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3 Replies
KarenCee - March 14

Just wondering who takes it, how much, and if it helps with the pain?


YNOT-ME - March 19

Hello Karen, I am a male at age 72. I have had Fibromyalgia for about 13 years. Recent year is has gotten a lot worse. My Doctor says that I am the worst Fibro patient he has.
Now to Tramadol, I take 6 a day, plus 12 Gabapentin, plus 3 Tylenol and an occasional Morphine. My story is long, and I'll any question I can.
The above meds, do help and I cant do without them, but it does not help entirely. I get many severe pain attacks.


KarenCee - March 20

What is the mg of the gabapentin? I'm taking 1500mg a day - 500 3X a day. The tramadol, I'm up to four (50 mg) for pain and it doesn't help. I'm thinking that during spring break (I teach) I'll go see my primary care doc. He says if the meds I'm on now stop working (they have) then he will have to send me to a rheumatologist. Sigh. Today, despite the sunshine and warmer temps, albeit upper 60's, I have hurt like a big dog. When it's bad like today, I'll take temazepam (Restoril) and sleep. That's about all I can do right now.

Thanks for the response Tony...all the best to you. I know how bad I feel, I can't imagine your pain.


YNOT-ME - March 20

The Gabapentin is 300mg, so I take the maximum allowed 3600mg, 4, three times a day. I take Tramadol/Tramacet, also referred to as; 37.5 mg tramadol hydrochloride and 325 mg paracetamol, 2, three times a day.
In the morning I take one Tylenol with Caffeine 500mg. Midday, I add one Tylenol or Codeine and in the evening one Tylenol.
Wow that sounds and is a lot, and sometimes I am shocked when I sort my meds in a small weekly med container. But Karen that is all we can do, just trying to keep it under control and hope and pray for a good day.
In the middle of the night I woke up in severe pain and got up and took one Morphine and one more Tylenol. I don't take Morphine very often, only when I really need it. Through the years I have gone through about every med imaginable and last year my Doctor recommended Morphine and I took about 3 a day. Until I ended up with horrible nightmares which Morphine can often do. I dumped them down the toilet and said no more. I then went on the series of meds as above.
Besides I take one Lorazepam 2mg at night to calm me down some and also some Melatonin for sleep.
And then my last one is one Pentalog to prevent stomach acid.
About 5 years ago when I was taking everything over the counter and lots of it, I developed a stomach ulcer mainly from Aspirin and its equivalents. It went through my stomach wall and artery and I bled out badly, received 7 units of blood and emergency surgery. So stay away from overuse of Acetylsalicylic Acid.
When I first went through all of this to find out what was happening, about 12 years ago, I was mighty frustrated with my Neurologist to whom my Doctor sent me. I told me to take and Aspirin for my pain. I live in BC, Canada and eventually I took myself on my own dollar to Johns Hopkins Hospital as they were doing research on Fibro. They were the ones who diagnosed me. They sent me home to have me ask my Doctor to put me through 4-5 test for different diseases which mimic Fibromyalgia.
Karen, even taking all those meds it is barely under control. I have some good days, but still get major pain attacks. One of the biggest things is the sensitivity of the skin and severe muscle pain. This past year I have much more problem with anything of a physical thing.
We have to keep going despite of this Karen, don't give up searching out what is best for you. It is not the same for all of us. I need to keep focused and although retired I do volunteer work to keep myself busy.
Just last week I started to go the pool and trying a dry sauna.
Talking about weather, we live with below zero temperatures in the winter. A few weeks ago we went to Mexico for a few weeks and my Doctor wanted me to track how I felt. I had some good days, but it really made no difference for me.
Head pulsating pain is another things that has hit me this past year.
I'll stop now Karen as I really don't want to discourage you.
I hope and pray that you will find some answers that will help you.



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