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6 Replies
deigodirty1 - May 26

I sit at my desk and write about my whole body hurting,I hear people say it's not real it's in my head my neck, shoulders,ribs,pelvic area hurts,also my hip bones hurt, I don't sleep well. I can't sleep on my right side or my left side for long they hurt I'am tried but i can't sleep either. I lost my mother in november so is it all in my head or from depression or what the doctors just want to keep giving me more pills on top of more pills. I work 2nd shift but i did'nt go in today.


Pikespeak - May 27

Hi there! Sorry to hear you're in so much pain! FMS can be brought on by all kinds of things. I urge you to read some of the posts here, and read up on FMS. Fibromyalgia for Dummies is a good place to start. Sleep deprivation is something that triggers the pain, and it becomes a vicious cycle. Are you on a sleeping pill? I take Ambien and love it! Keep a journal of your diet/exercise/pain/meds. Stretching/walking seem to really help me. Massage and meditiation help too. Know that you aren't alone in this--we care!


Pikespeak - May 27

One more thing...research myofascial pain and trigger point therapy. Knowing about this type of massage has been most helpful!


deigodirty1 - May 28

are these syptoms close to lupus and how do you know what it is, how to they treat you the doctors talk to me like I'am crazy it's so upsetting. I just don't know what to do anymore I have to work but it's getting harder to pull a 40 hour week and then they make us work over time.


Fantod - May 28

deigodirty1 - I am going to give you a crash course on Fibromyalgia (FMS)and how to manage it.

FMS is a disorder of the central nervous system that causes widespread chronic pain. The mechanism that causes it is not understood. It can be triggered in some people by high stress levels, an accident, surgery, childbirth and a host of other things. There is no cure but it can be managed with certain classes of prescribed medication and/or some homeopathic remedies. Generally speaking, OTC medication such as Aleve or Tylenol is not effective. Taking OTC pain medication will only damage your liver and stomach over time.

FMS is recognised by the World Health Organization (WHO, the Centers for Disease Control and the National Arthitis Foundation. It is not a figment of our collective imaginations. You are not crazy, a hypochondriac or neurotic.

You need to see a rheumotologist for a firm diagnosis of FMS. Go online or call your local hospital and locate the physician referral service. You should be able to find a specialist who has an interest in FMS. Get your medical records together including any recent tests to save time and money. You can also go online to the National Fibromyalgia Association website and see a list of fibro-friendly healthcare providers in your state.

Go online to Amazon and order "Fibromyalgia for Dummines." It has very good, basic information on managing this complex syndrome. Knowledge with action is power.

I saw another post under "General Discussion" where you said that you can not get any sleep medication from your physicians. That is ridiculous. A crucial part of treating FMS is sleep medication. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the day's activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. As an interim solution, you could try Calms Forte or Melatonin which are both homeopathic remedies for sleep. You can find them at the Vitamin Shoppe or a decent healthfood store. Make sure that you understand how to use them and any risks associated with using these remedies. I use Calms Forte every night and it helps alot. I have also used Melatonin with good results.

There are three primary medications used to treat FMS: Lyrica, Cymbalta and Savella. Amitriptyline is usually prescribed for sleep issues associated with FMS. None of these medications are the perfect solution by a long shot. It usually takes time and a lot of tinkering to find the right combination of medications for anyone who has FMS. The key thing to remember is that the longer a chronic pain cycle continues, the harder it becomes to manage or stop. You need to work closely with your doctor/s to figure out what works best and stay on that regimen. We all get fed up taking fist fulls of pills but generally I find that I have a better quality of life with medication. Some people prefer to go the homeopathic route. Personally, I use a mix of conventional and natural medicine to manage my symptoms.

Honestly, I do think that the loss of your mother (I'm so sorry) has made things much worse. Depression amplifies pain quite a bit. I'd like to gently suggest that you consider counseling to get through this difficult time and help you manage your illness in general. Extra support from an unbiased person can be so helpful. I've been there and done that and would do it again if needed.

You may have bursitis in your hips which would account for the pain when you sleep on them. This is a "perk" associated with FMS. I have it in both hips and shoulders and it can be a real nusiance. Fresh pineapple contains an enzyme that breaks down bursitis. But, it is very important that you be evaluated for it by an orthopedist. Bursitis is very persistent even with proper treatment.

As far as diet goes, stay away from anything containing an artifical sweetner including Splenda. Deep fried foods, lunchmeat, bacon and red wine contain nitrates. All of these items will make your pain levels worse.

The difference between Lupus and Fibromyalgia is pretty simple. Lupus causes widespread inflammation throughout the body. Fibromyalgia does not. As I said before, FMS is a disorder of the central nervous system.

I hope that some of my comments are helpful to you. We have all had bad experiences with doctors. They are your employee and you can fire them at any time. Fibromyalgia patients must be their own best advocate when it comes to getting proper care for this syndrome. I find it emotionally helpful to write a letter to my insurance company when I am mistreated by a physician. It gives me closure and them a lot of explaining to do. Good luck and take care.


deigodirty1 - May 29

FanTod, Thank you for all that you've said and yes you have to be your own advocate I was My mother's for so many years I have to learn to speak for myself. really needed that pep talk and will call the doctor tuesday I'll let you know what happens. Iwill ask aboutsupport groups around here in rockford,il


Fantod - May 30

I used Google and typed in "Fibromyalgia Support Group Rockford IL" and came up with a bunch of different stuff that might be helpful. Keep in touch and let us know how you are doing.



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