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Excruciating pain in neck and shoulders
5 Replies
cottongin - September 21

I am only 18 years old and have been diagnosed with fibromyalgia. I have had symptoms for the past 2 years. Only lately (the past year or so) my neck and shoulder area have been killing me. I've tried just about everything from chiropractors to physical therapy and to some medications. I'm not really sure what I can try next. I was on and off self medicating with opiates that i'd buy illicitly, and that's the only way i've survived to date. Now that I am not doing that the pain is such a bother i've become suicidal. It is so bad that it makes me terribly nauseous. I have also had TMJ problems for the past couple years and an xray shows a slipped disc and a chip out of the bone on one side of my jaw. The pain of that has been tuned down because of the severity of my neck/shoulder. I am completely at a loss, and I need some suggestions. I could not take any of the antidepressant drugs because i have bipolar disorder, so i tried lyrica and didn't react well to it. Has anyone heard of ketamine injections helping the pain? I recently read something about that. hell i don't know, suggest anything.


Noca - September 21

Go to a pain clinic and start opioid treatment legitimately. It is the only thing that keeps me sane with all of the pain I go through.


Fantod - September 21

TMJ can and will cause severe pain in the neck, shoulders and arms. It is a "perk" that is associated with Fibromyalgia (FMS). I've had TMJ for years. You should see a dentist who specializes in TMJ to be evaluated. You probably require a bite splint to use at night while you sleep to relax your jaw.

Also, you can have your doctor prescribe Ketoprofen which is a cream that has to made up by a compound pharamacy. Lidocaine can be added to it to help. The best way to use it is to apply it when your skin is warm after a hot shower. DO NOT layer it as it will not be effective. Use rubbing alcohol to clean your skin prior to use if a shower is not an option. You can put a layer of saran wrap over the affected area for NO more than 2 hours to help the cream absorb. Ketoprofen is a pretty good topical pain killer.

The longer a chronic pain cycle continues the harder it is to manage or stop. The sooner your TMJ issues are examined by a knowledgable dentist the better. Good luck and let us know how you are doing. Take care.


cottongin - September 21

Noca-- that is my next step— to go to a pain clinic.

Fantod-- I've been to a jaw specialist at UCSF and they were the ones that noticed the slipped disc and chip in the bone. They just gave me flexeril and said that it takes several years for the joint to readapt itself. My orthodontist has made thousands of different types of splints and what nots, nothing helps at all, in fact it just makes it worse.
I will look into the ketoprofen thank you for the suggestion


duhda75 - September 22

I just wanted to comment on your knowlegde about this condition. You seem very well educated about it. How long have you been dealing with it...if you don't mind me asking? I am fairly new to the forum and have only been diagsnosed since april of this year. But, I have been a sufferer for many years...prob 10 or so. But, I was never sure what I had because it is so involved. But, now that I have a diagnosis I am working w/ my Dr's to get pain mgmt and also to become better educated.


Fantod - September 22

duhda75 - I was diagnosed with Fibromyalgia (FMS) about 3 years ago. As it happens, my best friend who lives out of state was diagnosed with it a couple of years prior to me. I am fortunate to have had the benefit of good medical care including a nutritionist and alternative medicine. I had done quite a bit of reading about FMS prior to my own diagnosis so I could lend support to my girlfriend. I knew what was wrong when I went to see the rheumotologist. Since then, I've made it a point to learn whatever I can so I can help myself and others. Take care.



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