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Lactose Intolerance with Fibro?
18 Replies
Sonja44 - December 19

I became lactose intolerant within a month after my initial fibro symptoms...anyone else?


LesaBear - December 19

When I cut dairy out of my diet, my fibro symptoms decrease dramatically. I know everyone is different, but I am not surprised by your own findings.


APT - January 15

I never had a dairy problem before so it took me a while to realize that it was making me sick. I definitely think that FMS is tied to my lactose intolerance.


axxie - January 29

I've been lactose intolerant from the time my mom gave me milk, so I'm not sure about cutting it out if it helps. I have been told that lactose does increase the enzimes and that is what flares up the fibro, along with that is the weather. If you live in a cold climate you are more prone to flare ups.


marea g - February 24

I self diagnosed about 2 years ago after suffering horrendously with symptoms the doctors didn't have a clue about. Frustration led to online searching of my symptoms and finally I had an answer that I could tick all the boxes with. Fibromyalgia. I have been told that because I also take oroxin - no thyroid gland that calcium interfers with my uptake of other minerals etc and I have noticed that if I drink too much milk or eat lots of cheese my symptoms flair up big time as evidenced by a large vanilla thickshake which I really enjoyed haven't had one for months and 3 days later I have had the worst heel pain I have ever had. thanks to this forum I am able to add this to the ever increasing list of feel awful symptoms. A few sleepless nights - whats new and vicks vapour rub on my heel along with tiger balm and I'm just able to bear the pain. Will not be having dairy foods for a while but heres the real catch my mother suffers from osteoporosis and its a hereditary form so a catch 22 thing happening. Does anyone else have similar symptoms or dilemmas?


axxie - February 26

I stay away from dairy, even lactose milk, I now have to make my own food, no cans, not box of anything and I'm now cutting myself from juice and softdrinks. I guess I'll just have to drink water from now, I can still drink green tea that helps my fibro flare ups. I'm thinking of only eating salmon for lunch and dinner and some vegetable. No more carbohydrates, they make me flare up.


MathWhiz45 - March 6

I became lactose intolerant after I came down with Epstein Barr 15 yrs ago. I have had fibro and Chronic Fatigue ever since. Recently have become much more sensative to dairy and also to wheat gluten.


Sonja44 - March 6

Wow! Looks like I'm not alone on this either. I now use "Silk" soy milk...I really like it and it also comes in a very yummy chocolate (I treat myself with it on occasion).

I really try to avoid cream sauces, sour cream, cottage cheese, yogurt, etc. I have found a good soy yogurt I enjoy too, "Whole Soy". Soy products have come a long way and taste so much better than they use to years ago. I still can't stand soy cheese though (ick).
There are some soy "ice creams" too that are decent.

The switch has helped with many symptoms. I still crave real ice cream sometimes...but what cha gonna do?


karenbarragan62 - March 13

I became lactose intolerant since 2006; but was diagnosed with fibromyalgia in 2002. It was like my body turned on a switch.


jacksgramma - April 17

I too became lactose intolerant. I have terrible ibs when I eat most dairy products.




katiedid53 - May 13

I've always been lactose intolerant and allergic to dairy as well. When I indulge, my fibro flares something fierce.


christine68 - May 14

I'm so glad to know I'm not the only one. I was wondering if it was just a coincidence that I was also having trouble with dairy shortly after being diagnosed with fibro.


christine68 - May 17

I have started avoiding dairy. It's hard because I do like cereal in the morning and sugar free icecream. I have been almost completely sugar free for about 5 years after I connected it with my migraines. No more sugar, no more migraines. My GP told me to be careful with fat since my cholesterol is a little high. If I have to give up artificial sweeteners too I won't even have my one comfort drink: diet mountain dew. What's left?


Fantod - May 25

christine68 - As someone with FMS you definitely should not be consuming anything with an artifical sweetner. They have been found to raise the overall pain level in people with FMS. If you want an artifical sweetner for coffee, try Stevia which can be found in any good health food store.

And, for all of you lactose intolerant folks there is lactose free milk available. And an over the counter supplement to be used with the first bite of food containing lactose such as ice cream.

I'm not a big fan of soy products either. There are studies that say it causes inflammation and pain. I have two doctors who feel very strongly about that. I was using soy for awhile thinking it was better for me. Once I came off of it, my pain level did decrease a bit. Also soy contains an estrogen like substance that will accelerate development in young girls. I'd stay away from soy wherever possible. Take care.


happytoday - May 27

I was Lactose Intolerant as a baby and had to be fed goats milk, delivered by a local farmer. As I got older the Lactose Intolerance went away....But, strangely, it returned when I was diagnosed with Fibromyalgia 23 years ago ! This thread is interesting because so many of us Fibro folks seem to have it.


mimosette - July 14

I am lactose intolerant, and not a soy fan either.

I became a vegetarian 3 years ago, and was eating lots of soy. Then I became anemic , and low B12, so my dr said EAT MEAT.

I gradually added meat back in, and quit the soy.

Looking back, I felt much worse eating the "healthy tofu", LOL!


Amber54843 - July 30

Wow, thats wierd, I would have never thought that! I think I have been developing fibromyalgia for a couple years and the last 5 to 6 months it's just got me down and out! The last month or so, though, I have noticed that when I drink milk or eat any kind of dairy I get heart burn, upset stomach and gas. I would have never thought of that had I not seen that on here. I think i am gonna hold off on dairy for a while. Ugh I ate a bowl of ceareal this morning too! What was I thinking!?



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