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lisaacosta
2 Replies
lisaacosta - September 25

im been diagnois with lupus and now with fibro. its taking a toll on me its been afecting my job i use to be able to work 40 hours a week and now down to at 30 hours. my rhemonologist is referring me to a pain managment doctor because ive been on lyrica at a dosage of 300 mg a day and cymbalta and nothing seems to help my tiredness and pain thru my body. anyone out there that can help me..

 

Fantod - September 25

Hello Lisacosta and welcome to the group. There is a lot of good information on this site about Fibromyalgia (FMS). You must be feeling so over whelmed right now - my heart goes out to you. I have a couple of thoughts which I want to share with you.

FMS is a disorder of the central nervous system which causes chronic widespread pain. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescription medication.

One of the "perks" of FMS is nonrestorative sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. Poor sleep means higher levels of pain. This is a vicious circle that everyone with FMS experiences.

Since you were just diagnosed with FMS, you should have been given medication to help with your sleep issues. Amitriptyline is usually prescribed. Getting restorative sleep is a crucial part of treating FMS. It is going to take some time to figure out the right medication and dose to get you feeling more rested and generally nore comfortable. If you are still having problems with exhaustion (and we all do), you might want to consider a sleep study to see if you have apnea as well. We have a few people on the board with FMS and sleep apnea.

Diet is very important with FMS. No deep fried foods, lunchmeat (nitrates) or artifical sweetners (including Splenda). All of these itens will make your pain level worse. If you need a sweetner for coffee, try Truvia which is made from the stevia plant and is not toxic. You'll find it in the grocery store right along side the other sweetners.

Try to eat more often during the day to keep your blood sugar level from plummeting. High protien small meals should help.

I think that your doctor is correct in sending you to a pain specialist. I have a rheumotologist and a pain specialist who work together. If after giving the pain specialist a chance to work his magic you are still not satisfied, there are a couple of options. Get another opinion and take your records with you including copies of any recent blood work. You can call your local hospital physician referral service and ask them for a recommendation to a rheumotologist/pain specialist with an interest in FMS. You can also go online to the National Fibromyalgia Association website and register. Then you will be able to see fibro-friendly
doctors in your area.

One of the foremost experts on FMS is Dr. Jacob Teitlebaum. He has a couple of books on the subject which you can order from Amazon or your local bookstore. Some people on this board are following his common sense regimen and having good results. In a nutshell, the better educated you are about FMS, the more in control you will feel. Take some time to read all of the information in the blue boxes on the left hand side of this page. This is the most comphrensive site on Fibromyalgia that I have ever seen. You will have to be your own best advocate to get results. There are still a lot of healthcare professionals that either do nothing or the bare minimum to treat FMS. Knowledge is power.

Take care and let us know if there are any other questions or concerns that we can help you with.
God Bless.

 

lisaacosta - September 25

thank you for responding. iam overwhelm with this fibro, and lupus but my lupus been steady with the meds im raking for it, im on 300mg of lyrica aday and cymbalta also but lately it doesnt seem to help with the pain. the headaches are daily so i have to take some vicodin to help cuz over the counters meds dont help

 

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