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Can Fibromylagia be inherited?
11 Replies
tatmam - December 28

Hi everyone. I am new here and will be turning 39 on Jan. 1. Over the past 2 years, I have had problems with muscle and joint pain, and various other symptoms that I always just contributed to my Graves' Disease (which I've had for 10 years).

Over the last few months I have been experiencing extreme pain in all my joints. It hurts to even open a bottle of soda. I wake up in the morning and can barely walk to the bathroom. I have various other symptoms (too many to list) and I feel like I've turned 90 overnight. All my thyroid tests look great, so I can't contribute my pain to the Graves'.

My biological mother (I'm adopted) was diagnosed with Fibromyalgia at the age of 41. She's 55 now and has been disabled since the age of 43 due to it. Is it possible that I am starting to exhibit the symptoms of this disease? I have been put on everything from anti-depressants to ADD meds by my physician, but I'm now wondering if we are not even looking in the right direction.

Any advice is appreciated.




bmcgovern - December 28

I am not sure if it is inherited my dad has it and has had it for a little over 10 years now and a couple of years after he has had it i have it i was 12 years old when it started. Sorry this isn't much help, but i wonder the same question you do.


Fantod - December 28

Yes, Fibromyalgia (FMS) can be inherited. It runs in some families. In my own case, my father has many of the associated conditions but not Fibromyalgia. I have the whole package - FMS and a whole bunch of "perks."

Call your local hosiptal physician referral service and ask them for a recommendation to a rhuemotologist with an interest in FMS. Or, you can go online to the National Fibromyalgia Association website and register. Then you will be able to see a list of fibro-friendly health care professionals in your area.

The longer a chronic pain cycle goes on, the harder it is to stop or manage. It is imperative that you see someone as soon as possible. Take care.


Awesome1 - December 30

You could almost say that it is.

Here is the strange thing FM is understood to be a muscle problem but the aggrevator is found in the ion channels found in t-cells and natural killer t-cells.

If you have not heard about this, you can start by google search Glyrite.

Hint: There are five autoimmune diseases that is caused by Kv1.3 (ion channel). As Fanton said, 'a whole bunch of "perks"'. If you have one, you will get the other as well.


Canada17 - January 1

I have posted the following on a couple of other treads. I think it is important information and required with the stance that Awesome1 has taken:

First, let us be clear that Mirac and GlyRite are not medications and “Mirac is exempt from FDA approval under the Dietary Supplements Health Education Act of 1994 (“DSHEA”). Mirac does meet all the requirements under DSHEA.” That is a quote directly from the Mirac website.

I don’t know about other Fibromyalgia (FMS) sufferers on here but I know that I don’t “make friends” with my doctors, or any scientists for that matter. My health is too important. I trust my doctors’ advice, however, we all need to do our own research and keep a watchful eye of any new side effects that could be caused by new treatments. Treating a doctor as a friend puts a blind faith in their ability to provide us with care that will not cause us harm. For all the education doctors have, and for all the good they do for us, we cannot overlook the fact that they only know what is common, unless they are a specialist, and even specialists don’t know everything. FMS is such an awesome disease that they cannot accurately predict how one patient will react to a medication/treatment over another; there is still too little known about it.

I often write about refraining from prescription medications whenever possible as it is important for us to determine if there are environmental and/or dietary influences to our pain. If we can figure those out we can help to mitigate our pain and other symptoms and thus require less of a medication or none at all. But to say, “Pick your poison and go with what you think is best for you' or be open-minded with what I am suggesting” is incredibly faulty logic. Consider the fact that green tea has many health benefits; it is used religiously in many cultures. However, there are many people, including myself, who have a nasty side effect – increased blood pressure and heart palpitations. For all the good green tea has, it is poison to me. And contrary to what you may believe, a great many of us knew what was best for us before any of our doctors figured it out.

You say you are on a “crusade” to have us all adjust out mindset. Perhaps it is you who requires an adjustment though. Are you the new FMS messiah sent here to deliver us from our pain? What gives you the right to dangerously promote a supplement as a cure to FMS? You write more like an advertising agent than a patient. I say dangerously because there is no prescription requirement. I can order this supplement right now with a credit card if I so desired. If I was foolish, that is what I would do, even the website promotes this supplement well for relief of FMS pain and symptoms. However, I would be hard pressed to believe that there would be no complication with my current regimen and would need to discuss it with my doctor. Given the simple fact that I have FM I cannot trust anyone who tells me that anything is safe for me to take.

You wrote: “Realize that where FM is, there will RA be as well.” Where exactly did you form that conclusion? It is wrong. While it may be common, it is not absolute.

Realize that where there is FM, there will exceptions be as well. No two FM patients are the same.

This website is not the place for vigorous and aggressive promotion of a “miracle” cure.


Fantod - January 1

Amen Canada17!


katrinalove_1 - January 16

Hi Tracy, My daughter and I both have fibromyalgia. Yes it can be inherited. I started having symptons in my thirties and I am now 65. My daughter was in her twenties when she was diagnosed. I was diagnosed last year so I suffered for many years. I am taking cymbalta 60 mg and receiving trigger point injections sometimes. I still have pain but seem to manage the pain better. I had surgery so I can't exercise for a month which will end Tuesday. I do aerobic exercise and use weights. This has really helped my pain. Leslie Sansone has great DVD exercise videos. Walmart sells them. I buy mine online mostly on I hope this helps you. God Bless.


flipperlover - January 17

Yes, they use to call it "phantom pain" back in the day. I am convinced it is in the gene's I can remember my mother having all kinds of ailments when I was a kid she would take nerve pills and Darvon- the mother load of darvacet, when i was a teenager I cramped every month till i puked, she would give me a darvon, but my body has adverse reactions to most prescribed medications, so it did me no good.


stephanyb11 - January 17

hi tracy, i am 29 years old and have had FMS since i was 17, my mother has it and she has 7 sisters and 6 of the 7 have it and my grandmother has is extremely hereditary!!! from what you are explaining it sounds like my day to day life!!! i would def. mention it to you doctor, i am so sorry to hear of you symptoms!!!
take care


Awesome1 - January 21


I see you are being so critical with so much to say. If you don't have any credentials then you ought not make it sound like Mirac is not effective for FMS.

Yes, you can say that no two people are the same, but I simply wanted to point out that many in this forum and others complain about FMS and some are diagnosed with arthritis as well. Maybe you don't have arthritis, so who cares!

What I see is that you have not indicated your understanding of what Kv1.3 (abnormal ion channel) is doing in its proliferation of immature NKT-cells. Perhaps I should make it clear that inflammation is nothing but a downstream situation.

If one's medication is dealing with inflammation, one is not are really getting better. Another thing, it is against FDA regulation to even say that Mirac or any dietary supplements cures (in case you have not been educated in that area). What it can do is stop the cause! Again, STOP THE CAUSE. Not suppress!!

Another reminder, regular FMS doctors or rheumatologists are not your research scientist. So, how would they know about the abnormal ion channel? All they do is listen and prescribe a couple of drugs. If one doesn't work, you get another or you get an increase dosage.

Lastly, if you have not used Mirac then you have no reason to down grade it or deter others from using it. Otherwise, I view you as a supporter of Pharma. Other than Mirac, there is no pharmaceutically-graded dietary supplement that doctors can prescribe for FMS.

So, why don't you whip out your credit card and get one for yourself. Otherwise have your doctor prescribe it for you.

FYI. A few non-skeptical rheumy doctors are already prescribing it, and unbelievable results have been documented with no noticeable side effects. So, what do you have to say about that?


Canada17 - January 21

First of all, I didn't say that Mirac is not effective for FMS. I said that you and the Mirac website effectively promote it as a very successful treatment of FMS. However, there is no proof (by proof I mean third party research studies) and furthermore this supplement is not approved by any government body as a natural health product.

And I did indicate my understanding of Kv1.3. I stated that I didn't know how it correlated with the supplement you are promoting or with FMS and asked you to clarify. You still have not done that. I am sure there are many people who would like to understand it if it would help us with our FMS struggle.

Perhaps you are right that if you are only treating inflammation then you aren't getting enough treatment for your FMS because while FMS may make you feel inflamed, you are not, you just feel like you are. That being said, there are people who suffer inflammation from associated conditions who do benefit from anti-inflammatory treatment.

Ok, so the FDA says you can't say it "cures" anything, but you can say it stops the cause. Well, if it stops the cause, that would be a cure, wouldn't it? Sounds more like a loop hole than a rule. Besides, this supplement isn't approved as a natural health product.

In case you hadn't noticed, I was downgrading your promotion of Mirac more so than its use or effectiveness. I was cautioning people to be weary of what you are saying because so many of us are desperate to feel well again that we will try anything. Again, Mirac is not approved by any government body as a natural health product and has not been proven to be effective. Of course testimonials will say it is effective, what company in their right mind would publish a testimony stating that it wasn't effective?

While not a research scientist, my doctor does not just listen and prescribe medication. In fact, she does do research. Not only is she on the Board of Rhuematology in my area, she also has FMS.

And you obviously missed my entire paragraph about my advise to refrain from pharmaceuticals as much as possible until one finds trigger causes for their symptoms. I would hardly call that a "pharma-supporter". Furthermore there are many pharmaceutically-graded dietary supplement that doctors can prescribe for FMS.

You asked, "A few non-skeptical rheumy doctors are already prescribing it, and unbelievable results have been documented with no noticeable side effects. So, what do you have to say about that?"

I have one thing to say. Why would Mirac document bad results? They obviously don't really care about legitimacy or they would adhere to regulations and have Mirac approved as a natural health product.

Aside from all the above. I was stating what others on this forum already felt. That the way you are promoting Mirac and GlyRite sounds more like a shameless attempt to generate sales than a heartfelt recommendation from a fellow Fibromite. You don't need to post your miracle cure on every tread and insinuate that we don't really want to get better because we aren't using it. You antics depreciate the suffering caused by FMS that we battle with everyday.


Fantod - January 21

Awesome1 - I totally agree with Canada17 about your stance on these products. You've posted on a lot of threads in the past which is inappropriate for this forum. I just want you know that I have reported you to the website administrator. Your posts are misleading for someone who has been recently diagnosed. And, you have no business promoting a "cure" on this board.



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