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My doctors theory? metal poisoning?
8 Replies
learnFMnow - October 16

My doc believes that many of us have heavy metal poisoning from the environment which causes the FM symptoms. I am not so sure I agree. However, I believe in him as a physician and will let him test me. I will do anything to get a handle on the curse which has altered my life forever.

Anyone else haard other theories outside the mainstream?

Thanks,
Debra

 

Fantod - October 16

Yes, the heavy metal theory is just one of them. Another theory is gluten sensitivity. Not enough to be considered celiac but still causing damage to the intestines. A blood test may or may not catch it. The most definitive test is using a stool sample. The percentage of people in the population with gluten sensitivity is much higher than previously thought. This is an area that functional medicine specialists are looking at as a possible trigger for Fibromyalgia (FMS).

 

belle1329 - November 5

Did you get tested for the metal poisoning, what were the resuts? Curious! Thanks

 

Canada17 - November 9

They have found a strong link between childhood abuse (physical, mental, sexual) and fibromyalgia.

They have also found a link between your mother having an illness while pregnant with you and you being diagnosed with fibromyalgia.

There is also a very strong link between people who have had whiplash and fibromyalgia.

There is a link between people who have an illness in childhood (like mono) and fibromyalgia.

There is also a hereditary link.

They have found many links, but there is a connection missing. They still don't know why all these things can cause fibromyalgia because not all people who have these things happen to them end up with FMS. Heavy metal poisoning may be Point A but FMS is Point C, they need to find Point B.

 

Polarbearcub - January 17

I'd love to know how your testing went and what test you had?

I came to the same conclusion but by myself. My DR has never treated me for FM and he already says he does not know what to do with me. I don't even know how to take that. I know I am allergic to Titanium Dioxide which is in most meds, and a host of other things. Since itching seems to be a common sympton of FM, I wonder how many of us have this allergy. Dr's will tell you, you cannot be allergic to titanium because it is inert or beleived to be so. But when they take it and make things out of it, it is no longer pure. So something happens that creates an allergy or sensitivity. Patch test is not great for titanium.

 

susanandpaul - May 18

I haven't been coming here long but Canada17 I love reading your posts. I'm really interested in your post about the links between fibromyalgia and other stuff from our past. I was diagnosed with fm about 8 yrs ago and then just left to my own devices. Thats a whole other story for another day. Anyway, since then I have never felt well but unlike some others on this forum i don't live every day with pain. I do however have fatigue,muscle aches and weakness and loads of other symptoms that rear their ugly heads most days. But what I'm finally trying to get too is 3 things:
First - when I was a child in the late 60's, my mother was told she had arthritis because of severe neck pain. My fm started with fatigue and severe neck pain.
Second: I have a mouth full of amalgam fillings that I am slowly having removed. I have thought for a while that I have mercury poisoning but have never been tested.
Third: Just a couple of months ago, a teenager drove into the back of my car while at traffic lights. I have been told I have suffered whiplash. Since this accident I have had neck and head pain with odd sensations all over the back of my scalp. My doctor has told me I just have to put up with it! I'm hoping it will go away but I'm not holding out any hope. The point of all of this is just to say I have to agree with what you're saying but I want to know why some people get it and others don't. I have also started chelation in the hope I will feel better. I could go on and on but I'll leave that for another post.

 

Fantod - May 18

belle1329, Yes I was tested for heavy metals which cameback completely negative.

And, the test I took also revealed that I am deficient in just about every amino acid needed to make the body function properly. I've been taking amino acid supplements made up to match my specific needs by a compound pharmancy for just over two weeks. So far, the only difference I have noticed is that my GERD is much better. If you want to know more about the test that I took, go to Genova Diagnositics and find the Nutra Val test. It was well worth the money in my opinion. Take care.

 

Fantod - May 18

belle1329 - Incidentally, I was also tested for gluten sensitivity using another test. I am sensitive but do not have celiac disease. I've cut down on gluten but I am not noticing any huge improvement pain wise. But, eliminating possible causes is better than doing nothing at all. Take care.

 

kvc33 - May 21

I think it can play a role in some people but I wouldn't say that most of us have this problem. My levels have been checked and they are 'normal'. We all have some heavy metal toxicity but unless your levels turn out to be out of range I wouldn't try to detoxify because that process can make you feel sick too.

 

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