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Advice needed from Fantod please.
5 Replies
fibromite.u.k. - May 25

Hi Fantod, I hope that you will read this one please. I know that other members say that you are very good at helping them and coming up with answers, so I am hoping that you can help me. I posted a thread entitled "Stoke, Migraine or what have I had", a couple of days ago. You may not have read it, so I wonder if you would do so please and let me know what you think. I am still feeling very unwell, exceptionally tired and keep thinking about how awful it all was, like a bad dream. Please read it and respond if you are able to do so. I would appreciate it so much. Thank-you.


kvc33 - May 25

Hi, This isn't Fantod but I thought I would look up a few things on your behalf. Apparently there is a condition called complex migraine that can cause memory loss in the short and long term. Some people with these types of headaches are also having mini-seizures at the same time, and like you, they think they are having a stroke. One person said that they wore a monitor for 24 hours in order to detect these mini seizures. It sounds like they did a pretty good work up on you at the hospital but perhaps there is more follow-up that can be done. Hope that helps and I hope Fantod answers you as you requested.


Fantod - May 26

fibromite.u.k - I read your post about your headache a couple of times. I'm sure that looking back on the whole experience is terrifying. Although, I appreciate your confidence in my abilities, I want to make it very clear that I am in no way affiliated with any medical field. Unless you want to count being an ongoing science experiment as a patient...

I would like to commend your spouse for acting in such a sensible manner and calling for an ambulance. If this happens again, the ambulance should be summoned immediately. Going to Casualty is better than taking a chance that it is just another episode of what happened previously.

I did a bit of poking around on the Internet about migranes. There are several different types and some of them are quite severe. Vomiting, memory loss and confusion are not unusual. If you were in the US, I'd suggest seeing a headache specialist for a second opinion. If that is possible to do in the UK, ask (insist) your generalist to make the referral. Get copies of your hospital records to take along.

You are already sleep deprived as a result of Fibromyalgia (FMS). Adding something like a severe migrane to the mix probably just amplified your overall reaction and subsequent feelings of being unwell. I find that having even a mild cold will set me back quite a bit. For now, I'd try to stop worrying so much. The tests were clear - that is what you need to focus on. If you keep fussing, it will take you longer to feel more like your old self. There is no point on ruminating on something that can not be confirmed. You are wasting energy that you need to focus on getting well.

However, (and I live by this) if your gut is telling you something is really wrong than get into see the doctor and jump up and down until someone listens. I'm not sure if any of this is useful information but I hope you got something out of it. Take care and let me know how you are doing.


axxie - May 26

Hi fibromite.u.k. I have your post about stroke, migrains and I have to conclude that what Fantod has told you goes also for me.

I have had the same episodes, or the same symptoms, I didn't go to the hospital, since I had already had an appointment to the Neurologist. They did quite the work out, on me, and was given MRIs, and it pointed to some white matter in the frontal part of the lobe, well you guessed it, they actually did more work out thinking maybe I had MS. It took a long while, suffice to say, a scare for nothing, I do not have MS. We will never figure out what those white matter are they could be anything. I would tell you only one thing, if your gut instics says that you may have something else wrong, then I would urge you to see the doctor once more. Explain with clarity as to why you are there, and discuss the details of the tests, and your uncertainties. He/she may be able to help you with your fears. Most doctors have seen these episode and base on other factors, such as complaints from your previous visits, blood pressure, blood tests, etc, they can pinpoint when there are concerns.
Sometimes its better to just let go of this fear, and concentrate on trying to get well.
Good luck to you.


fibromite.u.k. - May 26

Thank-you Fantod, kvc33 and axxie, what you all say makes sense and it helps to have objective opinions. I am seeing my doctor again on Friday and my hubby says he will come in with me as he can explain what was happening during the time I don't remember. Even though I thought I remembered the following day, from what he and my friend who was with me say, there is a lot I don't remember about that day as well, like I was continually repeating myself. I know I have to stop dwelling on it all, but it was just like a very bad dream and my husband says that at one point I actually asked him if it was a dream. I do thank-you for your support and will keep you updated with what happens.


fibromite.u.k. - May 30

Hi again, I thought I would update you on what is happening. I saw my doctor on Friday and she is convinced that I had a migraine and not a stroke as nothing showed up on either the CT or MRI scans. I have been reading up on migraines and am amazed at the dreadful things they can do and how they can so closly mimic a stroke. For the first time yesterday, I felt as if I was coming out of my "fog" and could begin to function again. I am now trying not to dwell on it too much, but I think that at first I was quite traumatised by what happened to me. My doctor said that it was not surprising that I felt both physically and emotionally drained and worried about what had happened to me, and that it would take a time to get back to "normal", whatever that is for a fibromite! Anyway, thank you so much for all of your support, it has helped a lot to know that you are all out there to talk to. Gentle hugs from me to all of you.



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