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There Is Hope ...
2 Replies
L Light - July 24

To All Families,

After reading the blogs in some of these chat rooms, with much heart, I felt compelled to write. I was so astounded by the amount of women on medication (suffering the awful side effects - physically and emotionally), uninformed in understanding FM's hideous true nature, and frustrated by the lack of genuine understanding and support from the medical system. I want to take this opportunity to share the knowledge I have experienced 'first hand' and learned over time. I have had FM since 2006 and truly have learned to respect the depth of the message behind it.

Not all people share the desire of reasonable independence in health care; avoidance of the medical system 'taking charge' of your life. For those that do, I hope you find the following information helpful and somewhat relieving. If you would like to discuss further understanding in working with FM, I would be most pleased to talk with you. You can reach me at: natureintime at gmail dot com.
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FM is becoming well-known as a condition that researchers and individuals who have experienced it, believe may be related to chronic fatigue syndrome. Reportedly muscles begin to ache in response to stress, lack of sleep, an injury or infection, or another trauma or disease. Pain might develop gradually and affect a wide area, or it may come on suddenly and sharply in specific areas. You might feel burning, stiffness, shooting pain, or an overall throbbing sensation. The soreness can center on the shoulders, the hip or upper thigh muscles, or the elbows and knees.

Perhaps FM's most distinguishable features are that the aches are often accompanied by anxiety, depression, fatigue, or an inability to sleep (thus making healing virtually 'un-cope-able' at times). Doctors often call the sleep disturbances non-restorative sleep; you may be able to drop off, but when you awake you don't feel rested. In fact, you may be even more fatigued. Sometimes intermittent sleep patterns accompany this condition, only to worsen the symptoms overall.

Symptoms of FM may worsen during periods of stress, overexertion, trauma, extreme temperature, infection, or emotional crisis. Although FM isn't dangerous or life-threatening, it can be very disruptive. Curiously, it is seldom seen outside of Western industrialized countries, leading researchers and people with FM to theorize that lifestyle or dietary factors play a role.

Unfortunately, FM is easily mistaken for other kinds of pain. But anti-inflammatory drugs such as naproxen and ibuprofen seldom lessen FM pain.
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*** As an individual who has experienced FM since 2006, in some profoundly disturbing ways (i.e. swelling of knees, inability to walk, awful anxiety, pain, insomnia, etc.), I tell all of you, there is definite "light" at the end of this tunnel in life. I have not used 'any' of the new drugs put on the market and have come through each 'flare-up' or 'episode' with a better and clearer understanding of how my body is dealing and coping with each crisis period. At my absolute worst periods (twice) I took prednisone to bring the swelling down in my knees and intermittently have taken pain medication when absolutely in need. Bottom line, your personal understanding is your best remedy and future healing potential.

 

chelleno5 - October 11

Hi you have made some very good points here,i have suffered fms since 2001,and i can not tollorate any form of medication,so i have learned,ways to help myself,as in resting/sleeping/and accepting fms/naturally i have lots of pain and all the wierd symtoms including fibro fog.blurry vision and all the above like L.LIGHT.i am now looking into health products such as profavanol vitamin c and fish oils anything that has a high antioxidant as i do believe these my help.when i went through my menapause i took black cohosh and they really did stop those horrible sweats.far better than taking hormone replacements.

 

wildhope - October 15

Hi L Light,
I feel there is some hope after reading your article. My daughter has been diagnosed finally after 5 months. She has tried one lot of tablets from the doctor and acupunture, both gave her an adverse reaction. She doesn't want to go down the road of involving doctors etc and taking medicines that could possibly give her more side affects. She is now taking 'CoEnzyme Q-10 and B12 Vitamins as suggested by our local health shop. She is also trying to eat a healthy diet including foods high in magnesium (she is a vegetarian). It is a bit early to say whether these are doing any good as she has only taken them for the past 2 days and unfortunately at the moment she is going through a rather painful phase of aching joints and generally feeling very down. I am desperate to help her so if anyone knows of anything that has helped them in alternative therapies or medicines, please could you share it with me. Thanks

 

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