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9 Replies
FARMER1870 - May 9

Hi fellow support members,

I was diagnosed with Fibromyalgia that surfaced after a work related injury bout 5 months ago. My pain management doctor referred me for a psychiatric evaluation, because this condition has caused me severe pain, stress, depression, major fear over whether or not I could go back to being a nurse, sleep issues among other things. It was so complex and lengthy that it added on more stress and pain and took about 14 hours total in two separate appointments. I would like to know has anyone had to go through this process? It seems a extreme to me. Were any of you able to go back to your original job? or were you trained for something else?, or were you able to work at all? Your opinion and advice will be greatly appreciated. To all the mom's her on the forum. Happy Mother's Day!!


Fantod - May 9

Where do you live? Is this process a part of workman's comp? The reason I ask is that I have never heard of having to go through any type of 14 hours appointment to get counseling. My experience was simply to indentify someone who specializes in chronic pain/illness, make an appointment and go.

I'm guessing, but it sounds like there is some post traumatic stress as a result of your injury that has triggered the Fibromyalgia. If this is a workman's comp issue than I would suspect they are trying to figure out of you are a malingerer/faking. Pain is subjective. It can not be seen and is therefore scrutinized more closely when it comes to these types of situations. It is unfortunate that you have to go through all of this nonsense but necessary in today's litigious society.

I am completely disabled as a result of Fibromyalgia (FMS) and several underlying conditions. I would be the world's most unreliable employee if I was trained to do something else. My "perks" from FMS are all over the map. I can never accurately predict if I will even be able to haul myself out of bed by the crack of Noon.

Everyone has a different set of symptoms with FMS. One person's experience may not apply to you at all. The only person who can accurately gage what you can or cannot manage is you.

I would say that you are probably going through a grieving process right now. A diagnosis of chronic illness is very stressful and the "what ifs" become overwhelming. Give yourself some time if you can before making any major decisions. Counseling may help you sort some of this out. And, you need to be very proactive about your medical care. Try to be grateful for anything that you can manage as opposed to focusing on all of the losses. That small change can make a big difference in your overall outlook. Take care and keep in touch.


FARMER1870 - May 10

Hi Fantod,

Thanks for answering my questions. Below are the answer to yours:

This appointment was made by my pain management doctor that was chosen by my attorney, which was chosen from a list of doctors here in California. The doctor wanted me to do this psychiatric evaluation, because of several issues I am dealing with my Post Traumatic Fibromyalgia. Plus, I haven't totally healed from my other injuries. My doctor advises that this condition has caused me many problems and he felt it was in my best interest to go. Later this month, I will start with individual counseling and bio feedback training. I will you know how it goes.


Fantod - May 10

I would be particularly interested in hearing more about the bio feedback training. This is something I have not explored yet. I hope that you will find some peace in your life and that things improve for you going forward. Take care and God Bless.


FARMER1870 - May 11

Thanks Fantod for all your well wishes. I will let you know how the first bio feedback goes and what it entails once I go to my appointment. God Bless you too!


ptalana - May 13

Hi farmer, I have undergone a physc evaluation mine however did not entail 14 hours, it only lasted 2 hours. I much like yourself developed fms from a work related injury, five years ago now. I am fighting my employer for long term disability as they cut me off over a year ago now. The doctor had a very in depth report stating that I need to be in a multidisciplinary program for my physical and mental well being. I also suffer from post traumatic stress due to my accident. My employer has fought me every step of the way and are unwilling to cover any of my necessary treatments. I've worked in the financial industry for the better part of my life, and have never been treated so callously. This has been a real eye opener for myself and my family.
I am completely disabled from this accident, with extreme mobility issues, constant pain, vertigo, double lumbar scoliosis, degenerative disc disease, arthritis, mps, hernia, and gerd, to mention a few..... Fibro is such a complex disorder affecting every aspect of our bodies. I'm not able to work, most days I'm flat on my back with my knees raised. I suffered nerve damage to my neck and back from my fall, this leaves me in total spasm with paresthesia in my legs and hands.
So I can relate to what you're going through. Having a clear understanding of fibro is essential. I would utilize the blue boxes on the left side of screen, they hold a wealth of info.
This sight is super for not only info, but for the companionship of its forum members. Knowing that you're not alone is such a welcome relief.
My hands are getting pretty bad so I'll sign off for now.
Wishing you all the best, Patty


FARMER1870 - May 23

The other day I went to bio feedback session with a specialist and I will share with you and the rest of the gang what it entailed, so maybe it could help. Since, you don't have the tape he played, put some very soothing instrumental music to start off with. Then close eyes and see the word relax across your forehead. Tell yourself your relaxing more and more to the point of being unable to open your eyes. Actually try and open your eyes, but you won't be able to. Then keep trying to relax more and more and go to each body area. Example: Head, neck, shoulders etc...... and in between think of a place that makes you feel very relaxed and occasionally go back and look at the word relax across you forehead. Usually once you are very very relaxed (ABOUT 20 MINUTES LATER) they will start telling you things are waking up and by count of 5 you would be totally awake, but relaxed.

My therapist tells me it's important to relax each body part and if I wake up not to get out of bed unless I have to go to the bathroom. Then try relaxing all body parts again. It seems to me that it's the same thing the bio feedback specialist is saying except for the music and the speaking part explaining what to do. I guess the key is relax and reduce pain, which is easier said than done. Let me know what you think.


Paulene - May 26

I recently have been diagnosed with fibro and one of the things I notice about myself is the relentless tension in my body. I have to concentrate to let it go. Then moments go by and I check myself again and sure enough I'm taught like a board. It takes several deep breathes and much effort to release it. I actually think that is the cause of all the pain is the pull on the ligaments from the continual muscle tension. Just my theory.


FARMER1870 - May 27

Hi Pauline,

I understand what you are going through. It's not as easy as people may think to let go of the tension you have in your body.I disagree somewhat with your theory of the cause of your pain you are experiencing. Many nights, I wake up due to pain even though my body is totally relaxed. First of all it's the stress of getting diagnosed with Fibromyalgia, because it's a lifelong problem. Stress causes tension on your muscles which equals pain. Another stress factor could be the uncertainty of what your future may hold due to this condition, which is one of my issues. I have financial issues, because I haven't received any money since late November 09 from my work injury insurance. My husband's job got transferred to Washington state and we both agreed that I would remain here in California until the house sells, but I was planning to go and visit at least every 6 weeks even if I had to take a week without pay. But with no money coming in, I haven't been able to go and visit him and I haven't seen him in 5 months. The only way, I have managed to pay my bills here and my husband's in Washington State is because, I am using money from my savings to supplement his income. If it weren't for the savings, I would be screwed. It worries me what will happen if I run out of my savings, but I trying to keep this out of my mind for the time being. There are times when I have more energy, so I try and do a little more in my house. The other day I was totally zapped of my energy that I couldn't do anything at all. I actually had to lay down and take a nap. About 3 1/2 hours later, I woke up and still felt completely without energy.

It has been about 6 months since my work injury and within a short time the Fibromyalgia surfaced. I have the same issues trying to get my body to let go and relax, but the bio feedback treatments I have had so far has helped me to relax at least for a few hours after the treatment. The Bio feedback specialist decided to try a different tape of how to relax and I noticed it didn't seem to get me to relax as much as the initial one. Also, I have requested a copy of the cassettes used in the treatment, so I can use at home since I only have one visit left. I have individual counseling once a month. Also, I started today, group therapy which is held once a week.

I have become depressed over this diagnoses, because I don't know if I can find a job as a nurse without having to lift patient's. To make matters worse, since my work injury insurance refused to pay for my Savella, which is for my Fibromyalgia, I had to go through horrible withdrawal symptoms, because this medication was not suppose to be stopped abruptly. This medication was to be slowly reduced over time. It only took about 3 days for this to happen. My moods were all over the place and ended up in the ER. They gave me a shot of Ativan, which was extremely painful to get my moods back in check. But, ever since then I have never totally recovered, even though my doctor gave me samples and I was only off this medication for 5 days. The worse part was that I was finally beginning to feel like I was moving forward, but now I feel like I have taken several steps back.

Hope you have a better day!



Fantod - May 27

Paulene - The pain caused by Fibromyalgia (FMS) is due in part to muscles and tendons being tighter than they should be at times. However, the main culprit is lack of deep sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain. This continous cycle rapidly becomes a vicious circle. I hope that you are taking a medication like Amitriptyline to help you sleep. Take care.



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