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Do you know how I feel?
2 Replies
luckydog83 - September 29

Good Morning,
My husband has FMS and has for almost 20 years. We've spent countless hours trying/searching for doctors and medicines that work for him. In the last few years, he's been on prozac, a muscle relaxer and oxycontin. These have worked really well for him. Now our family doc. has decided he is no longer going to be a family doc, just a weight loss MD. I am so frustrated. Trying to find another MD in our town that will prescribe the oxy, is going to be almost impossible. They all want to refer to a pain specialist, but our most active local one just died in a bicycle accident so all those pts. are out there floundering as well already. Plus any we've had here will "review your records and then decide if you're worthy of being their patient" another MD's words, so you may wait months to see them. Watching the stress this is causing him is so hard. Knowing what this loss of meds. means to his ability to interact with our children is heartbreaking. The most recent MD we talked with prescribed him Cymbalta and that's it. I wanted to smack her. No offense, but that's not going to replace or give the relief he was getting from his other meds. She even said, if you had lots of back surgeries I could get the pain referral. She's actually hoping an MRI of his knees is enough to get him in soon. I just feel so hopeless right now. Of couse, I'm trying to stay positive,but it's so hard. FMS SUCKS and the doctors who eitehr don't believe in it, or want to prescribe meds to help people live with it are so numerous it's depressing.
Sorry for the rant, but I had to "say" it out loud somewhere.

 

Sonja44 - September 30

When I first started having symptoms...I didn't have a primary care provider...cause I was very healthy and athletic. Finding the right doc took time and when I finely found one...I told him I hadn't been depressed until I had to deal with healthcare providers and that I considered myself to have "doctor induced depression" from dealing with them.

Lucky for me he had a great sense of humor and we both had a good laugh and a better discussion on his philosophy of his practice and how that matched my philosophy of care.

Keeping a healthy sense of humor is the only way I can deal with it all. Easier said than done, I know. Hang in there and never give up on being proactive for you and your husbands health!

 

Fantod - October 1

luckydog83 - I certainly understand your frustration. I also commend you for sticking with your spouse. Many of us are not so lucky.

All of that being said, it is clear to me that you are going to have to think outside of the box to address this situation.

If I were in your shoes, I'd also being looking at this as an opportunity to get a fresh set of eyes on the situation. I know that you are angry at the doctor who prescribed the Cymabalta. Do you know that Cymbalata addresses both the pain and depression that usually accompanies Fibromyalgia (FMS)? Assuming that your hubby has not tried it before, it may not be enough but it is certainly a better choice than Prozac. Has your husband tried Savella which is the newest medication in the FMS arsenal? It has been used in Europe for decades and some people have had very good luck with it. You should try not to be wedded to one modality of treatment until other,newer options have been explored. There have been quite a few advances in treating FMs in the twenty years since his diagnosis.

Have you looked at the National Fibromyalgia Association website to see a list of fibro-friendly doctors in your state? You may have to travel to get good care. If you live close to a state border, you may also want to consider the listings for another state as well. Once things are under some sort of control, perhaps his local doctor can take over with less visits to a rheumtologist or pain specialist.

I have been reading "The Pain Chronicles" which is a new book by Melanie Thernstrom. It is very well written on the subject of chronic pain. In it, she makes a very good point about treating chronic pain. In a nutshell, not treating chronic pain is a violation of the hypocratic oath. Refusing to treat it or failing to provide adequate medication is, in fact, doing harm. A perilous position for any physician in today's litigious society.

I hope that my comments are helpful to you in some way. It is my feverent wish that your family finds some speedy resolution to this very difficult situation. Take care and God Bless.

 

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