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finally a diagnosis
3 Replies
jrzgirl - March 5

I finally went to the Rhuem. today, she said I had fibro/raynauds and some RSD, she does not treat RSD, and the meds for fibro I cannot take, so many allergies to meds., so I guess I just have to deal with it, try to stay out of the cold, take pain meds and stay warm and STRESS free LOL


ptalana - March 6

I am so happy that you finally got the diagnosis that you needed, but sorry that it turned out to be fms. At least now you can concentrate on treatments. I too cannot take the meds recommended for treating fms due to extreme drug sensitivities. There are however so many other things we can do to help with the pain. Exercise while does seem at times not feasible is imperative in our physical and mental well being. Starting slowly with a gentle exercise ie, walking, yoga is essential. At all times listen to your body it will let you know when you've done enough. I have worked up to 20 mins of gentle pilates, this did take me 6 months.
This can also aid in reducing the stress, stress is a major contributor to fms.
Please read the Alternative Therapies section on left side of your screen for other suggestions.
Remember you're not alone, and we are here for help and support always.
Take care, Patty:)


Canada17 - March 6

When I was finally diagnosed with Fibromyalgia (FM) I started reading as much as I could about it, trying to understand; I haven't stopped. The only power I have over my FM is knowledge and I do a little research everyday. Research on things to do or things I should avoid that will help. Research on what studies are being done and what results have been published. Because so little is currently known, there are always new leads to follow.

I too am extremely sensitive, in some case allergic, to every pharmaceutical I have been prescribed to treat FM related issues. The only drug I can use that is not toxic to me, and which I am using on the recommendation of my physician, is marijuana.

I know how controversial it is and I wouldn't recommend any break the law. However, there is a mountain of research proving that marijuana is an effective pain reliever, among other things. People have been using it for thousands of years to treat hundreds of different conditions.

If you live somewhere you can legally gain access to medicinal marijuana, I would at suggest that you at least look into it. You don't even have to smoke it, there are several other ways of taking it. I pulverize mine in a coffee grinder and pack into gel caps; I take 0.5g doses every four hours. It is the only thing that gets me through the days without making me a space cadet. That's right, ingesting a small amount can provide relief from my FM without making me feel "high". MJ is my shield against FM.

If you do the research on it, you will often see Fibromyalgia pop up with medicinal marijuana.

Don't be discouraged with your diagnosis, at least you now have one. While it can be scary to think of a life battling this invisible dis-ease, you don't have to do it alone. No matter who in your life cannot understand what you are going through, we do. We are all in this boat together, and some of us brought oars. : )

Take care.


jrzgirl - March 6

I was also told that Viagra helps



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