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Male Support Groups for Fibromyalgia?
7 Replies
mjy21 - December 29

My partner was diagnosed with FMS a little of two years ago. It has literally ripped our life apart. He changed so much from the raging effects of poor sleep, fatigue and pain, and the works of many other FMS symptoms. He has chose NOT to use any pharmacautical drugs as the mask the syndrome, and speaking with others whom had used pain meds and sleeping pills, anti-depresants, etc... they had either become immune to the meds, one became addicted to them, and over all, did not find them really that helpful. My partner has been seeing a naturalpath whom has got him on a strict diet which has helped the leaky irritable bowel syndrome; however, the sleep really hasn't ever impoved, and the pain hasn't really went away that much either. He is strict avoiding nightshade foods, he's a strict vegatarian, he walks an hour a day spread out in intervals, takes a list of herbal supplements and a sleep/pain tonic from a very good herbist, and regularly sees the chiropractor. We are in debt like crazy for the way we have chose to go with treatments, and I try as his partner to lovingly support him, but I'm losing grounds. He is often cranky. He is not the out going loving person I met 8 years ago. I feel so helpless of who to reach out to. I am in psycho-therapy, and he refuses to go to therapy. My councellor of course feels that my partner SHOULD be on an anti-deppresant; however I support his choice to stay natural. Are there any male support groups out there that I could interact with? I would appreciate any help from whomever.


david251180 - March 26

Hi mjy21 If there are any male support groups i dont know about them but if i can help u with anything i would be more than happy to as from a mans point of view to being ill for a while and was diagnosed at 21 i,m now 26 Ok if he insists on staying natural would u both be open to the idea of using cannabis as it is a plant and does help with both the pain and sleep and i also find that it helps with my bowts of depression, this isnt something i use all of the time but more as and wen needed as for him going to therapy mmm prob not best idea would just make him feel worse does he have anyone to talk 2?.. I hav to admit iv not known of any other guys but myself having fibro and i would be up 4 chatting to him if he would like.



david251180 - March 26

I tell a lie i have just found one the addy is xx


CSG4mom - April 1

My husband too has fibro. Our doctor informed us that men with Fibro are very rare and to complicated things, most of the meds for treatment the recommended doses are geared for women so it makes it that much harder. To make it even more odd, my father has suffered with Fibro for more than 20 years now. I asked our doc the other day what the odds were for me to have both a father and a husband that had fibro - answer: astronomical!!! I have learned alot so if I can help, I will be happy to try!


Fantod - April 5

I'm female and responding to your post as an interested party. While I respect your partner for his attempt to stay off of medication, the toll it has taken on him and your relationship is horrendous. Not everyone with Fibromyalgia becomes immune or addicted to medication. I use a mix of holistic and conventional medicine to deal with my symptoms.

I think that Fibromyalgia is a huge stressor on the body, and relationships. Your partner is living proof. I agree with your counselor that your partner should be on an antidepressant at the very least. As someone who uses both holistic and conventional medicine I think it is possible to manage FMS. Your partner is right, the medication is not always helpful but I would rather be on it than put myself or a loved one through unrelenting hell. I'll take the occasional good day versus none at all.

I have to wonder (a) Why he is punishing himself like this when it is apparent that his "plan" doesn't work? and (b) While I admire your courage and dedication, how much more can you take?

I hope you do find a group for males that can give you a different perspective. Take care.


axxie - May 28

I have a great friend of mine who is also a man in his 30's, was much like your partner!

I asked him point blank, why after so much struggle and pain, would he not want to see what conventional had to offer.

He could not respond because he was in a state of DEPRESSION because of the pain.

Your partner needs help, and you have enable him to do his thing, clearly it's not working and it causing strain. Both yourself and your partner need to face up, time to try something different.

Addiction or Immune........please, stop listening to your friends and people who tell you this nonesense.

If you have ever taken a medicine that didn't work, you may have wondered why that happens sometimes. There are several possibilities:

It's the wrong medication for your condition.
Your condition will not respond to any medication — that is, there is no known effective medication therapy for your particular medical problem.

Your problem needs a different dose of the medication or a longer duration of treatment.

The lack of effect was a normal physiological response for you. One other reason I've often heard from people is that a medication does not work well because they have become "used to it" or "immune to it."

Can you really become immune to a medication or is that a medical myth? The answer depends in part on how you define "immune," but, for the most part, it is a myth. Then again, as with most myths, there is some element of truth to it.

Rare, But True

Though rare, there are clearly times when a person takes a medication and his or her immune system responds to it by making antibodies. These antibodies can then cancel the effects of the medication.

The person has truly become "immune" to the medicine, and continued treatment is unlikely to accomplish much (and may even be harmful) same with cannabis.


axxie - May 29

A list of drugs with or without comprimising his belief of masking his ailment.

Has anyone suggested Savella, new on the market, they have very positive results and has been out in the Europe for 18 years. It somewhat like cymbalta, except it's taken in two doses.

Lists of drugs that you may want to try:
Adapin (generic name: doxepin)
Cymbalta (generic name: duloxetine)
Desyrel (generic name: trazodone)
Effexor (generic name: venlafaxine)
Elavil (generic name: amitriptyline)
Lexapro (generic name: citalopram)
Pamelor (generic name: nortriptyline)
Paxil (generic name: paroxetine)
Prozac (generic name: fluoxetine)
Zoloft (generic name: sertraline)

Some physician prescribe anticonvulsive drugs to relieve pain and tenderness. Anticonvulsives can calm hyperactive pain fibers and effectively reduce anxiety. (These drugs may be very sedating)

Anticonvulsives include such medications as Neurontin (generic name: gabapentin)
Lyrica (generic name: pregabalin)
Topamax (generic name: topiramate)
Lamictal (generic name: lamotrigine).
These drug class is one of the most promising new therapies for fibro.

Anti-anxiety medicines) can alleviate some symptoms of fibros, these drugs can also induce a level of calmness to combat the high stress that many people suffering from fibro experience.

Some anti-anxiety drugs are:
Valium (gen name: diazepam) & Xanax (gen name: alprazolam), both of these are scheduled drugs because of their potential for addiction.

Others who are not scheduled drugs and don't have the potential for addiction) are:
Klonopin (gen name: clonazepam)
Restoril (gen name: temazepam)
Paxil (gen name: paroxetine
Prozac (gen name: fluoxetine) to treat anxiety.
Some of these anti-anxiety drugs some people need higher doses of drugs because of the high level of anxiety in the body).
This class are highly sedatine and they may cause nightmares, and the greater concern of these drugs may be habit forming particularly Xanax (gen name: alprazolam, they have the potential to become addicting if not taken properly (habit forming is a lower level of addiction)


Diagnosed2late - October 8

Whatever you do, please don't leave him over this. I am sitting alone in a 3 bedroom house without my wife and kids, because of this horrible disease.

You do have to put your foot down though. I lived in denial for years, and let this horrible disease take everything away from me. Do whatever you have to do to get him help, even if you have to separate from him for a short time, but whatever you do, don't abandon him.

Get your finances in order. I am sure there are many ways you can cut back. Turn off the cable TV if you have to. Let that expensive car you never could have afforded anyway go back. Stop spending with emotions. Do whatever you have to do.



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