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What I take for my fibromyalgia pain/my story
7 Replies
mysticraven33 - December 27

I had pain for 3 years but was diagnosed about a year and a half ago. I have a collection of weird symptoms that did not fit any connective tissue disease or any of the recognized inflammatory arthritis diseases.
My pain began in my ankles and feet; wrists and hands. The pain would consist of numbness and tingling and feeling like the circulation was being cut off. The stiffness was so deep, I couldn't tell if it was in the muscles or in the bones. Then I had deep stiffness in my elbow where I felt as if my arms were going to break when I bent them. I felt horrible fatigue at the onset of each of these symptoms. Then my knees would be so stiff and crack when climbing stairs, I had to crawl or get help getting up and downstairs. When getting into the car, I would take both hands and literally lift up the leg that was giving me the problem because I couldn't lift my leg on its own without excruciating pain!

Eventually, I began to experience actual redness and swelling of the fingers and toes. The bottom of my feet would start itching, get red, and so swollen that walking was unbearable. I began getting migraines that would produce muscle knots in the back of my head. I don't know why and I didn't do anything different,but around April 2010, my symptoms were slowly subsiding. This past summer was the first time in three years that I could get through a day without pain.

Then about the end of September it started again, and began with a stiff finger, fatigue, and a migraine. Very strange.

This is what I do for my symptoms: I take 60 mg of cymbalta ( I take it at night to avoid the dizziness and nausea and other side effects, and I wake refreshed), I take 2000mg of vitamin C daily, 500 mg of b-12 no more than once a week or every other week, and in the morning. When the fatigue, tightness, and migraine come around I take skelaxin at night (a muscle relaxer that I can take during the day without drowsiness)depending on the severity of the pain and/or swelling, I also take 3 ibuprofen daily. I also noticed that when I drink G2, my headaches seem to go away quicker and I feel more focused. I am not sure what the connection is there but hydration seems to help with fatigue. Again, this is only what I found that helps me, everyone should check with their doctor before taking vitamin supplements and over the counter meds, etc. Before I forget, I also take epsom salt baths when the fibro is flaring, afterwards I use castor oil and rub it on my feet, fingers, elbows, and knees when they are stiff or swollen and the next day I see improvement. I have slowly recognized my triggers and what helps me with get through the day with minimal pain.

 

axxie - December 27

mysticraven33, welcome to the board, gees, I am duped the pain and what you are feeling don't fit very well with fibro. But if you have been recognized I hope it was a rheumy. I would go again for a second opinion.

What you are describing, to me looks more like something else..... Maybe if you could elaborate on your pain it would help.

I will write later with more information about what fibro is.

 

INPAINDAILYJC - December 27

I wish Ibuprofen would help my pain!

I take
Ativan (1mg twice a day)
Ambien (every other day)
Celexa (60 mg once a day, and this helps more with the General Anxiety and Depression Disorder)
Morphine Sulfate XR (60 mg twice a day)

And I am still in a LOT Of pain and HORRIBLY fatigue. It has gotten so much worse lately! I am soo tired. I think if given the chance, I could sleep for a full day... Maybe I will try to fit that in my busy schedule.

What is G2? I have actually just started having migraine headaches. Not sure if they are from menopause or Fibro. Wonder if that would help.

Talk to you soon!

 

axxie - December 27

Hi again Inpadaindailyjc, gees, I think what you have is: Rheumatoid Arthritis is caused by a disorder of the body's immune system, the symptoms can also show up in other areas of the body. Along with the most common symptom……. (Inflamed joints that are swollen and tender and may also be warm, red, painful and difficult to move), Rheumatoid arthritis symptom also includes a general feeling of sickness, lethargy, loss of appetite, weight loss, depression and often a low-grade fever. Anemia, a drop in the number of red blood cells to below normal levels, is also a symptom in some cases. Rheumatoid nodules, lumps of tissue that form beneath the skin often over the elbow, feet and fingers, are another symptom of chronic Rheumatoid Arthritis.

Other possible rheumatoid arthritis symptom includes anemia, appetite loss, and the accumulation of fluid in the ankles or behind the knee. In children, symptoms may include shaking chills and a pink rash may follow the characteristic painful and swollen joints.
List of symptoms of Rheumatoid arthritis: The list of general symptoms mentioned in various sources for Rheumatoid arthritis includes:
• Joint pain
• Joint swelling
• Joint stiffness
• Morning joint stiffness
• Joint stiffness after inactivity
• Joint tenderness
• Warm joints
• Ankle arthritis
• Foot arthritis
• Finger arthritis
• Wrist arthritis
• Symmetrical joint pattern - both sides of the body afflicted.
• Morning stiffness
• Weight loss
• Fatigue
• Decreased appetite
• Occasional fever
• Bouts of mild fever
• Malaise
• Episodic flares with remissions
• Variable symptoms - different people experience different effects
• Skin bumps (rheumatoid nodules) - about 25% of cases get these
• Anemia
• Neck pain
• Dry eyes
• Dry mouth
• Tiredness
• Afternoon fatigue
• Afternoon malaise
Primary rheumatoid arthritis symptom includes-
• Tender, warm, swollen joints.
• Symmetrical pattern. For example, if one knee is affected, the other one is also.
• Joint inflammation often affecting the wrist and finger joints closest to the hand; other affected joints can include those of the neck, shoulders, elbows, hips, knees, ankles, and feet.
• Fatigue, occasional fever, a general sense of not feeling well (malaise).
• Pain and stiffness lasting for more than 30 minutes in the morning or after a long rest.
• Symptoms that can last for many years.
• Symptoms in other parts of the body besides the joints.
• Flu like symptoms.
• Fluid build up.
• Nodules or lumps are formed.
Joint symptoms of rheumatoid arthritis include:
• Painful, swollen, tender, stiff joints. The same joints on both sides of the body (symmetrical) are usually affected, especially the hands, wrists, elbows, feet knees, or neck.
• Morning stiffness. Joint stiffness may develop after long periods of sleeping or sitting and lasts at least 60 minutes and often up to several hours.
• Bumps (nodules). Rheumatoid nodules ranging in size from a pea to a mothball develop in nearly one-third of people who have rheumatoid arthritis. Nodules usually form over pressure points in the body such as the elbows, knuckles, spine, and lower leg bones.

 

mysticraven33 - December 27

Hi InpaindailyJC !

Rheumatoid arthritis is exactly what I thought too, unfortunately my sed rate was in the single digits, and the factor was negative. I do have anemia but it is not severe at all; and I was told that the blood count numbers would not account for the pain I was going through. I definetely have problems when I get stressed and when the weather changes. I went to 2 rheumy's and finally got fibro as a diagnosis. Fibro could very well be a precursor to an autoimmune disease, maybe that is why doctors and specialists cannot pinpoint the problem. Thank you for the information!

 

mysticraven33 - December 27

Hi Axxie!

The pain does change, what I described was the most severe pain. The pain that came around after my little respite was less intense. The pain I have now consists of muscles that feel as if they are tensing in my shoulders and neck. When I move my arms, the ache is almost like that pain you get in your head when you have an icecream headache; does that make sense? I am sorry, I try to explain the pain the best I can. I am so over having to take ibuprofen (which only takes the edge off), and having to treat migraines with prescription meds and muscle relaxers. At this point, I don't even want to go back to the rheumy or primary physician because I am so sick of telling them my pain story. I hope someone figures this fibromyalgia out soon!

 

axxie - December 28

INPAINDAILYJC, you should get a second blood count in 6 months and see if it changed? Just a tought. I'm sorry that you have to take ibuprofen will not help you, they won't even make a dent in your pain.


Ativan, maybe you should up to 2 x 2 a day
Abien should be taken everyday
Celexa, you can do two 30mg, maybe help you better
Morphine Sulfate XR, on a real bad day, you can take a second one, twelve hours later.

I only take Ralivia 100mg twice a day now, Celexa help at one point, then went on to Celexa, I faired better on 30mg, twice a day. As for ativan gees that dose can be uped, I think it would probably do wonders for you.

Yes, I do know what you mean about horrible fatigue, I'm in a sort of remission but it took a few years to get where I am now.

I was put on hormone cream and they up my thyroid medicaiton and gave me Ralivia for the pain and a mild sedative to sleep. I ran out of the sedative to sleep, but I must say I didn't take much of it.

I take liquid calcium once a day with my orange juice, one perified fish oil 1,000mg, one E vit 400UI and one PG Daily from Webber Health to keep my blood sugar and help with my weight management.

They all help, but the best one of all is the progesterone cream that I was prescribed, that one gave me back stenght and gave me sleep.

My new doctors tried the hormone cause I was not responding to anything else, so they thought I'd fair better with progesterone. They where right.

I think much clearer, I can do a full day, hard, but albeit, doing much better than prior to the cream. I eat better and have even started liking to cook again. My mind is much sharper and at that I lost a few pounds. Loosing a few pounds never hurt.

 

heatherinpain52 - December 29

im 52 in sept, iv suffered this ''thing'' since i can remember. diagnose by rheumatologist 15 yrs ago. (16 out of 18 tender points affected),iv gotten worse as older & im not coping, iv had enough!! the pain / aching in my body has had me suicidal, its a crule condidition, only exasibated by ''being a guine pig'' & on every medication known to man, (to no avail), nothing is worse than this suffering, EXCEPT, ''my mind dosnt want this, so while im restricted to even lifting a 2 lte bottle of milk'' my mind / brain torments me'' while im as lethargic as hell, i tell myself ''do something'' ''fight it''!!! but then the depresson sets in worse, because i 'cant fight it' & when iv done something on a ''good day'' which is rare, i suffer with the pain / aching / tiredness days after!!!, if i could sleep i would, contary to some saying 'exersice helps them' it ''worsens my condition'' iv seen more psychologists / psychatrists / counsellors, (im a qualified counsellor myself), than i can count, & im done! my only solice now is in hoping someone, somewhere can tell me their story & if at all they have tried a 'medication i havent' THAT WORKS! or anything they'v tried that i havent, this is a lonely crule condition, i wont! spend the second part of my life being a ''rag doll'' people say they feel like they'v been hit by a bus, my analagy is, my head is seperate from my body! because my ''body'' is suffering, my ''brain'' is positive, but body wont listen to brain. ''when is enough / ENOUGH!?''

 

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