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HELP!!! Does anybody else feel like me?
5 Replies
Dee - July 6

It seems as though I hurt more since summer is here. My hips and back hurt so bad that I just want to lay in bed. I try to let my husband know how much I hurt lately, but he seems as though he doesn't want to hear it. I have no energy, I hurt all the flippin' time, and nobody in my family seems to care. Does anybody else feel the same???? If so, how do you cope with it?

 

TORVAIG - June 28

Oh dear, you have my sympathy! I seem to hurt a lot more in the summer too; I am more exhausted and am forced to go for a lie down on my bed every hour or even more often. Getting my spine straight and my legs elevated seems to give me some strength back. I presume you are on pain-killers; if not, are you using a TENS machine or getting acupuncture? I am on co-codamol four times daily, use a hyperbaric chamber twice a week, use a TENS daily and have acupuncture twice a week. It seems a lot but I hope to reduce the chamber and acu., to once weekly each. If your family are not sympathetic, try holding a meeting and let everyone (including yourself) give their feelings on your fibro and what it means to them. Insist that they are honest with you AND you with them! Who does the bulk of the household chores, gardening, shopping, paying of bills, remembering birthdays etc? If one person seems to be carrying all the load, insist that they are distributed according to fitness. If it is you, outline why you can't continue, and then do only what you can cope with. I would like to think that when they run out of clean clothes, decent food and the garden is overrun, they may tumble to the fact that they will have to get their act together and take over. The next time any of them are hurting or ill (excepting serious) just ignore them. You could also try writing a list of how fibro affects you in your daily life starting with waking up, showering, getting dressed etc., etc. Not forgetting how often you wake through the night with pain. Good luck

 

debs kane - July 4

oh dear i also feel worse in the summer i really thoght it was me but after reading this i find that its not. my energy levels are much lowere and i feel as if im dragging myself around.last week i parked my car so tired was i by the time i got in from my 4hr shift at work that i drove straight into the water butt. i used to do a full time job and do over time but 14 years ago i put paid to that. i was out of work for 12yrs but have gone to work for my self but im finding sooooo hard in a row the other day with my husband i tried to explain my tiredness and he said well pack up then but i know he didnt mean it. i feel real guilty laying down during the day and struggle on regardless. by the time iv had tea im asleep.

 

Karen - July 6

I do feel for you. I hurt worse in the summer too. The high dewpoints get me. I have reactive airway disease which in reality is pains across my chest associated with fibro. Have you tried swimming or soak in a hot tub. That does seem to bring some relief. In the winter its the cold damp weather too that is bothersome. Can't win can we?

 

Karen - July 6

I don't think it is so much your husband doesn't want to hear it as much as he doesn't understand it. To him, you probably look perfectly normal. I have found that unless you talk to people that have the disease, they don't want to hear it.

 

Dee - July 6

I really want to thank each of you for reminding me that, even though I have no support at home, I am not alone. Karen, you're right--we can't win! But we will continue to do what we have to do to make the pain as bearable as possible. Yes, a hot tub is wonderful; just don't have access to one....if only!!! I'll pray for each of you. Continue to pray for me. God bless!

 

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