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Swelling in hands
12 Replies
karen Davidson - July 18

Does anyone else have swelling in their hands so much so that you can't make a fist. I was diagnosed with fibromyalgia about a month ago. I have never experience anything like it. From the aches all over my body to my legs moving at night so sleep is impossible. I was prescribed Lyrica but it caused my feet and legs to swell. But my hands hurt and stay swollen even after going off medicine..

 

BrittRae - August 1

I understand what you are talking about. My hands and feet swell a lot to. I was also just diagnosed w/ FMS a few months ago. Maybe we should talk more.

 

wendyp - August 1

The first sign that I am getting a flare up is when my hands swell a bit and have pain in my arms. When my hands swell they don't feel like they are attached to my body. I lose some function in them and it is difficult to make a fist. I haven't heard what to do from my doctor. I am finally going to see a pain specialist after being diagnosed over two years ago. I will repost if she tells me how to handle the situation.

 

JERI817 - August 14

MY RIGHT HAND WAS SWELLING AND BECOMING PAINFUL. I WAS TESTED FOR CARPAL TUNNEL WHICH WAS NEGATIVE. I HAD AN XRAY WHICH SHOWED CALCIFIC DENSITIES, GOING TO A HAND SPECIALIST FOR FURTHER DIAGNOSIS AND TREATMENT. THAT IS YOUR BEST BET. ORIGINALLY, IT WAS HAND PAIN BACK IN 1996 THAT MADE ME THINK I HAD ARTHRITIS. THAT IS WHEN I WAS FORMALLY DIAGNOSED. SUFFERED A WHIPLASH BACK IN LATE 70'S. STARTED HAVING MIGRAINES THE NEXT YEAR AND NOW HAVE DEGENERATIVE DISC DISEASE. AND SO IT GOES, ONE THING CASCADING INTO ANOTHER AND SO ON. STILL HAVE NOT FOUND ADEQUATE HELP. GOOD LUCK TO YOU, I KNOW HOW FRUSTRATING AND DEVASTATING THIS WHOLE THING IS, ESPECIALLY WITH NO END IN SIGHT.
JERI

 

JACKIE68 - August 16

HI
YES I GET THAT TOO. MY FINGERS LOOK LIKE FAT SAUSAGES AND THE SKIN FEELS KILE IT COULD BURST. I WAKE UP IN THE NIGHT WITH THEM BEEN LIKE IT . I HAVE TO BE HONEST NOTHING SEEMS TO SORT IT OU THOUGH HAVE HAD IT FOR YEARS . ALL DOC SAYS IT IS THE FIBRO.
TAKE CARE

 

Palerider - September 13

I know FM is lurking when I wake up in the morning and my hands are swollen, itchy and painful. I will get canker sores in my mouth and nose so bad, I can't eat and my nose burns. I take acylovir once a day just to keep the canker sores at bay. One thing I have found that helps with the swollen hands: Before I get out of bed, I roll over on my back, raise my hands in the air, shake then pat them lightly. This gets the circulation going. Then, I get into a hot bath and soak my body and all of it's pain. This seems to help. Then I fumble for the motrin bottle and down my first of 800mg. for the day.

 

Robin1237 - September 20

I think we all have Lyme disease. Go to www.lymenet.org/FlashDiscussion/MedicalQuestions and read up on what everyone is discussing there. Then you can find a doctor to test and treat for the Lyme bacteria. Generally we get it from being bitten by infected ticks, but can also get it from other insects as well as human transmission.

 

Jill00 - October 14

Hi,

I have had fibro for over 25 years, bu recently my hands have started hurting so badly I can't use them some days. ..but no swelling, just pain. Always worse in the a.m.. Tested neg. for rheumatoid, Lupus, Lyme, and Carpel tunnel, so have to believe it is related to fibro. I wear the splint type braces at night, which offers some relief, but still annoying. I continue my exercise routines, including weights, and also running. I just try to stretch more and take a day off when it gets really bad. I think some of us have higher pain tolerance, too and guess I am willing to put up with more of it because I sure as heck am not going to let it control my life!

 

Jill00 - October 14

Hi,

I have had fibro for over 25 years, but recently my hands have started hurting so badly I can't use them some days. ..but no swelling, just pain. Always worse in the a.m.. Tested neg. for rheumatoid, Lupus, Lyme, and Carpel tunnel, so have to believe it is related to fibro. I wear the splint type braces at night, which offers some relief, but still annoying. I continue my exercise routines, including weights, and also running. I just try to stretch more and take a day off when it gets really bad. I think some of us have higher pain tolerance, too and guess I am willing to put up with more of it because I sure as heck am not going to let it control my life!

 

gemcat - January 14

Just because you tested negative for RA does not mean that you do not have it, there is a version called sero negative which means that there are no rheumatoid factors in your blood. Ask them to x-ray your hands and this will show any damage to indicate its presence. Fybro was only made a separate syndrome in 1990, and was often diagnosed as such when it isn't. If you have not seen a rheumatologist for a while then I suggest that you do so to confirm the diagnosis and talk about up-to-date methods. I hope that whoever it is is an improvement on the idiot I have just seen who pontificated on coping strategies when I have had the damn thing for 20 odd years running alongside RA sero -ive! But you may find amitriptyline helpful if you haven't already tried it, it helps pain from many conditions.

 

conniehurts - April 22

This is supposed to be a place to get support not for one person to pontificate about how she isn't going to let it run her life. That doesn't help anyone!
As for the swelling hands mine too have begun swelling and I find that wearing those fingerless gloves that are for doing needle work helps. I also use a product called "TWO OLD GOATS arthritis and fibromyalgia lotion" which can be found at twooldgoats.com It is supposed to help with fibro and arthritis. It isn't a total miracle but it does really offer some relief! I use it on my shoulders as well as my hands with pretty good results. With exrays I was diagnosed with osteoarthritis (to go with everything else lol) but I have my doubts. I have a hard time trusting any dr and their diagnosis on most anything after fighting for 40 years with pain issues. I was told for 15 yrs while suffering with severe abdominal pain that I just wanted drugs or attention, I hated being a woman, it was all in my head and many other stupid things only to find out that I had SEVERE endometriosis. I often thought I just had a low threshold of pain until after that dr did my hysterectomy he asked me how in the world I tolerated the terrible pain I must have been in and that it was the worst he had ever seen! Don't let anyone tell you that you are just being weak, that your pain isn't as bad as you think etc because its your pain, not theirs!!! They aren't in your body and can never know just what you feel any more than a man can say he understands the pain of childbirth!! All we can do is hang on and keep hunting for the elusive relief. That relief isn't going to happen the same way for everyone, if it happens at all. Peace Connie

 

conniehurts - April 22

I forgot to mention that if you try the gloves do not wear them while sleeping because your hands could swell more and cut off circulation. I rotate them with nothing or a stiff wrist brace to get the maximum benefit for myself.

 

gemcat - April 22

Sorry to hear that you have had so many problems. Mine go back to a refusal by the GPs to acknowledge that I had hypothyroidism which causes RA sero-ive and fibromyalgia. You have to find your own support. Take Vit B supplements to help you. Drink more as that will help with water retention and diet! Avoid meat where possible, especially processed meat. There are other kinds of supplements that may or may not help you personally so all I can suggest is that you keep trying ones until you find something of assistance. With your hands, try physio, massage will help.

 

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