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Man Suffering Recent Burning & Urinery Problems: Need Advice
6 Replies
talk17 - September 11

Long story:

OK, I've been to 3 different dr.'s since the time I hit 28 years old. I'm now 40. My symptoms started back in 1998 with what was diagnosed as IBS and lactose intolerance. A couple of years later, I experienced burning in areas of my body. Sometimes I'm in a cold sweat. I feel like I have a fever, but I don't.

In 2005 I started seeing a new dr. with pain with urination. They didn't do any extensive tests and gave me the rush out (all in my head BS).

Now, I'm with a new Dr. and again, I found someone who doesn't really support the syndrome. However, I do find her more caring and able to really look for a cause.

Recent Symptoms:

I went to her last Wednesday with burning in my feet rectum, scrotum and penis. Urinary problems sometimes feeling like I have to go a lot and other times actually having to go a lot. I'm also having the fever symptoms (but no fever present).

So, I got the 40 year old initiation with the prostate test. Now I'm truly old!!! Her thought, prostatitis. I also have a sinus infection. Treatment, one month of CIPRO. It seems better, then it flares up again.

My previous visit to the Dr. I stated that I had a lot of stress & anxiety (over the winter approaching Spring). Anxiety seems to be a common problem w/ me. I was prescribed Zoloft, filled it but did not take it. I'm a bit iffy on the Zoloft.

Anyway, I know that this syndrome affects more women than men. I would like to know if I have Fibro or not. I need an explanation for these symptoms. The Dr's look at me like a hypochondriac. I am NOT a hypo.

Anyone w/ these symptoms?
Any opinions on the Zoloft?
Anyone been diagnosed by a regular MD?

I found ads for Chiropractic Dr's that treat the syndrome, but they seem like a late night ad for a bad lawyer. I don't want to go that route.

Sorry for the long post, but I Really need some advice.

 

Stacey373 - September 11

Hi Talk17 - it sounds like you are really having a rough time. But I'm not too sure if you are dealing with Fibro.

The major symptoms are - chronic pain for at least 3 months (most of us have had it for YEARS), pain in all 4 quadrants of the body (upper, lower, right & left side) It doesn't have to be at the same time, but it shows up anywhere on the body for no apparent reason. Extreme fatigue and not being able to sleep without medication. Your body aching like you have the flu.... and that's all I can think of right now!

Headaches and migraines are common with this illness. When I first looked up Fibro symptoms, it said that most people will initially go to a doctor because of this. IBS is definitely a common problem for Fibro people too.

The doctor can do a "Trigger Point test" on you, which is putting slight pressure and having pain in most of the 18 Trigger point spots. You can also get a blood test to check your Vitamin D levels. Most Fibro sufferers are Vitamin D deficient.

Other than that, there is no real test to diagnose Fibromyalgia. Fibro can mimic alot of other diseases and the doctor will usually rule out everything else before diagnosing Fibro. It seems to be a "last resort" diagnosis.

The sweating and clamminess could be caused by medication you're taking. I know I just recently starting taking a new pain med and I noticed it causes me to break out in a sweat like a hot flash or like I have a fever.

Whatever you are dealing with, I know how it feels for the doctors, family, and friends to all think that you are a hypochondriac and that it's all in your head. I spent years trying to get someone to listen to me and actually help me. I finally found a small town Nurse Practitioner who I went to originally for constant headaches and migraines. (didn't want to tell her all my other problems for fear she would think I was a hypochondriac...I figured I would deal with one problem at a time) But after researching Fibro, I took my information to her and was then diagnosed. Normally you should see a rheumatologist to get a diagnosis of Fibro...but I have never seen one and my doctor/NP treats me for this just fine.

This illness does affect more women than men, but that doesn't mean men don't get it too. My advice is to not give up. If you truly think there is something wrong with you...don't stop going to doctors until someone LISTENS to you. If one doctor doesn't treat you right, go on to another one, and keep going until you find the "right" one. Not too many doctors know a whole lot about Fibro and there are many who don't even believe that it's real.

I suggest you research the symptoms and all the "Associated Conditions" you can have that go along with this illness (like IBS). I originally looked on WebMD, but this site also has alot of good information. If you really think you have this, print out the information or write it all down and then take it in to your doctor. That's what I did, and sometimes I think doctors need to see stuff in "black and white" to finally pay attention.

As for Zoloft, I took that many years ago but it didn't help me. I've tried alot of anti-depressants and Lexapro works best for me. Cymbalta is usually the one they put fibro people on because it's supposed to help with the pain too. I tried it, but it made me feel like I was having a heart attack and I immediately quit taking it.

Over the counter medications DON'T work for Fibro people. The normal meds for fibro are an anti-depressant, sleeping meds, pain pills, and Vitamins. Neurontin/Gabapentin is also usually prescribed as a nerve blocker and muscle relaxers help too. I take Lexapro, Norco and now also Methadone for pain, Flexeril for a muscle relaxer, a prescription Vitamin D that I take once a week, Vitamin B Complex, and Magnesium Oxide that I take daily. I do take an OTC sleeping pill sometimes...otherwise I take the muscle relaxers to sleep along with a shot of Nyquil cough (the cough formula doesn't have Tylenol it it)

This illness can be extremely frustrating. But once you do find the "right" combination of medications, you should feel alot better. I still have problems and I definitely have my share of bad days with this...but I feel so much better now than I ever did before. I've learned to appreciate my good days and I try to stay positive on my bad days.

I hope this information helps...let me know how you are doing. Take Care, Stacey :o)

 

talk17 - September 17

Stacy,

I want to thank you for your long reply. After a week and a half of cipro, my urinary problem is going away. I still have 3 weeks to go on cipro and a doc appointment on Tuesday.

As far as the pain, I have it. I have a high tolerance for pain and am simply used to it. I remember back to my early 20's feeling pain in my back and neck a lot. Not a day goes by where I don't have some kind of pain.

The pain and the aches (like flu), however, are never the worse symptoms. It's when I get burning parts of the body, the increased urination, the IBS, the post nasal drip, etc. Many of the symptoms that I get mimic major diseases. So I go to the doc and they look at me like I have monkey's on my arms.

Migraines, yes I've had them. With the aura many times.

Change of season seems to trigger my symptoms. My aunt and my Mother have had Fibro mentioned to them as a possible disease that they may have.

Anyways, I was on 3 month blood tests for High Cholesteral, Tri's and blood pressure. I'm on HCZT, Simvistatin & Tricor. I also take a Centrum Cardio everyday.

Last spring the major symptom that I had was Anxiety (which my Mother has). I have anxiety all of the time, but this was different. I would catch myself in VERY irrational thought. That's when I asked for help and I was prescribed the Zoloft. My Boss talked me out of taking it stating that if work was too stressful, take some time away. That helped, so I left the Zoloft in the medicine cabinet.

Anyways, my major problems now are sinus drainage and burning, hot spots in the body.

Thanks again for your help.

 

Stacey373 - September 17

It's very possible that you have Fibro, especially if your Mom and Aunt have it....it can be hereditary.

With Fibro, usually the pain is the biggest problem. But if you are anything like my husband, you push yourself through it and don't pay any attention to the pain! Sometimes that's not always a good thing!

I know with me...I can deal with all the aches and pains (and whatever else) in my body...it's the headaches and migraines that I can't handle at all.

As for the burning spots...I don't really have that. The only time I feel like that is when it's that "time of the month" and my entire stomach feels like a thousand burning needles are being stuck into it. If that's what you are feeling all the time? I can't imagine having to deal with it 24/7...I only have it for a few days a month and I can barely handle it for that long! I've always figured mine was from severe scar tissue from having 3 C-sections. but I know that as my Fibro gets worse, so does this 'burning" feeling.

Having these kinds of problems can cause anxiety and depression. If you're not taking the anti-depressant your doctor gave you...I highly suggest you start taking it. If it doesn't help you or you don't like it...ask to try something else. you can also talk to your doctor about taking Xanax for the anxiety attacks...that works pretty good. (and might also help with sleeping!)

Obviously, with the other stuff...if the Cipro is working, then you must have some sort of infection.

As I said before....I know how it feels to have the doctors think you're completely crazy! Don't Give Up! Keep going until you find a doctor that will listen to you and try to help you. You may be dealing with several different problems. I would even start off by telling a doctor that you are worried they might think you're a hypochondriac, but here's your symptoms....ALL of them! maybe even start with the Fibro stuff and get the meds you need for that and then work on the sinus problems and everything else.

I don't know...But eventually you HAVE to find a doctor who will help you. Please let me know how you're doing....Stacey :o)

 

Fantod - September 18

talk17 - You have a lot of things going on but I am not convinced that you may have Fibromyalgia (FMS). Only 20% of men are diagnosed with this syndrome and I don't think that your symptoms fit the profile.

However, you need to see an ENT for your chronic sinus infection. Repeated doses of antibiotics are going to leave you wide open for other problems. Do you see a dentist on a regular basis for dental care? Neglected dental issues can cause chronic problems in other areas.

I'd also suggest a urologist for the urinary tract issues. And finally, a neurologist for the buring sensations. You are not going to get the type of specialized care that it sounds like you need from a regular MD.

Call your local hospital and ask them for the physician referral service. They can give you some recommendations to to the specialists I have suggested. Get copies of your medical records and any tests (bloodwork etc) you may have had done recently to save time and money. Make the appointments and see if one of these specialists can get you sorted out. Perhaps your anxiety will subside if your health issues are being managed properly. If not, I'd like to gently suggest that you consider counseling as well.

And finally, it is my personal opinion that chiropracters are not the best choice to manage Fibromyalgia. I use one myself to alleviate some discomfort for orthopedic issues but to treat a syndrome like FMS, absolutely not. A rheumotologist is the specialist best suited to manage FMS. Take care and good luck.

 

paulb6364 - December 22

Fibromyalgia is a crazy thing to have. Sometimes when I have a bad case of heartburn, it wil burn when I urinate. I'm losing hair because of it as well. I just started taking a low dose of Zanax .05mg. It's working well for the anxiety.

Some Doctors will treat you for emotional issues, rather than other possiblities.

Feel free to respond. I am 46, so I get what you're saying.

 

axxie - December 27

Hi Talk17,

What I found with men, is they never drink enough water and do drink beer, and eat spicy food, then all of sudden, help I have these problems.

I am sure that you do not have fibromyalgia you don't have any of the symptoms. What you have is the begining of diabetes type II, gout, and eating too many spicy food and drinking beer, you probably also have gained weight.

If not of the above, then you have a bigger problem with your nerve pain.

Why don't you do yourself a favor, stop drinking coffee, teas, red bull, and all those cafeinated drinks, and start loading up in water, I bet you you will find that the burning will go away, as for your private parts, again drink loads of water and change your eating habits to wholesome foods, more fruits, no fats, no fried foods.

You do not have fibromyalgia, please see a doctor and specifically ask about a diabetes test, and gout test....

 

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