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Advice 0n meds??
17 Replies
tia - February 7

Hi guys...s0 ive made a few changes in my lyf as ive just been feelin w0rse...i finaly gt to a rheumy tht specialises in fibro :) n then i resigned from my xtrmly stressful j0b n im n0w h0pin im on the r0ad to rec0very...she's put me on lyrica,cymbalta,trepiline n jus w0rried ab0ut side effects of these ab0ve menti0n meds...any1 hav any st0ries to share?


Noca - February 7

Sounds like a good med combo minus the Tylenol, don't know why she would put you on that. You need a good breakthru pain medication such as Vicodin/Percocet for when your pain levels spike.


biggbrowneyes - February 8

Hi! My dr started me on Lyrica a few yrs back,(I have had FMS now along with hypothryoidism, intersistitial cystitis, hypoglycemia, carpal tunnel, IBS for 8 yrs now following a full hysterectomy that tore me alive! ) anyways, about 2 months of being on it, I started getting double vision when I would get behind the wheel. It was really bad at night! I literally almost wrecked about 3 times and got to the point to where I couldn't drive at night. I didn't put 2 and 2 together because I had so many other problems that came & went, but as soon as I stopped taking it, the vision problems stopped. Hopefully it won't happen to you, but please believe me if you started getting ANY vision problems, stop taking it!! I would be out somewhere, and all the sudden it would hit me, instantly. I would have no choice but to drive home. It was the scariest thing I have ever been through!
Neurontin really helps me. I take 600mg 3 times a day. I also take estradiol armour thyroid for my other issues,. I went through every pain med there is, they all tore up my stomach and did NOTHING for my pain. Then he put me on methadone,. It has been the ONLY thing that helps. unfortunately I will be on it the rest of my life because its def not something you can stop taking. But like my dr said, the other unfortunate thing is I will have FMS forever too, so I have to do whatever to let me make it though the day. I'm a single mother with noone else to help me, so if I have to take it the rest of my life, so be it. ya know? it sucks, it really does, but it is what it is. I would give a million dollars, cut off my arm, do anything for this to go away, but I try to keep my faith, its all I got!!
ps. oh yea, I was also on cymbalta for a while, but it made me really hot! to the point to where I literally would be sweating so much my bangs stayed wet! Meds have opposite effect on me too. Isn't that just swell??!! lol If I take sleep meds, I', sometimes they work, sometimes I'm up all night! or I take a med for awhile, and then it stops working. ,


axxie - February 8

Tia I admire you for quiting your job, at this point I still have roughly another year to go. I am hoping I can leave, but have to pay back my retirement funds, so that I can take disability pension.
I hope you start feeling better, gees you got yourself a great doctor, most doctors will give you one of the medication and won't give you others fear that you become a druggy.

When I was first diagnose the only thing the doctor gave me was cymbalta and it took some time for me to get used to it. I found that 30mg worked best for me and that 60 I felt like a monster on wheels. Went down to twice a day 30mg and that worked very well for me. I'm now off cymbalta and only on pain management and hormone replacement. Anything to help me is what I try.


axxie - February 8

Tia, I never responded to your question, as far as I can see, you seem to be along the path of most people who start off. I often wondered how lyrica and cymbalta work together. If you are feeling better, then you are on road to recovery.

Let us know how you feel in the next several days so we see how your progression with your mix of drugs. Be vigilante until you know how you will react to your combination, as for treptiline, I have never tred it so no sure if this would help me....


tia - February 8

So far ive been on lyrica f0r 2days n im just very nauseous which isnt that bad, i have energy i packed my cupb0ards today :) s0 that maked the nausea easier to deal with...i start cymbalta t0m0rr0w...wish me luck...


tia - February 8

0h ya n leaving w0rk was a difficult decisi0n seeing as im 23yrs old...but i kn0w i wil be ok...God is there...


valjoy - February 8

Lyrica I found great but the sweating was horrendous. I have tried a few of these drugs and another one made me put tons of weight on but I have just started Neurontin for the nerve pain and a low dose due to side effects. It has helped the neck pain already but I am on osteo eze pain killers and tons of vitamins. Gluten free diet has helped with the exhaustion a lot, I could never go back to white bread etc... I only have rice bread or spelt bread, read all the labels and shop at health shops for my pasta, it has helped me 100% with the exhaustion. For brain fog I have found that Rhodiola and Withania (herbs) have helped me, the chemist or health shop will be able to help you there. Keep trying. A stressless life style will also help and a dead easy job is the way to go, I know from experience. I am thinking of you. God Bless. X


mdak - February 13

tia- I am new here and I was just reading your message. I too had to stop work because of my health. Iam now on disability best thing I ever did. I almmost died before I stopped working.My life is getting so much better. I am able to rest,less stress and God has provided for my missing paycheck. MY pain is under control by a new pain medication that they use for chronic pain. I was dependent on narcotics at one time, almost killed me and my family life. This medication will not do that and you dont get dopy on it. YOu can work on it also. Itis 20-30 times more powerful then morphine. It is true, it worked in 20 minutes and last to 24-72 hrs. This is a miracle drug. Special dr.s such a licenced on this drug, which are mostly pain managemnt dr can only write this script. They can only have 100 pts on it also. I hope you get this message.I would like to share with you. I know what you are going through, but I finally found the miracle to FM.


Noca - February 13

mdak - what is the name of your medication you use? My Fentanyl is 80 times the strength of morphine and I'm still in pain so...


Fantod - February 13

Buprenorphine was first marketed in the United States in 1985 as a schedule V narcotic analgesic. Until recently, the only available buprenorphine product in the United States has been a low-dose (0.3 mg/ml) injectable formulation under the brand name, Buprenex®. Diversion, trafficking and abuse of other buprenorphine products have occurred in Europe and other areas of the world.

In October 2002, the Food and Drug Administration (FDA) approved two buprenorphine products (Suboxone® and Subutex®) for the treatment of narcotic addiction. Both products are high dose (2 mg and 8 mg) sublingual (under the tongue) tablets: Subutex® is a single entity buprenorphine product and Suboxone® is a combination product with buprenorphine and naloxone in a 4:1 ratio, respectively. After reviewing all the available data and receiving a schedule III recommendation from the Department of Health and Human Services (DHHS), the DEA placed buprenorphine and all products containing buprenorphine into schedule III in 2002. Since 2003, diversion, trafficking and abuse of buprenorphine have become more common in the United States.

Licit Uses:
Buprenorphine is intended for the treatment of pain (Buprenex®) and opioid addiction (Suboxone® and Subutex®). In 2001, 2005, and 2006, the Narcotic Addict Treatment Act was amended to allow qualified physicians, under certification of the DHHS, to prescribe schedule III-V narcotic drugs (FDA approved for the indication of narcotic treatment) for narcotic addiction, up to 30 patients per physician at any time, outside the context of clinic-based narcotic treatment programs (Pub. L. 106-310). This limit was increased to 100 patients per physician, for physicians who meet the specified criteria, under the Office of National Drug Control Policy Reauthorization Act (P.L. 69-469, ONDCPRA), which became effective on December 29, 2006.

Suboxone® and Subutex® are the only treatment drugs that meet the requirement of this exemption. Currently, there are nearly 15,700 physicians who have been approved by the Substance Abuse and Mental Health Services Administration (SAMHSA) and the DEA for office-based narcotic buprenorphine treatment. Of those physicians, approximately 13,150 were approved to treat up to 30 patients per provider and about 2,500 were approved to treat up to 100 patients. More than 3,000 physicians have submitted their intention to treat up to 100 patients per provider.
IMS Health National Prescription Audit Plus data indicate that 3.54 million buprenorphine prescriptions were dispensed in the US in 2008, compared to 2.12 million prescriptions in 2007.

Buprenorphine has a unique pharmacological profile. It produces the effects typical of both pure mu agonists (e.g., morphine) and partial agonists (e.g., pentazocine) depending on dose, pattern of use and population taking the drug. It is about 20-30 times more potent than morphine as an analgesic; and like morphine it produces dose-related euphoria, drug liking, pupillary constriction, respiratory depression and sedation. However, acute, high doses of buprenorphine have been shown to have a blunting effect on both physiological and psychological effects due to its partial opioid activity.

Buprenorphine is a long-acting (24-72 hours) opioid that produces less respiratory depression at high doses than other narcotic treatment drugs. However, severe respiratory depression can occur when buprenorphine is combined with other central nervous system depressants, especially benzodiazepines. Deaths have resulted from this combination.

The addition of naloxone in the Suboxone® product is intended to block the euphoric high resulting from the injection of this drug by non-buprenorphine maintained narcotic abusers.


January - February 14

Excellent info, fantod. Sending hugs and hope you are feeling better today. : )


mdak - February 14

noca, I see someone has given you info and name of the drug. I learned some new things on it today. I just know that I am like a totally new person. I have no trouble with this drug. I have been taking it for 2 yrs. I have tried it all from natural to most all narcotics. It felt like one or twenty pill didn't help. I was at my end witts. I now just take one half twice a day.(1)pill compared to all those other drugs that wasn't helping. I can skip and dont even know it. Yes it does have side effects if you misabuse this. Doesn't most all drugs have this. My doctor sees me once a month. I have a addicted personallity and I have not had any cravings to take more or misuse other narcotics. Alot of dr's are switching their patients over to this, even cancer pts. because of less abuse he said.


tia - February 17

So im d0in really well 0n the lyrica+cymbalta c0mb0 jus dealing with being nauseous..hope all of you are good....


Noca - February 22

mdak - Do you experience any nausea/vomiting on Buprenorphine? I tried Dilaudid high doses and was nausea/vomiting every day for 3 years till I figured out it was the Dilaudid. After I switched to Fentanyl patches, my nausea almost totally vanished. Since the patches avoid the stomach, it really reduced my nausea caused by these opioids. I now only use Dilaudid in low doses for breakthru pain in combination with high doses of Fentanyl patches for longterm pain relief.


lucky13 - February 23

the tylenol is actually the best OTC pain option, I use Tylenol athritis because it's a higher dose, but tylenol can be hard on your liver so I only use it on my rougher days.
My rheumy is the one that suggest I take Tylenol, I refuse to take Vicodin or anyother pain med that could be addictive. My MIL has a pill problem and I don't want to have to lock my meds up everytime she comes over.
I hope you find the right mix for you.
Good luck


mdak - February 23

noca- just replying to your question. I don't get sick on this medication. I haven't had any side effects to this medication. I am very sensitive to a lot of meds,so I am glad. I guess the most important thing to me is that my pain in controlled and I dont have cravings for more narcotics. I use to be on fentanly patches long
ago and I just had many problems with my addicted personality. I wish I could take certain meds like a normal person, but I can't. My doctors knew I had so much pain, but the pain meds caused me to have severe depression and many other problems. I was glad they came to me introducing me to this med. I can now function.



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