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just to talk to someone who understands
8 Replies
loopy35 - February 16

hello im new to this site and i have read a few messages on here and i can relate to most of them, the only thing i have not read would be having pins and needles or tingling in the face,has anyone else experienced this problem?
i get stabbing pains all over my body and the ones in my head hurt the most, im tired alot and have no energy which makes me feel worse. no one understands me when i say i dont feel well.i know my body and i know its not legs get restless most night and my body feels like its burning from the inside out,and dizziness is horrible i dont know how much more i can put up with:(


mshouleruk - February 16

What your describing sounds very much like 'Peripheral Neuropathy'.

So a few questions, do you know if your blood sugar levels are okai? If your blood sugar levels are fine I would definitely start looking into Lyme Disease, of which very often goes undiagnosed by medical doctors and mimics early stages of Peripheral Neuropathy.

In terms of self-treatment if you've had enough of doctors. B-Vitamins are vital for maintaining healthy nerves. With the stress of modern day living, chronic pain and poor diet, the bodies reserves of b-vitamins become seriously diminished in people with Fibromyalgia. For that reason it's a very good reason to supplement.

If you think you have Lyme Disease, you need a specific treatment plan (natural or pharmaceutical antibotics) to knock those bugs out, otherwise the Lyme Disease will keep digging away at your body and you will only continue to feel worse.

Although most doctor's are overrated, a correct diagnose with something like Lyme Disease can be life saving.


mshouleruk - February 16

Few patient stories regarding Lyme Disease and Neuropathy:


loopy35 - February 17

hello mshouleruk, thankyou for taking the time to reply to my post, i have no idea if my blood sugar levels are ok, i have had a blood text and the results came back clear and now my doctor is sending me for a mri scan on my brain he then said if that comes back ok he will refer me to a specailist of the centrel nurvoius system. i have never heard of peripheral neuropathy but i will look in to that and mension it to my doctor, thanks again for replying


January - February 17

Hi loopy - are you taking any drugs, and have you read up on possible side effects?


mshouleruk - February 17

Since you've had a recent blood test, and your results came back fine, thankfully we can rule out blood sugar problems. A blood test however cannot completely rule out Lyme Disease, so this is still a possiblity.

Let me just paste this article below taken from AllExperts. See how many of the symptoms you match and how much you can relate to the description of Lyme Disease.


Disease/Do I have Lymes Disease?

The first thing you need to do is find a Lyme specialist because the tests for Lyme are very unreliable. You can have a flaming case of it and still test negative. Doctors (other than Lyme specialists) are unaware of this fact and/or refuse to believe it. Lyme specialists will treat you regardless of the test results.

There is also the issue of the co-infections that you must be tested for. They share many of Lyme's symtpoms but they don't all respond to the same antibiotics. It takes a Lyme specialist to test for, diagnose and treat these co-infections, some of which are bacterial and some are parasitic.

To find a Lyme specialist, go to and register. Click on Flash Discussion and then on Seeking A Doctor. Post there with your city and state and someone will email you privately. There is a policy not to post doctors' names on the site due to privacy issues. You will see LLMD a lot on the site and that stands for Lyme-literate MD. They are few and far between so be prepared to travel if you find one. I drive 2 1/2 hours to see my doctor and don’t know where I would be without him. Since you are in NY and there is a lot of Lyme in the New England states, you may find one closer to you.

Good Luck and let me know if you need anyting else.

Here's the list:

Musculoskeletal System:

Joint pain or swelling or tenderness
Stiffness of joints, back, neck
Muscle pain or cramps
Bone pain
Heavy feeling in one or more limbs

Neurological System:

Tremors or unexplained shaking (especially at night)
Burning or stabbing sensations in the body
Weakness or partial paralysis/stroke-like symptoms
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness
Sudden jerking of fingers or entire limbs
Pain in spinal column

General Well-being:

Unexplained weight gain, loss
Extreme fatigue
Swollen glands
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well. (If it was mild, you may not even recall this.)


Double, blurry or dim vision
Increased floating spots
Pain in/behind eyes, or swelling around eyes
Over sensitivity to light
Flashing lights
Optic neuritis


Decreased hearing in one or both ears
Buzzing or clicking noises in ears
Pain in ears or sound sensitivity
Ringing in one or both ears
Pressure or feeling of fullness in ears

Digestive and Excretory Systems:

Diarrhea, irritable bowel
Irritable bladder (trouble starting, stopping)
Frequent urination that is not normal
Upset stomach (nausea or pain)

Respiratory and Circulatory Systems:

Shortness of breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Heart blockage

Psychological well-being:

Mood swings, irritability, rage
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Overemotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep

Mental Capability:

Memory loss (short or long term)
Confusion, difficulty in thinking, brain fog
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks

Head, Face, Neck:

Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
TMJ – sudden onset, jaw spasms
Sore throat, hoarseness
Loss of sense of taste
Difficulty swallowing, throat spasms

Females only:
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge

Males only:
Testicular or pelvic pain


1. You do not have to recall a bite or have gotten the target rash to have Lyme disease. Less than 50% of people with Lyme do.

2. The tick that carries Lyme is as small as the period at the end of this sentence and their nymphs are nearly microscopic. Ticks are on the move at 35º and above. It’s a year-round problem.

3. You do not have to experience ALL of these symptoms to have Lyme disease. It is also typical for many of these symptoms to come and go or occur once and never occur again.

4. It is possible to have Lyme disease and have a negative test result. After Lyme bacteria enter your system, it tricks your immune system into no longer producing antibodies to fight it, hence, a negative test result. There are also other numerous factors that can affect the results. (Google: Lyme disease negative test results.)

5. Lyme bacteria hide in the spinal fluid, bone, tendons, muscle and nerve fibers and tissues and in many cases are not “floating” around in the bloodstream where they can be picked up on a test. It is a cousin to the syphilis bacteria and very difficult to eradicate.

6. It takes a LYME SPECIALIST to diagnose, test for and treat Lyme disease and any of its associated co-infections. To find one go to
or Lyme specialists do not require a referral.

NOTE: Everyone may have symptoms that appear on this list; however, it does not mean he/she has Lyme disease. If one has numerous symptoms on this list and no other explanation for them, consider Lyme.



Pinxie - February 18

Hi Loopy. When you the have pins and needles in your face, are in you pain at the same time? I was just wondering as pain can cause people to shallow breath and not to take deep breaths so that they don't get their full amount of oxygen. What oxygen they do get is then diverted to more important organs. This can sometimes cause a sensation of tingling in the face and dizziness. I'm not trying to diagnose here, it's just a thought.



loopy35 - February 18

hi pinxie i am in pain most of the time i have pins and needles, i've had the odd time that im not in pain but thats not often. i have spoken to my doctor and he had diven me some meds to tske for the dizziness and my mri is coming up soon aswell so i should get some answers then:)


January - February 18

Hi loopy. I thought pinxie made a really good point about remembering to breathe! (thanks, pinxie, I just took a few deep beaths!) Good luck with your MRI, loopy, hope you get some answers and feel better!



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