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If I can get well, why can't others!
16 Replies
patriciacnc - March 12

After being totally disabled with FMS, I have been out of pain and off meds for 13 years. I did it by balancing my hormones, initially balancing brain chemistry, cleaning up my diet, and clearing some toxins, which is likely something you won't hear in your doctor’s offices. What a happy surprise to experience recovery! I have been studying and working the past 13 years to help others in their recoveries. I want people to get well.

Out of a passion to help others get well, I have written Reversing Chronic Disease: A
Journey Back to Health, which is endorsed by Dr. Jacob Teitelbaum and 2 other
MDs. Don’t accept the word "incurable." Keep fighting for restored health. If I can get well, why can't others...people like you. I believe something better is out there with your name on it.
Patricia Stephens, Certified Nutritional Consultant

I want to encourage each of you with fibromyalgia. I understand what you are going through. I have been there.

After being totally disabled with fibromyalgia many years ago, I have been without pain and off medications for over 13 years. I didn't happen over night, but it did happen.

Here is what I have done to get well.
1. Identify and correct hormonal imbalances using plant-based replacement.
2. Initially corrected brain chemical imbalances, particularly improving a naturally occurring brain chemical called dopamine.
3. Cleaned up my diet and eliminated milk, a food that was causing trouble for me.
4. Cleaned up some toxins.

Rheumatologists and patients typically don't understand the symptoms of hormonal imbalance. I want to help change that. The technology is in the here and now to identify and correct hormonal imbalance. Do a little research to see if you have symptoms of hormonal imbalance. If you have many of these symptoms, study to find out how to identify and correct imbalances.

Here is a hug to each of you. I want you to feel well again.

Patricia Stephens, Certified Nutritional Consultant


MarymPed - May 9

What would you recommend to someone who is a thyca survivor, has no thryoid and has to take Synthroid to survive? And what exactly do you mean by 'toxins'?


conniehurts - September 15

I am so happy for your being able to get better but please remember that not everyone can for one reason or another. It is not my choice to be sick and definitely not my choice to have my life so totally changed! I have multiple health issues not just one. Sadly it is people like you who can make me feel like more of a failure than I usually do. Have you heard of the word compassion? Try using it. When you have multiple problems to deal with there isn't always an answer. Believe me I have looked for the answers for years!! It took 15 years to get a proper diagnosis of endometriosis and get it treated. In the mean time I had to listen to people say that I was an addict, just wanted attention, it was all in my head or I hated being a woman! When I finally got a diagnosis and hysterectomy the doctor actually asked me how I dealt with the pain all those years because it was so bad he had to go by feel since he couldn't tell visually what organ was what!! I had it pre puberty so no one looked for it even when they had my abdomen laid open from above my navel to hair line! There isn't always an answer and other times the answer isn't gonna fix it. I do hope that you continue with your good health but please don't make the rest of us who have no choices feel worse than we already do!!


Sonja44 - October 16

Seriously, saying, "If I can get well, why can't others?" is (IMO) very egotistical.

Auto immune diseases are not well understood in the first place...add individualism, multiple types of home environments and varying access to quality medical care ... all together makes for many different experiences, coping mechanisms and degrees of illness. People are not made from a cookie cutter.

As the post before mine stated, I hope you continue good health...but please don't assume we are all alike when it comes to...well...anything.


conniehurts - October 16

Sonja44, Thank you for the support ((gentle hugs)) I fight the feeling of being less than what I should be and to come to a pain support group to find someone telling me that I am not doing enough to improve my health really hurt. Patriciacnc sounded to me like she was selling her book. I have tons of books on how to improve my health but when you got so much going on as I do its a lot easier said than done. I wish you the best! Peace Connie


January - November 16

Totally agree - the woman is trying to sell her book and her services. What exactly IS fibromyalgia? Nobody knows. IMO, fibro is an easy dumping ground diagnosis for people with pain and fatigue, and it has been "marketed" by drug companies who claim to have treatments - which only work, sort of, for about half of the fibro patients. There are hundreds of reasons why people get the many, many symptoms that go with fibro - which is NOT a defined disease, it is a syndrome.

It's very nice that Patricia Stephens managed to cure herself completely. The reason everyone else can't be just like her is because we all don't have bodies that are exactly like Patricia's. If she knows ANYTHING about medicine (and if she's a "nutritional consultant," she should) she ought to know that everyone of us has a unique genetic fingerprint, and therefore a unique body chemistry and anatomy.


conniehurts - November 17

Thank you January! Well stated!! Gentle hugs and Peace Connie


simonne42 - July 28

I read your post, I must say, very good indeed that you have recovered. I have stopped eating all dairy because of the inflammation that was affecting me. I changed my diet completely, but I have to research on hormones. I don't understand how hormones can help with the pain. Is it something that connects to the brain and allows communication to the nerve endings and tendons? My mom has fibro as well, she has it way worse than I do, but she did try the hormones and all it did was make her moody (not in a good way). Like you said, not all remedies work for everyone, but so willing to try anything. My doctor put me on part-time work instead of my full time, which I don't mind, however, I am loosing 10-14 hour pay. So, any words of wisdom here would be awesome


January - August 3

Simmone42 - Patricia's post was about more than just hormones - if you go back and read it, she mentioned several things she did. From her post, I think she used bio-identical hormones (and she may have been going through menopause, and needed the hormones). She also mentioned the book she wrote, so if you're interested, why don't you try to find her book?

Hormones must be administered very carefully with a doctor's help and blood testing. If you think you need them, go to a gynecologist and ask to have your hormones tested. If you need hormones, ask for bio-identical hormones. DO NOT ever take Premarin or Prempro -- those are hormones made from horse urine and they do not work well in the human body. They have been linked with serious health problems.

If you are not going into menopause, you probably don't need hormones. You can ask your doctor for an "FSH Test" and that will tell you if you are menopausal. As far as I know, hormones have nothing to do with treating fibromyalgia pain.


kem65 - August 6

exactly its not just hormones and if doctors cant figure out what help we need but the book writer did come one now. hormones isn't great for everyone I had breast cancer due to messed up hormones from what I understand so that didn't help me one bit. so u agree January and conniehurts. the fact that people say just exercise lmfao really then be bedridden for a week. I walk on my breaks and lunch and I get home and lay down. do the walks help yes help my legs to be on fire and my feet hurt so bad I cant walk then get tendonitis in both Achilles.
people can be aggravating


January - August 15

kem 65 - I know what you mean. Exercise can make you feel like you've been hit by a truck. Hopefully you will find something that helps you to reduce the overall pain in your body - and maybe keep walking but do less than you have been doing?

My doctor sent me to PT - the therapist told me to do 10 reps of an exercise. I did the 10 reps, and thought it was easy, and I felt fine. So I did 10 more; and then 10 more. Etc. The therapist then walked over to me and asked how many reps I did - and said this is a typical problem with fibro people - they always think they can do more or push themselves. He told me I would have to learn to pace myself and just do a little - and quit well BEFORE I ever started to get sore. He was right. It's better to do just a little, and quit while you're ahead than to knock yourself out.


somebodycares - October 15

I agree with the majority here that what works for one person will not necessarily work for another. I've had Fibromyalgia since childhood (they didn't know what to call it) and have been told to do this and that, eat this, not that for years and have come to the conclusion it is an individualist thing as to what works best, just like the disorder. That is why some people are bedridden and some aren't. Perhaps those that were "cured" didn't have it quite so bad or not at all. I've spoken to many people who claim to have had it but were never diagnosed yet swear thats what it was and so are now the specialist because they cured themselves, haha! I do believe the hormones have something to do with it, but not in the reproductive system way. I think it has to do with our adrenal glands and this is where some of the testing is going also. The thing is, they still don't know what brings it on (stress? genes? auto immune system malfunction?) so how can you cure something you don't know the cause of? I have a cousin like myself who has had Fibromyalgia since childhood also. We seem to be of the rarer variety as most get it after an accident or illness or extremely stressful event. Anyway to get back to the subject of "cures", I would love to see one, but until then I am not sold on fancy diets, cleansing diets or one size fits all pills. I treat my symptoms and keep as active as possible, right now that is my "cure".


mypain - December 14

Food for thought....what if I told you my sleep psychologist told me that if I can get my sleep issues fibro will go away...I thought this was very I told him I would play the game to see where this be honest, I don't know if I have the energy to keep fighting the fight...apparently I stop breathing 30 times an hour while my CPAP is on it's way, I am in constant motion while sleeping...and everyone wants to know why I am so tired and why I take 5-6 hr naps everyday....I am exhausted..what more can I say? I will keep you all posted....have a great evening...


somebodycares - December 14

mypain: The majority of Fibro suffer's have sleep disturbances; Why wouldn't we? I was put on CPAP because I never achieved REM sleep and I also quit breathing quite often at night, apparently. Unfortunately, I didn't tolerate it well for a variety of reasons so I don't use it. However, the good news is, there are people who do tolerate the CPAP just fine and feel it has done wonders for them. I hope you are one of them! I would love a good nights sleep and can actually count on one hand the nights I have had them...kind of sad. A good bed that works for you is also a factor in a great night's sleep. As for daytime naps, I don't take them since it only disrupts my nights that much more. That isn't to say I don't take time to rest/rejuvenate, but I don't sleep during the day. I don't know that getting a good nights rest will "cure" your fibromyalgia, however it will help you to cope with all the effects of the syndrome! Best of luck!


h2olgd - April 29

I agree with all of you above. I am a newcomer to the Fibro diagnosis, but no stranger to a Chronic Pain disorder. I've had CRPS for 18 years. Then got slammed with 3 more auto-immune disorders on New Years Eve, this last December, Fibro being one of them. And I am currently in the process of being tested for two more, my doctors are about 90% certain I have as well.

While I'm glad this woman was able to "cure" herself, there is no reason to make other people who have been living through a constant state of hell trying to help themselves in any way that they can, feel bad about that effort because they have not been able to cure themselves also.

I live in a state with very few doctors and even fewer who even know what CRPS even is, all I got in the beginning was a whole lot of you are a hypocondriac and you are making up all this pain for attention. So, how are people like me even supposed to work with doctors to even attempt to get better when there are none to be had. And then when, miracle of miracles, you find that one doctor who knows what your CRPS is; you get slammed with three more. How on earth is that one lonely doctor supposed to help you at all anymore? When he barely new what to do in the first place with that one syndrome.

And don't give me that go to some other state to get help. Please send me the several hundred thousand dollars it would cost me to fly to another state several times a month and I'll gladly go, every single time I would need to see a doctor, since they are at least 2,000 miles away. Probably, further now since I'll need one specializing in several disorders, or I'll need a clinic that has several specialists for all of these disorders.

Sometimes all people can do is manage the pain from several different disorders and hope more don't pop up. Because, as in my case, helping one disorder is causing the others to get worse.

I will never begrudge someone else for getting better, congratulations. I am very happy you found a way to do so. But please do not belittle the effort the rest of us make in the strength it takes us just to get out of bed every single day.


Angie28 - June 1

Hello I am waiting to see a specialist in July to see if I have fibromyalgia, I can spell it now as looked it up that many times ha ha. I do believe only by my own life experiences that stress may trigger this off. I have had years of stress, bottling it up etc but since having skin cancer removed from my arm whilst awake was the worse thing and since that I've been ill with I do believe fibromyalgia, it's great if people express there better and want to make others feel better and yes everyone has different life styles and other health issues. I feel that if someone can write a positive out come and mention there book which people have a choice to buy or not then that's a good thing as it may help others. I do also believe my hormones are all other but test after test say no change of life yet. Nobody knows there own body more then you and I do believe after experiencing stress that there both related.


sueant - July 8

Hi all, I am a 69 year old lady who was diagnosed with Fibro in 1964. At the time I was working for a psychiatric and pain management group. When I mentioned to one of the doctors the intense pain I was feeling 24-48 hours before an increase in humidity, or downpour. He said "you have fibromyalgia, go see your doctor. Which I did and was diagnosed, after being tested for a myriad of diseases. I had intense pain in both my legs for years, it moved up to my hips, chest, breast, neck, and now for years has settled in my shoulders and arms. On a really bad day I hurt all over. Don't laugh, but my co-workers always asked me what the weather was going to be for the weekend! The chronic fatigue which came on slowly over the years before I was diagnosed was debilitating. Before CF and Firbo, I worked as office manage for a medical center, was very active in community theater, sang professionally for a local church, and had a large group of friends. I gave up on everything and my friends gave up on me! I simply could not keep up, and never knew when I woke up in the AM what kind of day it would be. Everything except my work, which I honestly do not know, looking back, how I kept up the guts to remain a productive person. To this day the only correlation to my pain is the barometer. No diet, lifestyle change, medication, and all the other remedies offered, can fight nature. The only pain reliever was my hot tub. Today I have the perfect job, working from home. The lack of stress has not improved my pain. I also moved back to LI and have less pain than I did in Florida. There are good days, which I live for. Also the chronic fatigue became much less after menopause. You have to keep strong, do things that make you happy, come to terms with your limits, (which in my case was very hard) and carry on. People who do not understand you, are just ignorant of fybro and we have to hope that they never experience it!



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