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2 Replies
weemama - July 4

I was diagnosed with FM a year ago, and my family just doesn't get it. I have trouble with dizziness and fatique along with the pain...but they always say it is in my head...does anyone have any idea how I can make them understand what I am going through?


Fantod - July 6

Yes, I have several ideas. Here they are in no particular order:

Fibromyalgia (FMS)is a syndrome which is recognised by the Center for Disease Control as well as the National Arthitis Foundation. It is not a figment of your imagination.

You can show them this site and give them links to the National Arthitis Foundation (you will have to use "search" to find the section on FMS).

Essentially, fibromyalgia is a malfunction of the central nervous system. The mechanism that causes it is not understood. There is no cure but it can be managed. Your pain receptors are stuck in the "on" position.

FMS causes a wide variety of problems which may include profound fatigue, sleeplessness or lack of restorative sleep due to interruption of the REM sleep cycle, irritable bowel syndrome, depression and veritgo to name a few "perks." The interruption in the REM sleep cycle is one of the most damaging things about FMS. Your muscles can not recover from the days activities without REM sleep. This in turn, causes more muscle pain and becomes a vicious circle.

You should take some time to read through all of the information contained on the lefthand side of this page in the blue boxes. The better educatted you are about FMS the better able you will be able to handle your family.

Your problem with your family is a very common among FMS patients. You look fine, therefore as far as they are concerned, you are fine. Have you stopped to consider that they may be in denial about your health situation? They may also be frightened because they don't understand what is happening to you. This takes me right back to the need to be very educated on the subject.

And finally, have you thought about taking the most vocal of the group to the doctor with you. Sometimes, hearing the information firsthand from a medical professional will change someone's mind. I'm assuming that your doctor is good at imparting information in a user friendly way.
I did that with my mother and she has been a lot more respectful of my limitations ever since.

I hope my comments are helpful to you in some way. Take care.


weemama - July 11

Hello Fantod: Thank you for the info. It helps alot.



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