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Help, I am feeling awful
11 Replies
kswids - August 17

I just have been diagnosed with fibro and was on 100 mg of lyrica. THis did not work so my doctor upped the dosage to 200 mg. I am lupey, sleepy, sad and feeling very fat. Anyone have these symptoms from lyrica

 

Fantod - August 18

Hello kswids- You did not say how long that you have been on Lyrica. Everyone feels loopy on a new medication and it can take a couple of weeks to adjust. If you are really feeling that uncomfortable you might want to call your doctor and discuss it. There is another drug called Savella which you could try in place of Lyrica. AS far as I know, it does not seem to have the problems with weight gain associated with Lyrica. Take care and let us know how we can help.

 

kswids - August 18

I have been on it for about 3 1/2 months already. I spoke with the doctor yesterday and he said for me to cut back to 100 mg. It didn't help before so I am sure it won't help again. I just want to get rid of this feeling. Do you think messages would help?

 

Fantod - August 19

Massages are a good thing for fibromyalgia (FMS) but they are not going to solve your pain problem. You need to go in and see your doctor. Keep track of how you are feeling every day in writing - level of pain, grogginess, sadness etc. Write it down and take your notes with you.

As with most people with Fibromyalgia (FMS) you are going to have to be your own best advocate. Your doctor is either not listening or is being lazy. You could ask for Savella as an option.

Personally, I'd start looking for someone else to handle my care. You can call your local hospital physician referral service and ask them for a recommendation. You should ask for a rheumotologist and/or a pain specialist with an interest in FMS. The other thing that you can do, is go to the National Fibromyalgia Association website and register. That way you will be able to see a list of healthcare providers that are fibro-friendly in your area.

It does take some time to find the right combination of drugs and doseage when first diagnosed with FMS. That being said, I feel that your doctor is not very engaged with your situation.

How are you sleeping? Have you been given anything to assist with sleep? This is a crucial part of treatment with FMS. Fibromyalgia interrupts the deep sleep cycle. Your muscles need deep sleep in order to repair themselves from the days activities. If you are not getting proper sleep, your overall pain level may become worse.

Also, diet is very important. No deep-fried foods, lunch meat (nitrates) or diet anything. Artifical sweetner is a big no-no and that includes Splenda. All of these things can add to your levels of pain. If you use a sweetner for coffee try Truvia which can be found with the sugar products at the grocery store. It is made from the Stevia plant and much better for you. Here's another diet tidbit - artifical sweetners actually make you eat more.

I hope that my comments are helpful to you. Take care and let us know how you are doing.

 

mimosette - August 21

I just wanted to stress what Fantod said about the Splenda.

I have been feeling a good deal better (on Cymbalta), and thought I could drink some iced tea sweetened with Splenda...as in 3 glasses.(my husband keeps Milo's tea in the fridge all the time)

I hurt today. NOT a good idea.

 

mesosore - August 21

Yes. Lyrica made me feel so out of it I was bumping into walls. In fact, over the years, I was diagnosed in 1987, I've tried just about everything they have out there. Without much success. Anti Depressents just make me more depressed no matter what new one they come up with. the only thing that helps, since I have problems falling asleep and staying asleep in klonapin and every since MJ's death my doctor doesn't want to Rx that drug. Been taking it for over 20 years, never increased the dose, can't survive without it since anxiety, which I suffer from, increases all symptoms of FM. Lyrica reacts on the nerves in the brain and I have not heard of anyone having any success. I'm sure there are some. I've heard of more success from Cymbalta but I can't take it. Friends say it helps relieve some of their pain.
mesosore

 

louise75 - August 27

I'm to fearful to try any new drugs at this time so I don't take it.
But my sister is on lyrica, she is sleeping better and her pain is less. Not a cure but she is grateful!
Oh it did take her awhile to get her dose just right.

 

tnichel - August 27

mimosette, I recently came to the conclusion I can't drink sweet tea anymore b/c of the adverse reaction I have. Has anyone else here found this to be true about drinking sweet tea? I wonder if it's the sugar, the caffeine or both. I don't overly sweeten my tea. Very odd but interesting.

 

tnichel - August 27

Sorry I meant mesosore. It is so time to go lay down!

 

wolffin - August 27

Hi im also on lyrica i was on gabapenton before lyrica. Just had my dose increased to 300mg so far not much help in the pain department but it has cut down the neuropathy I have.

This is first time have read anything about reactions to splenda. I know that aspartame aka NutraSweet affects muscles. Wich is why us Fibro sufferes are supposed to avoid it. I dont have much of a choice im also a diabtetic so i can't have sugar.

 

mimosette - August 27

tnichel,
I don't know about regular sweet tea, as I usually drink mine unsweetened . I prefer it that way. It was just handy that he had it already in the jugs in the fridge.....lol, so I drank it.

 

wolffin - August 27

i can tolerate unsweet tea but ya ick ;p

 

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