mimic many other illnesses and aren't the same for every person, so that sometimes sends doctors down a cold trail in their attempt to diagnose. Also, because the symptoms are so varied, we don't initially see the right doctor. If you are like others, you may go to a gastroenterologist for irritable bowel and heartburn, an orthopedic doc for soreness in parts of your body, your general practioner for feeling run down and flu-like and never mention to any of these doctors your other symptoms so they can piece together the puzzle. It is unfortunate that this difficulty to diagnose and treat has caused some to shun the medical community.



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