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Fenantyl patches
9 Replies
Noca - November 24

I see my pain clinic doctor tomorrow and Im wondering whether or not I should go on Fentanyl patches. Its one of the strongest pain killers on earth. A little as 1mg can kill someone...

The patches give 72 hour relief but come with a price on my health. They make me really tired, but could be countered with my Adderall/Ritalin.

I would still take 4mg Dilaudid pills for breakthru pain.

Ive tried Morphine, Dilaudid, Codiene, Tramadol, and Oxycodone as well as Nabilone. I cant seem to get relief overall. Pain is controlling my life.

Any advice anyone?


Canada17 - November 24

Have you considered that things you are eating/drinkin are making your pain worse?

Talk to you pain clinic doctor about an elimination diet of "trigger" foods for FM patients. After two weeks, you should notice a difference. I know I have.

Exercise is also very important, and while that may be difficult most days, you can do Tia Chi from a chair.

Try and keep a positive attitude because the more down on ourselves we get, the more the pain breaks through. It's a vicious cycle.


Noca - November 24

I already have eliminated bad foods from my diet. I mainly eat healthy foods with the exception of chips at night during my TV shows :)


Canada17 - November 24

That's great, but even "healthy" foods can cause problems. Potatoes are a trigger for me, and I love potatoes, but they make me worse, so they are out.

High acid fruits, like lemon, lime, grapefruit, strawberries, raspberries, kiwi, cranberries peaches, grapes can also cause problems. Chick peas, raw onion & garlic, tomatoes, eggs, vinegar, and milk products.

Yeast products, white sugar and white flour as well as preservatives and artificial colours and flavours.

I eliminated all of these items for two weeks. The first thing I tried back in my diet was potatoes and learned very quickly not to eat them.

I also found, though it wasn't listed, mushrooms cause me great abdominal discomfort because of the gas they produce when digested.

All of these are otherwise healthy foods. Just something to consider. : )


Noca - November 24

Im already picky as it is, if I eliminated all those foods I would starve to death.

And I got fentanyl patches today :) 25mcg/h ones with 9mgs x 3 of hydromorph-contin and 4mg x 4 of hydromorphone. Hopefully I can see some pain relief finally.


Canada17 - November 24

If you're concerned that Fentanyl will kill you or take a toll on your health, wouldn't eliminating problems foods be more pro-active than using a dangerous medication?

I don't want to eliminate these foods, but I have to in order to feel less pain. I am a picky eater too but that list was relatively short and there are so many other things that I can eat. Melons are supposed to be very good for us, and veggies too. Meats are good, and rye and pita breads are fine because they don't have yeast in them.

My mom is diabetic. She tells me that she has to eat lots of sugary foods "just in case" her body produces insulin that would cause her sugar levels to drop. Then she says she can't exercise because her sugar levels are too high and exercising with that high of sugar levels makes them go even higher.

Needless to say her health is extremely poor and she is on all kinds of medications to treat the problems that could be reduced if not eliminated by changing her diet and doing a little bit of exercise. She has ended up in the hospital on several occasions because of her dangerous sugar levels. It's gotten to the point that I don't stress myself out about her being in the hospital anymore because I know she isn't taking care of herself and it's not worth the toll it takes on my health.

And I'll be honest, since being diagnosed with FM I resent her for the fact that she doesn't do the things she needs to do to make herself better. I have a disease that isn't as life threatening as diabetes and I am doing everything in my power to take control of my FM so that it doesn't control me.

My point is that we can all make excuses for why we don't want to do things that can make us feel better and the easiest thing to do is take a pain killer to make it go away.

We need to learn that we are going to have to give up things we enjoy in order to feel better. It's not fair, but life isn't fair, and I don't know about you, but no one ever promised me it would be.

We have to make the best of what we're given, even if that means making sacrifices.


Noca - November 25

"the easiest thing to do is take a pain killer to make it go away. " That may be true but why make something more difficult than it has to be? However I agree with life style changes. A healthy life style in addition to medication is almost always better than medication alone.


Noca - December 19

So I put my last patch of this refill on last night. I go to phone the pharmacy for a refill and they say I am 5 days early, which I am NOT. I logged every patch I put on in 3 day intervals at 10:30pm on a spreed sheet on excell. I read my label on my box and it says "Dispense 9 patches every month, change patch every 72 hours". Last time I looked 30/9 DOES NOT EQUAL 3! They gave 9 patches for a month when it should be 10 patches in a month or more for those with 31 days.

I tried explaining this to my pharmacist and hes so thick skulled that it took me 10 minutes to get it through his head. Then he said he would call me back. I don't know what they expect me to do, just go through opioid withdrawal??

Why should I have to check every medication I have (10 or so) for errors that my stupid doctor couldn't see nor my incompetent pharmacy couldn't see?


Fantod - December 21

Noca - I know some people have a metabolism that simply chews through medication before it has a chance to really get established. There is a technical name for it but I am too tired to go trolling on the Net for it. Red-headed people are especially prone to this trait for some reason.

For example, I have big problems at the dentist. A filling can require 6 or more injections to make me comfortable. I come out looking like a heroin addict with track marks in my mouth... That seems to be the only time I have a problem other than just not tolerating medication period.

I am just wondering if anyone has explored that option with you. You take quite a cocktail of medication and it scares me to death just reading about it. A friend of mine was on Fentanyl patches for intractable back pain. She did not find them particularly effective and also complained about them creeping or not sticking period. Get some extra first aid tape if you do go that route. And, for God's sake, be careful!
Take care.


Noca - December 21

Fentanyl patches are great for me. My chronic nausea i suffered from for 3 years is almost gone, my pain is significantly lessened (though still there) and Im slowly weaning off Dilaudid. As for the patches, they are WAY better than they were a few years ago. They are 1/6 the size of before and they stick really well compared to the old ones.

Fantod, I think the patches your thinking about must be the old Durasegic ones from a few years ago.

I got the situation with my refill fixed. My pharmacist just simply redefined the definition of a "month" to 28 days instead of 30 which then allows me to get my last patch.



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