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kimzsoa - December 14

Just diagnosed Friday with Fibromyalgia...possible RA as well but not yet confirmed. I have 5 kids at home, work from home, love to jog but just can't do it as I used to. An hr non stop was no big deal a yr ago, not it takes me longer with several stops, uuugh!

My doctor put me on Meloxicam awhile back before diagnosed..that didn't seem to help so he switched me to Gabupentin...which really did no good and I realized how much the Meloxicam really did work. Found out I can take both but today my ankle and feet swelling went from severe and I woke up with swollen eye lids. is this common??? Going off the Gabupentin as I don't feel it helps much, Meloxicam is great but side effects suck, esp. sudden death with no there nothing safe out there that works?? Is the swelling from the meds?? Just so many questions...


Auvonto - December 14

welcome kimzsoa, you need to address your questions to your dr. but it could very well be your meds. i hope that you can find something that will help you soon.


Fantod - December 14

Hello kimzsoa- and welcome to the board! I hope that by the time you read this, you have called your doctor or gone to the ER. I am guessing that you are having a bad reaction to medication.

This is the most comphrensive site on the Internet for information about Fibromyalgia (FMS). There is a lot of good information in the blue boxes on the lefthand side of this page. And, we have a good group of people available to offer support, suggestions or just listen when you need to rant.

Fibromyalgia (FMS) is a disorder of the central nervous system. It is correctly referred to as a syndrome. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescribed medication. OTC remedies like Tylenol do not work for the type of pain associated with FMS. Fibromyalgia is recognised by the National Arthitis Foundation, The Centers for Disease Control and the World Health Organization.

One of the reasons that you are in so much pain is that you are not getting restorative, deep sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain. Treating the sleep issues associated with FMS is a crucial part of treatment. You should be on a sleep aid like Amitriptyline.

There are now three prescribed medications used to treat FMS. You have probably seen the ads on TV for Lyrica. The most common complaint associated with this medication is rapid weight gain. It may not happen to everyone but when it does most rheumotologists are not proactive about changing medications. The second choice is Cymbalta which addresses both the pain and depression associated with FMS. I use Cymbalta myself and have had pretty good results. The third and newest choice is Savella. It has been used in Europe for decades and was approved for use in the USA last year. It is going to take time and a lot of tinkering to find the right combination of medication and doseage to make you more comfortable. At a bare minimum, it will take two weeks or longer once you start on something to notice any difference.

Meloxicam is an anti-inflammtory used to treat conditions like osteoarthitis. It is not appropriate for FMS. There is no inflammation associated with Fibromyalgia. I take a low dose of Meloxicam daily as I also have advanced OA and need knee replacements.

You should never stop any medication without consulting with your doctor. For example, Cymbalta and Savella require that you be weaned off the medication slowly. Just quitting cold turkey could make you extremely ill. The longer a chronic pain cycle continues, the harder it becomes to manage or stop. You need to allow time for any medication to build up in your system and settle your over active pain receptors down.

I certainly understand your concern about medication and safety. However, when treating a complex health problem like FMS, I feel that you will enjoy a better quality of life with medication as opposed to not using any. FMS places a huge strain on the body system wide. And, should you need to file for Social Security Disability down the road, being treated will work in your favor.

Have you been tested for a Vitamin D deficiency? This is done with blood work. Another option is gluten sensitivity. It is possible to be gluten sensitive (me) without having full blown Celiac disease. The best and most accurate results are obtained using a stool sample. Either of these issues will also cause widespread pain and are common among people with FMS.

The doctor best suited to treat FMS is a rheumotologist. You can find a fibro-friendly rheumy a couple of different ways. Call your local hospital and ask for the physician referral service. See if they can match you up with a rheumy and/or a pain specialist (I have both) with an interest in FMS. Or, you can go oline to the National Fibromyalgia Association website and see a list of doctors for your state.

With regards to to diet, if you use an artifical sweetner (including Splenda) get rid of it. If you need a sweetner, use something made with the nontoxic Stevia plant like Sun Crystals or Truvia. You can find the latter in the grocery store alongside the other sweetners. Try to avoid eating deep fried food, lunchmeat or red wine (nitrates) as these items will also ratchet up your pain level.

You could purchase "Fibromyalgia for Dummies" through Amazon. Like the rest of the dummies series, it contains good basic information. Read yourself and pass it around among family and friends. I'd also like to gently suggest that you consider finding a therapist who deals with chronic illness. Many of us see someone and find the extra support very helpful. You can call your local hospital and ask for the physician referral service. They should be able to recommend someone. The other option is to use Google and see who pops up in your metro area.

The key to living with FMS is learning to be grateful for what you can accomplish rather than what you are no longer able to manage. You must learn to pace yourself and respect what your body is telling you. Learn to say "no" and not feel guilty about it. Break tasks down into more managable increments and/or not be too proud to ask for help. FMS is variable on a daily basis. This makes it very difficult to plan. Knowledge is power. Read through the blue boxes on the lefthand side of this page and look at some of the old posts to see how people manage this syndrome. You are not alone. I hope that my comments are helpful to you. Take care and God Bless.


kimzsoa - December 15

I appreciate the comments but found this when googling...see below:

Fibromyalgia is an inflammation based health problem.

When inflammation is triggered off and stays on it then becomes chronic.

Meloxicam can also be used "off-label" to relieve symptoms of fibromyalgia, gout, and lupus.

Sooo, which is right? I was told by my doctor to get off the Gabupentin, now have bad headaches and rarely ever get them but it says withdrawl can be as bad as from alcohol...even though I wasn't on it long.

Plus, weight gain...past eating disorder so anything that causes that will be OFF my list. Meloxicam is supposed to be minimal if any. All the others that contain serotonin inhibitors I cannot take. Tried several a few yrs back for PMDD...i.e. PMS X 10 and each one caused muscle twitching so had to go off them then finally discovered bio identical hormones which I swear by.

I also drink tons of diet Mt Dew which I know is bad and have a big thing for sugar. Just learning about what this syndrome even is. I was told therapy can help as it is NOT a disease and recently diagnosed with PTSD from 17 yr abusive marriage..which...PTSD can be an underlying cause of fibro.


kimzsoa - December 15

Although fibromyalgia is often considered an arthritis-related condition, it is not truly a form of arthritis (a disease of the joints). This is because it does not cause inflammation or damage to the joints, muscles, or other tissues. Like arthritis, however, fibromyalgia can cause significant pain and fatigue, and it can interfere with a person's ability to carry out daily activities.
so...which is it, lol


Fantod - December 15

The latter. Meloxicam is not recommended for Fibromyalgia. PTSD can be a trigger for FMS. Take care.


Fantod - December 15

The latter. Meloxicam is not recommended for Fibromyalgia. PTSD can be a trigger for FMS. FMS is correctly referred to as a syndrome rather than a disease. Take care.


kimzsoa - December 16

OK...definately NOT trying to be difficult or argumentive but my doctor is treating my fibromyalgia with you all say it is not used for that so have been googling..latest info:

Non-Steroidal Anti-Inflammatory Drugs [ NSAIDs]: To date, fibromyalgia has not been found to be an inflammatory disorder. It is the pain relieving property that is considered useful commonly used medications to treat fibromyalgia sufferers. This class of drugs includes:

Voltaren [ dicofenac]
Orudis [ keoprofen ]
Lodine [ etodolac ]
Daypro [ oxaprozin ]
Toradol [ ketorolac ]
Naprosyn [naproxen ]
Indocin [ indomethacin ]
Relafen [ nabumetone ]
Mobic [ meloxicam ]
Feldene [ piroxicam ]

Anyone else taking Meloxicam for fibro?? I have a 50/50 chance of RA as well so maybe that is why I am getting such relief with it, duhhh. Confused as ever!!



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