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Cluster headaches and Fibromyalgia?
16 Replies
gator80dmd - April 26

Has anyone out there with fibroM had Cluster Headaches? They are different than migraines, of short duration (several minutes to a few hours) several times a day with pain behind one eye either boring type pain or the "ice pick" to the eye type pain. I have had fibromyalgia pain since my early twenties, I'm almost sixty now, had cluster headaches about fifteen years ago for a few years. They resolved but now are coming back occasionally. Anyone have them?


kvc33 - April 26

Never had them. I would look into sensitivities to food additives if I had them and get tested for food allergies as well. Keep a diary of them and take note of weather conditions, activity level, foods eaten etc. Also determine if the pain is coming from somewhere else such as the neck or back.


Jocelyn - April 26

I have had cluster headaches when I was younger, however, mine did not involve the eye area, they were on one side of my head. In order to get rid of them my doctor gave me a tranquilizer and that did help. I don't know if you are already on one or not, but if you are not, perhaps it would be helpful.

Good Luck, keep us posted


melissa76767 - April 27

Yes, I have both. Thank god I have not had my clusters in a couple years. A lot of the fibro daily medicines are the same as the cluster preventative medicine. The only thing that ever helped me was the imitrex injections.


kvc33 - April 28

Both antidepressants (most) and migraine meds raise serotonin levels in the brain so perhaps cluster headaches are related to low serotonin levels. Sugar depletes serotonin. Cut it out of your diet and see if it makes a difference.


January - April 28

I took Imitrex injections for migraines, and they helped the headaches but made me feel weird - not a good feeling! I also had a bad time with antidepressants, especially the SNRIs. My headaches are pretty much gone now that I don't take hormones and am on an allergen free diet.

I would agree with (as above) checking into food allergies. These are not easily diagnosed by doctors. Better to keep a food diary, and know also that sometimes the bad reaction can be delayed for several days. Also, the barometric changes can be rough if you tend to get migraines -- I assume it's the same if you get cluster headaches.


dlrjdg - September 20

When I started taking Cymbalta I started having migraines less often. However, I am home with a migraine today. But before the Cymbalta, I was home at least one day a week with a migraine.


drtsalamay - September 28

I agree with kvcc. You must surely check out for food sensitivities/allergies and then there are other factors related to this condition.Its important to identify the problem and consult a good doctor, this is a treatable condition.There are videos by fibromyalgia expert talking about all these aspects esp for food sensitivities.Check out ***Fibromyalgia Video-2 "Food Sensitivity" by Dr Tony Salamay*** on youtube.

I hope this may help in getting apprised about the condition some more. Wishing the best for your wife.


cbee - January 7

ive had cluster headaches for 12 years and more recently diagnosed with fibromyalgia too. For 9 years I had 6 week cluster episodes in autumn and spring then 3 yrs ago developed to a chronic phase along with developing more health issues now diagnosed as Fibromyalgia. i think all aspects are connected, i lost a child and think that the grief caused a chemical change. my new doctor has been great the medication is helping:-) will check out the video on u tube


lisae77 - March 14

Yes I currently have the daily migraines,but ive noticed if I don't take the Celebrex and Cymbalta at the same time every night I end up with the migraines that last about 2 days, behind the eye on left side as well as back left side of my head. I apply ice packs n pressure and it eases them up.


Sanruiz - March 18

Cree what's the name of the video, n what works for you, n the chemical change


Sanruiz - March 18

I am very ill I feel like I can take this pain anymore, is there hope? I been suffering for too long I feel like I'm at the end can,t take it anymore! Can anybody help


patriciacnc - March 19

After being totally disabled with FMS, I have been out of pain and off meds for 13 years. I did it by balancing my hormones, initially balancing brain chemistry, cleaning up my diet, and clearing some toxins, which is likely something you won't hear in your doctor’s offices.

I have been studying and working the past 13 years to help others in their recoveries. I want people to get well.

Out of a passion to help others get well, I have written Reversing Chronic Disease: A Journey Back to Health, which is endorsed by Dr. Jacob Teitelbaum and 2 other MDs.

Don’t accept the word "incurable." Keep fighting for restored health. If I can get well, why can't others. I believe something better is out there with your name on it.
I want to encourage each of you with fibromyalgia. I understand what you are going through. I have been there.

After being totally disabled with fibromyalgia many years ago, I have been without pain and off medications for over 13 years. I didn't happen over night, but it did happen.

Here is what I have done to get well.
1. Identify and correct hormonal imbalances using plant-based replacement.
2. Initially corrected brain chemical imbalances, particularly improving a naturally occurring brain chemical called dopamine.
3. Cleaned up my diet and eliminated milk, a food that was causing trouble for me.
4. Cleaned up some toxins.

Rheumatologists and patients typically don't understand the symptoms of hormonal imbalance. I want to help change that. The technology is in the here and now to identify and correct hormonal imbalance.

Do a little research to see if you have symptoms of hormonal imbalance. If you have many of these symptoms, study to find out how to identify and correct imbalances.
Here is a hug to each of you. I want you to feel well again.

Patricia Stephens, Certified Nutritional Consultant


KarenO - September 6

Makes me laugh/annoys me how people can make suggestions when they have never experienced cluster headaches. After years of loads of different diagnoses including trigeminal neuralgia my latest neurologist thinks that is what I'm experiencing along with fibro. He suggested looking at I'm already on Gabapentin 600x600x900 and 150mg sertraline daily. Neurologist wanted me to have Lithium but I've recently had acid reflux problems and they discovered inflammation in my stomach so I can't have the medication. GP had added 50mg of Topiramate daily!! only a week on and the pain still not under control with 30/500 co co-codamol added to the mix. Very opinionated Neurologist (they're an odd breed!) says hormones are nothing to do with it - which is not what the web site he recommended says - I think they affect me and time of year! Interesting that according to "Ouch" cluster headaches are rare in women - maybe they are going un diagnosed? Wishing anyone suffering with this vile combo an improvement xxx


conniehurts - September 7

KarenO I have been to a group of neurologists that don't believe you can get headaches from, neck, head or back injuries! They are a "funny" breed alright!


Fibro2 - September 10

You can try to go to Chiropractor.


conniehurts - September 11

fibro2, I went to chiro for years. He finally said to not allow ANYONE to ever adjust my neck because the bones have reshaped from injuries that went untreated for 20 or more years. He actually sent me to a dr for pain meds. It takes major opiates to control them but haven't had a migraine for several years now with meds. Used to get them daily and some would last for weeks at a time. Thank goodness for pain meds! lol



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