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Asking for chemo...
1 Replies
idwit - October 29

I was diagnosed with FMS 8 years ago and had flare up off and on.
Now for the past 3 months I have practically been bed ridden. I hurt, I'm tired, My muscles, my joints. I also have herpes zoster all the time. I take acyclovir, but they just keep popping up. My vision is blurred and my left eye has been hurting for a week now. I am also having trouble remembering things, and my body twitches.
I look well and always have people saying that I don't look sick - all in my head?
I am going to my rheumatologist in two days and asking if he will put me on chemo. I heard it can work well with autoimmune illness.
Now that you know a little bit about me, I have a question... Do you think the treatment I am asking for is too aggresive.? I have to do something becuse I dont want to live like this anymore.
Any feedback would be appreciated.


Fantod - October 29

You pose an interesting question. I did alittle reading on the Internet about chemo for FMS. Since FMS is an auto-immune disease I think chemo will only further damage an already weakened immune system. It can lead to a host of other problems either immediately or down the road. I understand your desperation but I would never do anything that extreme unless there was absolutely no other choice available. Have you consulted an MD who is also a holisitic physician? I use some alternative medicine and have actually seen some improvement. A holisitc doctor's perspective is much different than a regular MD. They have more intuative thinking when it comes to treating chronic illness. Sometimes a simple change is all that is needed to feel better. For me it was diet, taking some enzymes to help with digestion and readjusting supplements I was taking to control muscle activity. As another aternative, find another doctor who treats FMS and get another opinion about your meds and health issues. You can go to the National Fibromyalgia Association website and ask for a couple of referrals in your area. FMS is not an exact science by any means. A fresh set of eyes can't hurt and they may have some different ideas about how to best handle your situation. A pain specialist is yet another option. Mine was able to lessen some of my pain issues where others had failed. I have more doctors than relatives at this point but every one of them brings something I need and value to the table. I guess my message is: "If you are going through hell, keep going." I'd turn over every rock at least once before having chemo. Take care and let us know how you are doing.



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