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crying! Looks like a dead end!
8 Replies
trixiemyrtle - September 30

I was looking again for help. and its not here a guess, Ive been reading all these post for months and relating everything going on with me, so many of theme fit what I am going feeling,just grasping at hope,I been to nuro and had like 5 primary doctors, non which will deal with pain im so lost and afraid and alone

 

supagirl - September 30

hi trixie i suppose the point is that even though we are all in pain in some way, we have stories to share, treatments to compare and we know, for sure, no matter how bad it gets, we are NOT alone. try to remember that there are others who are getting by even with fibro pain. you will find help, some pain releifs better than others, and really bad days, but through them will also be good days, life's great moments and hope. thinking of you, jade

 

Stacey373 - September 30

Hi Trixie - I replied to your post about finding a doctor, but I also wanted to reply to this one.

You are NOT alone! That's why we all come to this forum....we all feel alone and like no one understands what we are going through. But when you get on this forum and read the posts or talk to other people about what you are dealing with, they understand....they know EXACTLY how you feel and that makes us all feel a little less lonely and like we really aren't going through this completely by ourselves.

When I found this site a few months ago, I was literally having what I call a "minor nervous breakdown." I started searching on the internet just trying to find some answers and then I found this forum. I read the posts on here for a week and spent the entire time crying. At that time I had been diagnosed for about 1 1/2 years and had been dealing with this for at least 10 years. My husband, my family, and my friends (and I even thought my doctor at that time) didn't understand what I was going through ....they all thought it was STILL all in my head and that I was just being lazy. (my husband admitted this to me after I read some of the posts on here to him)

You have to remember....this illness doesn't just affect you physically...it also severely affects you MENTALLY.

I guess what I'm trying to say is that this forum gave me the strength I needed to deal with this illness. To deal with my family and friends. And to deal with my doctor. And MOST importantly...to deal with myself. I get on here every morning (unless I'm in bed with a headache or alot of pain) and this forum gives me the confidence to ACCEPT this horrible illness each and every day. I've learned to take it "one day at a time" and I now have HOPE..... I know my bad days won't last forever and I appreciate every good day I have.

I don't know if any of this makes any sense! LOL I'm just typing what I feel, but I really hope you don't give up on this forum and all of us on here. Take Care, Stacey :o)

 

trixiemyrtle - September 30

Thanks Stacey and Jade, I hear you about the cring as I'm writing thats true for me now. The letter from my work long term disability claim came, and the doctor basically said its all in my head and he see;s no reason that I cant drive the school bus. So I dont know what will happen next, my pyschitrist extenened my leave until I got my new doc, but he didnt deal with fibro stuff so i had to find another. I will have to call my pyschogist and get another extenion until i get into new doc who will prob just think im crazy to, I pray he heres me. I think my work will now say I have to come back or be fired

 

lost_in_thot - October 1

Trixie, supagirl and Stacey...I agree with you all. I'm in a lot of pain tonight and have been for a bit now. I am having a flare up, I think. I created a blog for my thoughts. I can't list it here because it's against the rules but you can find it on blogspot. My Life With Fibro...about a 30 year old and her God. BTW, I have prayed for you all tonight. You are not alone in your pain.

 

lost_in_thot - October 1

Trixie,

Check into a rheumatologist. Regular doctors know very little about Fibro and many think it is a blanket diagnosis and don't like it. A rheumatologist is an athritis specialist and will, if he or she is a decent one, know more about it and what to do for you. I feel for you. I had a nervous breakdown last year and was gone for three days unpaid from my job. I am a teacher. So, I know the pressure you feel about working in a school corporation and worrying about what they think of you. Hang in there. I will pray for you.

 

lost_in_thot - October 1

If you can't find me try typing the following address...where there are spaces...you will need to add periods. rebecca-mylifewithfibro blogspot com. I hope that works.

 

supagirl - October 6

i totally agree, trixie you need to see a rheumatologist. they are the specialists to diagnose this illness. hope you are feeling a bit better.

 

trixiemyrtle - October 12

I cant find your blog spot, I think Im making the right choice not driving the school bus, you work as a teacher and know how much love there is for children to do my job and everyday kids stop buy my house asking me to come back and drive the bus, and I miss them so bad but I cant take the chance. I have only driven a handful of times in my car and and shouldnt have been on the road some of them times. noone really gets it, but i think you would knowing what i do

 

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